#positive cf

[dreamingofbreathing]

I'm so beyond grateful I have such a beautiful and amazing mom (along with the rest of my family)! I love how she'll take a day off of work to go to all my doctor appointments with me (instead of making me go alone) and turn it into a fun day with going out to eat multiple times, driving around the city, and occasional spa days. Beyond grateful to have such an amazing support system!

[pleiotropic-life-blog]

So, let's see how this goes.

I'm not comfortable with being CF-onna-stick, but I also want to transition to talking about it on a platform that will be a bit harder to link to my legal name.

Anyway, about me:

Call me Kellis. I live in the US. I'm a senior in college. I'll be starting at a Ph.D. program this fall in [redacted]science.

I'm allergic to sensationalism.

[piano-mangina]

Cystic Fibrosis

Just a message to everyone suffering with this disease that has been told they need a lung transplant. Do it. Simple as that. All the fears like "What if it goes wrong?" "What if I go through everything and still die?" It's a scary thought, I know. But it's worth the risk. I got my lung transplant when I was sixteen and four years on I'm healthier and have done more things in that four years than I ever did or thought I could do. Doctors suggested the transplant when I was thirteen and for three years I said no. And how much I regret it. I got sicker and sicker, to the point that I was put on a ventilator and air lifted to Saint Vincent's hospital in Sydney and told that unless lungs come I would be dead within a fortnight. So please, I know how scary that choice is, but imagine your life without getting up every morning and spending hours on nebulisers, and doing countless hours of physio. My life is amazing and I'm so, so glad I made th decision to get a transplant.