I feel so upset right now.
I’m in the process of being diagnosed for Celiac Disease - I mean, I have been symptomatic for a month now and my blood tests were 15x the amount that they should’ve been, so it leaves little room for error at this point.
I went GF as soon as my blood tests came back, because I was in so much pain and could hardly get through the day. My GI doctor still want to the endoscopy for a formal diagnosis, but because of this stupid COVID, it was scheduled almost 3 months out. My doctor told me I had to eat gluten at least once a week in order to show damage in my small intestine. Fun. This week, I have felt like I’m dying as a result. I honestly just think I’m going to eat gluten every other week.
Some days with this are better than others. Some days I feel incredibly optimistic, especially when I find GF food that I actually enjoy and doesn’t taste overall horrible. I am learning to cook for myself now, slowly, but surely. But then on days like today, I am reminded that no one really understands this disease and I feel incredibly alone. I had to explain to a friend recently about cross contamination at restaurants and how I don’t feel comfortable eating out anymore, and she said I could still eat there - even though I KNOW the products she uses are not certified gluten free. Talking about cross-contamination is like speaking a foreign language, and that’s what kills me because it’s what makes you sick.
When I say I don’t feel comfortable with my parents making me food on the holidays and I’d prefer to make my own, I get upset. They insist without really understanding, because I’m the first and only person in the family with CD. And I realized that I’m never going to be able to eat my favorite Christmas cookies again. :(