I would like to share that after a very, very long time I am finally getting my powerchair.
This comes with a lot of emotions, especially given the circumstances around it being considered absolutely necessary now. I have been in that category of "would heavily benefit but can technically survive without it" for a while now and it's been known for years this would be the outcome but it actually happening is a whole different story. It's no longer something I think about with the context of "wouldn't that make my life easier" and instead it's "won't it make my life possible?"
I'm very nervous but also excited. It will have tilt, recline and all that fun stuff.
That being said I don't know how much I will be active on this blog in the coming months. I have been dealing with so much for the last few years of my life and this blog has been a coping tool for that; and this is very much a light at the end of the tunnel moment and I hope to soon have much less to cope about.
Thank you all for your interaction with my posts, it has really meant a lot to have my voice heard. I do not get out much because of my issues, so social media has been my main interaction with other people for a while. But things are opening up to me now. I was invited to join the honor's society at my college, I have a job position lined up with a very flexible schedule for a group I'm excited to work with, I was able to get some movement in my legs after three months of no voluntary movement at all during this week's PT session, and I am finally going to have a wheelchair that will actually work with me instead of against me. I feel it is so important to stress, I was diagnosed with the condition that requires this tool nearly nine years ago, and I am just now about to get it. Sometimes I am still the little kid sitting in that office being told it can't be fixed; having evaluation after evaluation where everyone acknowledges it's getting worse but does nothing to help. Fleeting mentions of "more support" but nothing coming of it. I wish it did not take this long and I wish someone had advocated for young me. It is possible I would have more function now if I was using this sooner, as a preventative sorta thing, and I try not to be angry that I had to get so bad before someone finally listened.
With that, I hope to be less active here. I am off to be part of the world again.
May all of you have access to the tools you need.