#chronicillnesses

[myalgicencephalomyelitiscfstom]

"The doctors are not OK"

The doctors are not OK.

Shame, medical training, gaslighting, and cycles of abuse.

Blogpost arguing that doctors may not be willing to admit in a consultation they don't understand a patient's condition/symptoms/etc & instead not treat them well (e.g. gaslighting them) because of the way they themselves were trained

[firstflowerbatmaker]

I am going to have a rant, I am so tired of being unwell. I just went through probably one of my worst fibro flares which lasted 2 weeks and on top of dealing with a flare I am now getting migranes frequently. I though I was coming out of it so I went to work and then for a coffee with a friend and apparently that was to much and I have now been dealing with the same fuxing migrane for the past 48 hours and the pains in my body are increasing.

I am 26 and I am just really struggling with this at the moment I wish I could enjoy my life I wish seeing a friend for an hour wasn't overdoing it, i wish I didn't have to hear people i work with or even my family of there opinions of my chronic illnesses.

I am just so sick and tired of being sick and tired...

[goodwitchcloset]

I did a thing, now my body wants payback. Doing my best to push through this but sometimes I get so frustrated and angry that I can't do the things I used to and feel the way I used to after being active or pushing myself. It used to feel great to push myself, now I can't even explain the pain and exhaustion afterward. I still work full time, which takes most of my spoons and I still try to get out and do things or go places to feel normal. I feel guilt and shame when I can't, especially when people close to me think my pain and exhaustion is just from not being active all the time. I want to do more! I really do. I miss the old me. #chronicpainsucks #painsomnia #fibromyalgia #spinalstenosis #hashimotos #chronicmigraine #chronicillnesses #chronicfatigue #osteoarthritis #fightingwarrior #stillfighting #keeppushing https://www.instagram.com/p/CkG_lRrubL2/?igshid=NGJjMDIxMWI=

[megpie]

100% me lately. A combo of consistently overdoing it + the weather change to so COLD and no more sunshine warming up my old creaky bones. Plus bad dreams and anxiety nights. What a time to be alive... ;) #chronicallyawesome #chronicillnesslife #chronicallyill #chronicillnesses #chronicpain #painsomnia #anxietyproblems #anxietylife #anxietyanddepression #anxietybelike #overthinker #insomniac https://www.instagram.com/p/ClRSD0DJ-WB/?igshid=NGJjMDIxMWI=

[crazycatsiren]

When your body doesn't know how to regulate its own circulation, that's when cute compression socks come in. 🦊 #compressionsocks, #cutesocks, #thingsilove, #pots, #chronicillnesses, #spoonie, #spooniestrong, #disabledandcute, #chronicillnesslife, #disabledpride https://www.instagram.com/p/Cd9BV-KKRQL/?igshid=NGJjMDIxMWI=

[themadornithologist]

Today's damage report/debriefing: • Went to urgent care - both ears severely infected. • Went to Quest Labs - 5 doctor's orders, 25 blood tests, 3 blown veins. • Came home, briefed psychiatrist on rapidly failing mental health. • Three more days until chemotherapy. Ten days untill kidney surgery. • There is so, so much more. I am not okay. Please know this. 🩸 ⚔ #spoonie #bloodtestssuck #medicines #chronicillnesswarrior #chronicillnesses #chronicillness #chronicillnesslife #bloodtesting #sick #medicine #lab #spoonielife #bloodtest #chronicillnessawareness #spoonies #spoonieproblems #spooniestrong #bloodtests #bloodtest💉 #medicinewoman #chemotherapy #spoonieproblems #spooniewarrior #crohnsdisease #rheumatoidarthritis #raredisease #trigeminalneuralgia #kidneydiseasesucks #sickandtiredofbeingsickandtired #damagereport #bloody www.hannahcrazyhawk.com (at Quest Diagnostics) https://www.instagram.com/p/CLLH4FmFON6/?igshid=54hqdab4v4h6

[newhologram]

Real talk, Holograms... bad and naughty spine has been acting up again. I’ve been spending the past several days in bed on an assortment of drugs and herbs just trying to let my body rest. I’ve actually had errands and tasks that had to be done, so I really haven’t rested as much as I should have. Some days start out deceptively low pain and then by 11AM it’s unbearable. I haven’t even attempted to get any editing done. When this happens, it’s easy to get upset about it and think I’m just never going to get better, that I’m doomed and I’ll be stuck like this forever. It’s been most of my 20’s that I’ve been sick like this, and despite all of my efforts, I’m still in pain every day. I just have to remember that a flare up like this means progress—because I used to be in this high level of pain every single day for YEARS. The fact that I’m relapsing back into it means I’ve made progress. I like to squeeze as much as I can out of every single day, so I really don’t like that I have to rest so much, but it’s just what my body needs right now. Thank you for the love and thank you to my patrons for supporting me, especially during times like this when my content is slower because I’ve been in too much pain to edit or work on translations. I’ve only been able to do some freelance work from home, so your pledges are really important and helpful during this time. Gonna try to keep sleeping. Nini. #spoonie #chronicillnesses #chronicpain #atlassubluxation #osteoarthritis https://www.instagram.com/p/B0RpKEtA6wD/?igshid=ogyemybj700a

[regretfulfeels]

My Story Anniversary

“Ten years ago today,

I was sent to a far off place,

Where they did not know of healthy,

And no one was considered wealthy,

They sent me up to the fourth floor,

With the letters 4C 8 written on my door,

They came in one by one, then two, by two,

A whole bunch came in before I knew,

But why were they interested in me?

What possibly could it be?

Their faces were stunned and shocked,

Then they stepped outside to talk,

They came back in and started to begin.

Explaining my case,

I soon began to think I was a whole new race,

Different and confused,

I barely knew,

I soon got depressed,

Felt like I didn't belong with the rest,

It seemed as just yesterday,

I was able to play,

I was just a bird in the sky,

Until a hunter came by,

He shot me down,

After that my emotions all ended with a frown,

I wanted to soar, I wanted to fly,

All thought about was how much I wanted to die,

In the last 10 years nothing much has changed,

In fact everything is still the same,

I still don’t want to be here,

And I tend to make that clear,

I know my story happened for a reason,

So here I am telling it, season after season”

Brii Watts (regretfulfeels on ig)