#patientperspective

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According to medical sources, Charcot-Marie-Tooth (CMT) presents with motor and sensory abnormalities in the lower extremities. According to patient sources, the symptoms of CMT can be quite broad. Depending on the underlying mutation, the person might experience problems with sight or hearing, facial tics or spasms, vocal cord or diaphraghm paralysis, UE weakness, GI problems, bladder malfunction, pudendal nerve involvement, muscle/joint pain, neuropathic pain, temperature dysregulation or Raynaud's in the extremeties, and fatigue.

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Brantley Brooks' HLH Story | Cincinnati Children's

https://www.cincinnatichildrens.org/service/h/hlh/storiesShannon Brooks, Brantley's mom: "There are no words to describe the joy and the happiness of bringin...

This is Brantley's story about HLH.

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When the President's Commission on Combating Drug Addiction and the Opioid Crisis declares “addiction [a] chronic relapsing disease of the brain”1 and calls for expanded access to care, within those statements is recognition of the influx of patients with addiction into general medicine settings for chronic disease management. The initial conversations that can shape a patient's understanding of addiction will occur more and more within primary care offices or at the bedside in the general medicine wards.

"What do you think caused your addiction? How does it change your body or mind? These questions can start the conversation about the patient's explanatory model of addiction. Eliciting a patient's explanatory model can go hand in hand with understanding a patient's readiness to change and personal goals."

The biopsychosocial model of disease encourages us to share knowledge and decision-making with our patients, beginning with their understanding of their disease.

Helen E. Jack, et alia, "Asking How Our Patients Understand Addiction," American Journal of Medicine, Volume 132, Issue 3 (March 2019): 269–271.

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TW: Ableism, abuse Explaining my reaction to this: means I need to explain my history with this: 1. When I was a little girl, they held my hands down in tacky glue while I cried. 2. I’m a lot…

Julia Bascom over at Just Stimming explains why she doesn't like "Quiet Hands."

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Hey Iris - She's Demolishing Autism Spectrum Stereotypes | Facebook

Think you know what autism looks like? Meet Christa — who's ready to demolish some autism spectrum stereotypes. (Brut)

Christa Holmans explains Autism as someone on the spectrum.

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Autism Acceptance Month

This April, celebrate Autism Acceptance Month! Please don’t “light it up blue” or cover your bulletin boards in bright color puzzle pieces. Instead, love the autistic people in your life! Acceptanc…

Courtney Johnson writes about Autism Awareness Month as an adult who wants to speak for herself.

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Crohn’s Disease Is on the Rise

Many think the abdominal disorder starts in childhood, but it can occur at any age and is becoming more prevalent throughout the world.

Crohn's Disease is often thought of as a pediatric illness, but it affects people of all ages. There are two demographic spikes: one in the 10s-30s age range, and a smaller one in the 50s-70s age range. Not only are young people growing up and growing old with this diagnosis, but approximately 10% of new Crohn's Disease and 20% of new ulcerative colitis diagnoses are made in patients older than 60 years.

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A Day in the Life of a Person with MG

*** Myasthenia Gravis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician...

Retha De Wet writes about "A Day in the Life of a Person with Myasthenia Gravis" over at Myasthenia Gravis News.