Sorry for the lack of posts, My seizures have been a nightmare
I'm really sorry for lack of posting and communication, my seizures have been so bad and have been mixed up with long ones, but where i'm awake, and appaer to be able to function small repetetive tasks, ie reblogging, but have little memory. Or like last night i'd had a long seizure in the afternoon, thought i would be okay, but although i was awake. i didn't feel present, my brain fogs, and it effect my speech, co'ordination, my ability to formulate words or remember small everyday tasks.
When i did finnally get here i was having short seizures every 10 minutes, i know i was in my ask box trying to answer something. Obviously I had a seizure there, just came round, faceflat in my laptop still in myy ask box, and the words look like affgnrytjmyu, so i'm not trying to be annoying but if i can't work through all the messages I am particually not well right now. Its part of the ongoing deterioration, not like the flu i will get over in a few days. My seizures regually go through patches like that, especially if i'm particually distressed so with all that has gone on in recent weeks and and pending Neuro appointment with a hoax adjenda next week, and my solicitor appointment the week after, it will be a very stressful time.
I have made this post in order to attempt to answer some of the questions, and somewhere specific that you can look to find out some of your answers. Seizures is just part of my illness, it may be seperate from the blood diseease, it may not, it may be part of the immune disease it may not. I have many conditions including a life threatening bood disease and auto immune disease, celiac disease, fibromalgia all of which have gone untreated so untreated diseases lead to further diseases, so i can't easily answer questions like 'What is wrong', in a nutshell my body has broken down, and will continue to do so. It is not something that will get better, or there is a cure. Services in England do not believe much in investing money to treat chronic disease, because of NHS cutbacks. That's part of the reason. I have an ongoing legal dispute with my trust for ongoing neglegence and malpractice, these things are not easily solved and take along time, so there is no chance of my currant circumstances changing in the near future, if at all. I hope this helps to clear up some of the questions, rumours, or misunderstood information. Thank you for all your support, you are all lovely, and hopefully ,my blog with continue and be back to normal shortly, but it's a moment by moment thing!
love and fairy blessings Tabi xxx
