When pain persists for months or years the effects can be wide ranging. The following may be very familiar to those with chronic / long term pain:
Distress relating to their experience of the healthcare system
1. Have been told different things by different people about the cause of their pain
2. Have been offered a variety of treatments; some of which may have helped but many have not helped
Lack of understanding about their pain
1. Confusion about its cause
2. Concerns about increasing damage
3. Not knowing the best way forward for them and their pain
Medication
1. Tried many different types, many of which only take the edge off the pain
2. Experienced many side effects
Fitness
1. Reduction in fitness
2. Weak muscles
3. Stiff joints (despite being hypermobile)
Friends and family
1. Reduction in social life
2. Loss of contact with friends
3. Increased isolation
4. Difficulties in sex life due to pain, fatigue, worry, misunderstandings
Work
1. Difficult to fulfil role at work due to pain
2. Experience that managers/colleagues do not understand
3. Reduction on working hours or stopped working
Sleep and fatigue
1. Hard to initiate sleep
2. Wake during the night
3. Feeling tired and fatigued throughout the day
4. Sleep during the day, but unable to sleep at night
Mood
1. Depression or low mood
2. Fear, anxiety, worry and concerns
3. Guilt about unable to fulfil their role as, for example, a parent, a partner, a colleague, the ‘bread winner’ for example
4. Feeling unable to achieve anything
5. Feeling hopeless about their situation
6. Feeling unable to cope during times of increased pain
7. Frustration about the pain interfering with many aspects of life
The Most Important Thing to Remember: Pain Can Be Relieved.
Pain management strategies can address all of these by using a number of techniques that require both self help and advice from skilled professionals. Take a look at the articles in the left hand section menu here: http://hypermobility.org/help-advice/pain-management-2/
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