Same anon as here
https://www.tumblr.com/autiebiographical/818174629498732544/hi-just-wondering-how-long-did-it-take-you-to
Just wondering, what are your experiences with coeliac diagnosis as an autistic person? Just wondering in terms of like sensory issues and food changes and all like that.
Personally, my safe foods aren't anything with a lot of wheat or barley (and I don't even know what rye is) because I feel so ill after eating them that my brain doesn't register them as "safe". But most of my safe foods are a "may contain gluten" thing so I think that's what my main issue would be in terms of making adjustments. Also have ADHD and chronic illnesses so making food from scratch is hard to even get the momentum for, let alone actually finish to completion. Though considering I know for a fact that gluten free pancakes don't make me feel sick after unlike most foods, that might act as an incentive to make them. So, just wondering how the transition went in your case?
And as for the hoping it's quick to get testing, thanks I hope I get seen soon too. But between NHS waiting lists and the fact i need testing for loads of other stuff too (potential bleeding disorder and possible nerve issues in right foot), I doubt it.
For me, I do bake and cook from scratch a lot, and I'm finding that old comfort foods that I used to make are now weird and different, so I'm sad about that. One is this super simple cake called Wacky Cake, and it's supposed to be all soft, and squishy, but with gluten free flour it's grainy and crumbly.
Aside from stuff like that, cutting gluten out has been going well. Found good quality gluten free pasta, and frozen pizza, and lots of restaurants where I am are accommodating, but when it comes to my own cooking and baking, it just feels like some foods I just can't have the same again, and it really makes me sad. I'll just have to find new comfort foods.
My reaction to gluten was very similar to GERD, so that's what I was originally diagnosed with. The symptoms I got I just chalked up to that. I'd eat, feel sick, get heart burn, and shrug, thinking "Welp, that's just my GERD." That's why foods chock full of gluten weren't put on the 'unsafe' list.
I've heard about how slow the NHS can be. I've got a bunch of medical stuff coming up. Here's hoping things go well for both of us.


















