Feb 28, 2021
Thank you to those of you who have shared your rare disease journey. Not only is this done to find support, and not feel overwhelmed, but also to inspire. I hear you, see you, and am sending hugs. . Some are not ready to share their stories, due to public ridicule (“but you don’t look sick”), non-helpful “remedies” (“my brother’s girlfriend’s sister’s mom said to run a lemon peel on your forehead daily”), or processing the trauma that comes from spending years and years trying to find a diagnosis...I see and hear you. If you need a listening ear, just let me know. 💖 . . . #rarediseaseday #shareyourrare https://www.instagram.com/p/CL1XzhTAYPj/?igshid=nvp3m72a2u7j
