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Dismissed and Disbelieved, Some Long COVID Patients Are Pushed Into Psychiatric Wards

There is some discussion of ME/CFS also

The chronic illnesses that make doctors doubt their patients often start after what “should” be a short-lived sickness—like COVID-19.

Some extracts:

"Such experiences fit into a long, troubling tradition in medicine. Because there often aren’t conclusive tests for these types of complex chronic conditions, and because many patients do not outwardly appear unwell, they’re frequently told that they aren’t physically sick at all—that symptoms are all in their heads. “Mainstream medicine really isn’t geared toward treating conditions and diseases that it cannot see under a microscope,” says Larry Au, an assistant professor of sociology at the City College of New York who has studied one of the consequences of that disconnect: medical gaslighting of Long COVID patients." -- "The experience made things worse. She was given numerous medications to which she had bad reactions and went through electroconvulsive therapy, which she says damaged her memory to the point that she had to relearn how to talk and navigate her hometown. “Nobody was listening to me, and people were not informed enough to make a correct diagnosis,” she says. “I was being misdiagnosed and treated for something that I didn’t have.”" -- Without the backing of a doctor or diagnosis, patients often find that other people in their lives don’t believe them, either. Doug Gross, chair of the department of physical therapy at the University of Alberta, has studied how hard it is for Long COVID patients to find medical care. He says patients often talk about “disbelief from not only the health care system...but more broadly in their social sphere: family members, employers, supervisors at work.”

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Rivka Solomon, a longtime ME/CFS patient advocate, says she hears this story a couple times a year: a patient, like Knights, has been wrongly admitted to or threatened with inpatient psychiatric care. And those are just the instances she learns about. “I worry about who is, right now, lying in a bed in a psych ward, too sick to function, left with no one to properly care for them, left with no one to advocate for them,” she says.

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Some clinicians, however, fail to differentiate between side effects and root causes, or use screening techniques that aren’t well suited for people with chronic conditions, Verduzco-Gutierrez says. For example, asking someone whether they struggle to get out of bed in the morning—a common question when screening for depression—isn’t all that useful if the clinician doesn’t differentiate between physical and mental exhaustion. “The only way to solve this is more education,” Putrino says, “so the next generation of clinicians are not looking at these patients and saying, ‘A couple of antidepressants and a day off will fix you.’” --

Science for ME update describes it as: “Good article on the negative outcomes for patients when Long Covid and ME are psychologised. Comments from among others researcher/clinician David Putrino and patient advocate Rivka Solomon.”

#mecfs #myalgic encephalomyelitis #long covid #psychologicalisation #LongCovid