Tourette's Network

[tourettesnetwork]

hi, so school is starting up, and i have intense tics but i don’t have official diagnosis of TS yet. i’m really scared because i don’t know how to tell people i have tics but not a official diagnosis. how do i make people aware of this. i’m also really anxious because i’m worried i might get bullied, and causing attention to myself, which i know is out of my control, but i don’t want that. sorry if wasted any of your time

You’re not wasting my time! Being undiagnosed is really hard. If you’re in the process of getting diagnosed, you could have a parent talk to your teachers about it so they know there’s something going on.

Before I was diagnosed, I would just say something like “I have neurological problems” when someone asked, and they usually didn’t push it past that. I did draw attention to myself sometimes, but I didn’t really get bullied over it.

I hope that helps!

[tourettesnetwork]

Hi! I’m 20, I’ve had motor tics since I was 17 but I had no idea what tics or even Tourette’s was. I’m pretty certain I have chronic motor tic disorder based on what research i’ve done but I haven’t been officially diagnosed becuase unless I’m really stressed out the worst my tics do is get me stared at and the rare spill/dropping of something and I know there isn’t anything to be done about it anyways. My tics used to be very spread out even when my tics themselves were at their worst and I had violent full body spasms and stomping, but for the past 4 or so months they’ve become a regular and daily thing (tho the tics themselves are usually mild now) and even though I still get embarrassed with how people stare and I hate people asking me if I’m okay it’s been comforting to at least know what it is and that there are other people who have the same thing

[tourettesnetwork]

i think i have tourettes? or something like it? i have semi-voluntary tics and i have since i was younger, the unpleasant ones can go away for years at a time but ive always had sniffling, leg shaking and this thing where i like, slam my arm out and shake it? the more unpleasant ones have been resurfacing lately, like blinking, squinting, swallowing, and sucking on my cheek,ever since ive been excited for an event, its giving me awful anxiety, and im not sure if i should see a professional,

I’m not a doctor, but it sounds possible. If it’s making you anxious, I would say it’s worth seeing someone about it. Tourette’s is usually treated by neurologists, or you could start by talking to your GP.

[ebonynichols-blog1]

for fellow Tourettics who struggle with writing due to tics… I tend to tie my pen to my hand with an elastic band and it really helps so I don’t keep throwing it. Some elastic bands r more comfortable to use than others and remember not to tie it too tight xx

[tourettesnetwork]

Hey IDK when you made your college post, but I started college this year and have a roommate if you wanna DM me about any concerns or questions you might have

I made that post this summer before I started the semester. I ended up requesting a single room through disability services and got it, and I think that was probably the right call for me.

[tourettesnetwork]

Hi! I'm very shy so this is anonymous. I'm 16 and I have Autism, OCD, and possibly a psychotic disorder. I also likely have Tourettes Plus Syndrome, but because my parents are convinced that I'm faking it I haven't been diagnosed. I'm a nonbinary boy who loves playing D&D, drawing, and going on walks in the woods! I also really like witchcraft stuff, also lots of music! I just felt like sharing all that. Maybe one day I'll come off anon so I can make some pals. Have a wonderful day! 🌟🌟

You can always DM people who have shared their URLs on here if that’s more comfortable for you!

[tourettesnetwork]

hi im libby and i have chronic motor tic disorder. my tics have been going on for a long time but nobodys sure when they started. my main ones are rapidly jerking my neck or flinging an arm out, both of which have caused me some injuries and a solid amount of embarrassment. i dont know anybody else with tics but my mates are all good with it so im pretty lucky 

[tourettesnetwork]

Can Tourettes be diagnosed via CAT scan? Sorry if this is a dumb question. I am trying to get more educated about the syndrome.

Not a dumb question at all!  Tourette’s can only be diagnosed based on symptoms (multiple motor tics, at least one vocal tic, at least a year, onset before the age of 18), but sometimes other testing like MRIs or bloodwork is done to rule out something else 

[tourettesnetwork]

My best friend's sister doesn't believe I have tourettes because according to her it's seizure like motions and I have finger/somewhat of vocal tics (stuttering, grunting, clearing my throat) and she said that's not tourettes

Well, that’s totally inaccurate and super frustrating!  Don’t worry about uneducated people though if she won’t listen to you.  You know she’s wrong.

[tourettesnetwork]

Hello!  I’m doing my research project for English 120 on the influence of media representation on public perception of Tourette Syndrome.  If you have a minute, please fill out or share this survey.  It’s very short.

https://docs.google.com/forms/d/e/1FAIpQLSeVpKnFUb-Rzs_BO7Fv9mJIVswyQsb93F1ch4FC7ASL056ulw/viewform?usp=sf_link

[tourettesnetwork]

Hi, so i don't really know if this is the right place to ask this, but within the last couple of months I have started having things that I think are tics, and I'm just looking for someone to talk to about it who might be able to answer some questions and just. be able to understand?? If you or someone else wants to talk to me, let me know I guess?? Also I don't have a tumblr, so I guess I'll just have to check your blog regularly to see if you reply.

Yeah, totally. I’m down to talk, and I’m sure lots of other people are too. I’m not a doctor, so I can’t definitively tell you if something’s a tic or not but most of the time you can kinda figure it out. Tics are repetitive, and most people can kinda feel them coming. I hope that helps!

[tourettesnetwork]

shoutout to all the kids with tic disorders going back to school right now and having to explain themselves to a whole new set of teachers and classmates

[tourettish]

Song tag!

The rules are to name 10 songs you arr currently obsessed with.

Thanks @pensez-a-erik for tagging me!

My songs are:

Give yourself a try - The 1975

I wanna get better -The Bleachers

Happines, pt 1 - Satchamode

Florecent Adolescent -The artic monkeys

Humility -Gorillaz

Verbatim - Mother Mother

Ghisting - Mother Mother

I wanna be your girlfriend -Girl in Red

Lemon Boy -CaveTown

Work Song -Hoizer

I tag @thisisocd @adhdettes @thatocdfeel @thattourettesfeel @dailylifewithocd @tourettiquette @tourettesnetwork @properocd @ocdrantings @tourettesyndromehq

Sorry if you’ve already been tagged!

[tourettesnetwork]

1. Who I’m Meant to Be by Anthem Lights

2. Leave a Light On by Tom Walker

3. No Roots by Alice Merton

4. Reckless Love by Cory Asbury

5. Dynasty by MIIA

6. Sorry by Halsey

7. Stay by Astronaut Husband

8. Cringe by Matt Maeson

9. Tequila by Dan + Shay

10. Speakers, Bleachers, and Preachers by Brandon Lay

Thanks for tagging me!

[tourettesnetwork]

Hey :) for the anon who hates it when people stare. I understand. We understand. But some people don't do it to be impolite. It really helped me to know its how the human minde is. Loud noises attrackt the attention (cause in the stoneages that would safe your life) and weird/fast without warning also attrackt the eye (cause the human brain looks out for attacks) So even tho they might know its inpolite to stare sometimes they can't help it. Hope it helps someone as mutch as it helped me

Sharing

[tourettesnetwork]

People always ask if I'm okay when ticking when I say I'm ticking they never understand so I have to explain to them and that's kinda confusing to explain why I tick because I don't know and they want to know the answer.

That’s really frustrating. I’m sorry you have to deal with it. ❤️

[tourettesnetwork]

I hate how everyone stares at me when I'm ticking.

Yeah, it really gets on my nerves too. There’s no real solution, but it’s helpful for me to make sure that the people I spend the most time around understand that I tic so at least they aren’t totally gawking.

[tourettesnetwork]

Today at church I talked about Tourette Syndrome and how God uses us because of our differences, not despite them! Happy Tourettes Awareness Month!