#tsbutterfly

[turners-syndrome-culture-is]

TS culture is putting up with all the short jokes even though you’ve heard them a million times before because people get weirdly defensive about it

oh god yeah.

[lifewithturnersyndrome]

Updated List of Health Issues

The health issues I have, as listed on my health summary, are as follows. Hypothyroidism due to Hashimoto's Thyroiditis, Metabolic Syndrome, Essential Hypertension, Insulin Resistance, Bicuspid Aortic Valve, Horseshoe Kidney, Nonrheumatic Aortic Valve Insufficiency, Acute Kidney Injury (AKI) with Acute Tubular Necrosis (ATN) (CMC/HCC), Type 2 Diabetes Mellitis (CMS/HCC), Hypokalemia, Anemia, unspecified type, Acute Pyelonephritis, B-12 Deficiency, and Sensorinueral Hearing Loss bilateral. I take Larin Fe, Amlodipine, Levothyroxine, and B-12. These are all to deal with the various health issues that I have because of TS.

[lifewithturnersyndrome]

Another Ultrasound

I had another ultrasound of my kidney again on the 16th. They were checking the blood flow to see if my kidney could be causing my high BP. The test results showed that the blood flow is normal, so that is some good news.

[lifewithturnersyndrome]

Back Pain

I went to the ER after work today to get my back looked at because it's been hurting lately here are the results of my XRAYS

XRay results:

XR LUMBAR SPINE 4+ VW

Results

XR Spine Lumbar Complete

Status: Final result

Please call the practitioner that ordered the test if you have any questions about the results.

Study Result

Narrative & Impression

EXAMINATION: Lumbar spine complete.

CLINICAL HISTORY: Pain.

COMPARISON: None.

FINDINGS: 5 views of the lumbar spine are obtained. There is loss of

lordosis which can reflect muscle spasm or soft tissue injury. No

fracture is seen. There is slight retrolisthesis at L4-L5. There are

scattered mild degenerative changes. Definite disc space narrowing is

not evident. No bone lesion or abnormal calcifications are seen. The

sacroiliac joints show no obvious bony abnormality.

IMPRESSION:

1. Slight retrolisthesis L4-L5.

2. Scattered mild degenerative changes without disc space narrowing.

The Dr. also mentioned Spondylolisthesis

[lifewithturnersyndrome]

Doctors Appointment

Had a doctor's appointment today and had to get labs done they are going to check to see if I might have Celiac because I've been having some tummy issues. I lost weight, which is good news, I suppose. I'm at 157.4 lb now.

[lifewithturnersyndrome]

[lifewithturnersyndrome]

Having Turner Syndrome is exhausting. It's like fighting a losing battle with no end in site. It's not like Turner Syndrome is going to just go away or get better. There is no cure for Turner Syndrome and no way to prevent it from happening. There are so many doctors appointments to keep track of and medications to take. Women and girls with Turner Syndrome are more suseptible to various autoimmune diseases. I myself have been diagnosed with Hashimoto's Thyroiditis.

Hashimoto's disease progresses slowly over the years. You may not notice signs or symptoms of the disease. Eventually, the decline in thyroid hormone production can result in any of the following:

Fatigue and sluggishness

Increased sensitivity to cold

Increased sleepiness

Dry skin

Constipation

Muscle weakness

Muscle aches, tenderness and stiffness

Joint pain and stiffness

Irregular or excessive menstrual bleeding

Depression

Problems with memory or concentration

Swelling of the thyroid (goiter)

A puffy face

Brittle nails

Hair loss

Enlargement of the tongue

[lifewithturnersyndrome]

In this picture, I'm being held up by my two older sisters because I couldn't sit up on my own due to weak muscles.