#sicklecell

[nerdycloudstudent01]

Supacell was absolutely fire. Well overlapped storylines, well placed controversy, ties to current events; plenty of great, note-worthy moments.

As a mixed person with some not-supportive family members due to racially charged differences, I appreciated Rodney’s storyline. Michael and Dionne’s conversations felt relatable. I appreciated Sabrina’s healthcare experience.

Looking forward to season 2. Protect your own, no matter what.

[longreads]

The Top 5 Longreads of the Week

In this Top 5:

* How sickle cell patients are pressured into sterilization * How opioid restrictions harm the terminally ill * The enshittification of bowling * The sudden ubiquity of steroids * Why sperm is a hot commodity

Learn why our editors are recommending these stories.

[thebananashapedbloodcell]

My body does not feel great tonight. It’s like I can feel a pain crisis starting, but it hasn’t progressed (which is good)

The pain just lingers & I feel like if I make the slightest movement in bed, I’ll feel uncomfortable.

My joints ache. I’m tired but can’t sleep & I just hope I feel better in the morning 🤞🏾🌝

Liquids, heating pads & medication for the rest of the night

[pumpumdemsugah]

I received the new gene-editing drug for sickle cell disease. It changed my life.

I received the new gene-editing drug for sickle cell disease. It changed my life.

As a patient enrolled in a clinical trial for Vertex’s new exa-cel treatment, I was among the first to experience CRISPR’s transformative ef

I heard about this a little while ago. I'm glad the US has started the first trails

UK first to approve CRISPR treatment for diseases: what you need to know

The landmark decision could transform the treatment of sickle-cell disease and β-thalassaemia — but the technology is expensive.

The UK had its first trails last year and I think the NHS has funding to treat 5000 people.

[glendathegoodone]

FDA approves gene-editing treatment, bringing hope to thousands with sickle cell disease

FDA approves gene-editing treatment, bringing hope to thousands with sickle cell disease

Until now, the only hope for a cure for people with sickle cell was with a bone marrow, or stem cell, transplant.

[awakeningthevioletswithin]

FDA Approves First Gene Therapies to Treat Patients with Sickle Cell Disease

The FDA approved the first cell-based gene therapies, Casgevy and Lyfgenia, for the treatment of sickle cell disease in patients 12 years an

It's about bloody time!

There is finally an approved treatment for Sickle Cell. Sickle sufferers have been the victims of the rankest kind of medical racism. I hope the news heartens anyone in the community coping with this difficult illness.

[apollocbcc]

Sickle cell disease is an inherited disorder. It affects the shape of red blood cells, which carry oxygen throughout the body. 

Red blood cells are usually round and flexible, so they can move easily through blood vessels. In sickle cell disease, some red blood cells become crescent or sickle-shaped. These cells also become rigid and sticky, restricting the blood flow.

If you have any cancer related queries, book your appointment at https://apollocbcc.com/make-an-appointment/ 

[teachingrounds]

Splenic sequestration can only happen in patients with sickle cell disease who still have a functional spleen--so, typically kids with SS <5 years old. Once the spleen autoinfarcts, it is so scarred that sequestration can't happen. Pro-Tip: Splenic sequestration is rare in adults *unless* they have a milder form of SCD, such as SC.