PLEASE STOP AND READ THIS
I NEED EVERYONE TO REGLOG THIS PLEASE! My girl, my best friend, Shantee Anaquod is very sick in Vancouver General Hospital right now. She has rare blood disease called aHUS (Atypical Hemolytic Uremic Syndrome) which is a chronic and genetic disease that causes uncontrolled activation in the bodyâs immune system leading to the formation of blood clots in small blood vessels throughout the body (thrombotic microangiopathy). TMA can lead to stroke, heart attack, kidney failure and premature death. AHUS is on the ultra-rare disease list, the highest, which entails a patient number of 20 patient per million people. Maybe a little of over 500 people have it in the US and around 100 in Canada.Â
Shantee, she been hooked to machines the past month doing four hours of dialysis and three hours of plasma exchange for the past month. She only 23 years old. And whatâs sick is thereâs a life-saving drug called Soliris that could give her a chance to live out a normal life but in this sick world, the pharmaceutical companies find it appropriate to price this life-saving drug as the worldâs highest priced drug on the market at $750,000 in Canada where Shantee lives â and thatâs not semantics, itâs literally the worldâs highest priced drug.Â
Her mom, Jennifer, being a single parent trying to raise a young son in her brother, Jonathan, who has his own condition called Behcetâs disease, trying to figure out ways to muster up enough support to find a way to pay for this.
And because of itâs price, the Canadian government, which is said to have universal health care, has refused to cover the drug due to a struggle with the drugâs producers, Alexion Pharmaceuticals, finding that theyâre creating predatory tactics to get the insurance companies and healthcare systems to cover the cost while the reap the benefits of the profits. My girl Shantee, sheâs a First Nation Canadian and her country, a country that has treated them like second-class citizens, wonât even pay for a coverage for a cost that they probably throw away in defense spending. On top of that, the drug that Alexion Pharmaceuticals was mostly publicly funded research done at the University of Toronto.
Also, if you could please donate to this GoFundMe link or one below to help out with mounting cost that are starting up, especially for these next four to six month, thatâd be much appreciated.
Also, you can sign a petition to this link or one below, especially to my Canadian followers, to reach out to the Premier and Health Minister for aHUS advocacy. Thatâd be appreciated as well.
Information on Shanteeâs condition or to reach out is on our Facebook page here, Help Shantee fight for Soliris @fightforshantee. Please also like and share the many post on Facebook as well. We need as much support as we can get.Â
If you feel the need to contact me or her mom, either hit me up in my asks or her mom on the Facebook page.
https://www.gofundme.com/mnqqhj-fight-for-shantee
http://www.ahuscanada.org/advocacy-support/petition-letter/
https://www.facebook.com/fightforshantee/
http://www.cbc.ca/beta/news/health/how-pharmaceutical-company-alexion-set-the-price-of-the-world-s-most-expensive-drug-1.3125251
