#rituxan

[u2hearts]

I’m writing a blog

I keep meaning to write. I have every intention. Then at the end of the day, I realize I didn’t write again. Normally I actually write my blog the day before but since WordPress had an update, I schedule the blog but it never posts. I finally got annoyed and stopped writing the day before and then stopped writing on the day. So here I am. I would love to say so much has happened since I last…

View On WordPress

[daniellelom]

Happy Infusion Day!🤗

[sick-kids-are-cool]

I’m also hopefully finally starting the rituxan this week my insurance is a mess btw I really wanted to start it before moving but it looks like I’m going to be doing the first one while moving and getting my second infusion after I move so I’ll probably have to spend the night at my grandmas house which means bringing my dogs into town couple hours of driving and then probably driving home while feeling like shit idk I guess we’ll see how bad it is after the first infusion I’m really sensitive to medications like this 

[thesouthernsweetheart]

Hey y'all, this is me casually kickin' ass during Chemo!

[rheumannoyed]

First (successful) Rituxan Infusion!

Today I restarted my Rituxan infusions! If you don’t recall, we tried this medication once before and I ended up having a super mild allergic reaction that I panicked into something bigger, so we stopped it like 20 minutes in.

This time, I was fine! We started with an IV of solu-medrol beforehand, along with the usual Benadryl and Tylenol, and everything went pretty smoothly! Granted, they had to get IV tech in to stab me because my veins are big jerks, but they still did really well! Only took two tries! and they numb me here so it wasn’t even a big deal.

I got reaaaaaally tired for the majority of the infusion, so I napped a bit, but otherwise I had a nice time hanging out with Stina in the hospital.

I’m still pretty sleepy, but I read that’s common. A lot of people have really low energy for like a week after their infusion? Does anybody here have experience with Rituxan to back that up?

Otherwise, the only other sort of side effect I’m feeling is a little bit of muscle tension, but it doesn’t hurt or anything. Just feels funny. Feels like I’m flexing y calf.

I’m excited to see how this medicine works! I’ve heard great things!

[daniellelom]

Here’s a new one for me... I came home from the gym the other day (yes I work out to the best of my ability, I’ve found I’m in less pain when I work out than when I don’t) anyways... I was sitting down on the couch and when I went to get up my knee decided it’d hyperextend back and lock up on me causing me to fall forward.. it didn’t hurt, I wasn’t swollen, it just hyperextended and locked.. wtf is wrong with my body🤦🏻‍♀️🤦🏻‍♀️

[daniellelom]

Round two: completed! I’m done for another 6 months, let’s hope this is the one!!🤞🏼

[fatty-ribs]

I haven’t touched on my illness on here in a very looooong time but I’m a lil anxious to start my new medication, rituxan. It’s more aggressive than any other medication but that’s not what’s giving me anxiety. Like yes it’s scary what it could do to you, like death is listed as a side effect, hello, but that’s not particularly worrisome for me. I’m more concerned with the fact that this will be my 9th medication for RA, and it will basically be my Hail Mary pass(sports!). If this doesn’t work then I have no idea where my treatment will go and that frustrates me. I see so many stories of people who have been on medication for 8 years+ and the longest I’ve been on medication was 2 years and it barely did anything for me. And if I do find a medication that helps a lot it will stop working after a few months 😩.

Anyways… my current doctor seems to be willing to try many things; she even was the first doctor to say that maybe a lupus diagnosis isn’t as far fetched as other doctors made it seem. Other doctors were so quick to say “it’s not lupus!” even with a positive ANA and RNP antibodies. So maybe she will explore treating me for lupus if this doesn’t pan out the way we hope it will. IDK!

I’m trying to stay positive because I’ve heard this medication works well for others who have RA but it would be cool if y’all could send me love and light or prayers or any positive thoughts. I’d appreciate it, truly.