Best bit about Christmas.
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art blog(derogatory)

Discoholic 🪩
$LAYYYTER
DEAR READER
KIROKAZE

Andulka

Product Placement

JVL
occasionally subtle
Lint Roller? I Barely Know Her

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2025 on Tumblr: Trends That Defined the Year
One Nice Bug Per Day
let's talk about Bridgerton tea, my ask is open
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Kaledo Art

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@bffiendnf
Best bit about Christmas.
you’re not a dog.
don’t reward yourself with treats
One of the best bits of my day.
Action shot of me cooking pancakes. 😀
So I read this:
 But for all the mini-figures in the world, Lego does not produce a single one with a wheelchair or a disability.
…in the Guardian, which really should know better.
 Of course, like most people of my generation, I immediately thought of this:
 Lego Pirate, from http://ift.tt/1PmvoBQ via creative commons…
 Also this excellent reddit build from a little while ago…
View post on imgur.com
 Here, for example, is where to buy them online. Professor X, that most famous of fictional wheelchair-users gets a lego figure of course that appears in the lego video games and videos. He might have a minifig you can buy.
 There is a lot wrong with how disability is represented (including, of course, the fact that for many people in the media disability=wheelchair, which is really unhelpful), but lazy fact-checking is still lazy.
This week  (written 17th June 2015) last year I received 808 emails and replied to 87 of them.  This week I got 484 emails and replied to 78.  I’m using ‘replied to’ as a reasonable proxy for ‘number of emails that required action’, and I think that’s a fair thing to do.
I’ll tell you how I did it shortly, but first I want to talk a little bit about how even that relatively modest drop (I’d already done a lot of pruning over the years) made a big difference.
You are letting your spam validate you
A massive proportion of the emails you receive have NO use. That’s the small part of the the problem. The big part of the problem is that you give them a use. You use them to justify checking you inbox on a ten-minute-basis, or worse, leaving it open.
When you open your email and have three emails to process your reaction is: ‘I’d better deal with those emails, it’s a good job I stopped the productive work I was doing to check my email’.  The thing is, of those three emails, one was from Dominos, one was an newsletter from a club you left years ago and one was a message from Linkedin cajoling you into logging in.
When you have eliminated those things, you are in a different place. You open your email and you have NO new emails, and your reaction becomes ‘that was a waste of time, I should focus more on the things that are important’. So you check in less, break your focus less and do more important real work.
Gmail didn’t work that well
Gmail has an interesting feature that let’s you report things as your own personal spam – personally I found it worked right up until the point where it thought the invitation to interview for a life-changing fellowship was spam.  I’m unsure what else it might have eaten in the past, but maybe it’s worth being slightly less aggressive with the ‘report spam’ button.
A short history…Â
For years, nerds, have been howling dire warnings about ‘unsubscribing’.  Don’t do it! We cry, because then the evil spammer puts you on another list, marked ‘active accounts that read their email’ – and then you get even more spam.
The problem is that this is based on a late 90s view of the world.  I get very little actual spam.  Gmail is pretty good at stopping that at the source.  Sometimes I’ll get a message or two, and then another message the next day, but Google traces the offender and deals with them effectively. Actual Spam is something I see maybe once a month.
What I get instead, is companies, organisations, politicians, and causes.  Some of them I remember giving my email to for some reason, some of them I have never heard of. But, and it’s a big but – these people respect the ‘unsubscribe’ button.
It was a revelation. After years of blankly archiving half my mail I discovered that if you clicked the link (sometimes, it’s tiny, sometimes it’s in a color that matches the background – you know who you are!) then they stop sending you mail.
If you do it for a week, you’ll do it maybe a 100 times, but suddenly you have all this freedom to keep track of the things that are actually important. (we do note, some organisations have a problem with this)
We’re in the process of running some user-testing for CommuniKate and AzuleJoe.  User testing is an interesting proposition for the sort of things that we are building given the extreme ranges of situations that people in AAC deal with.
 User-testing is that thing that designers don’t want to do because they know their design will work. And user-testing just wastes time. The world is littered with the bones of people who have that view.
We’re using our user-testing as a chance to get to proper grips with where some of our users are, with the issues that they want to talk about (often different from the ones that affect them), and with the stories that they want to tell.
 Time allowing, we’ll talk properly about the user-testing itself in a later post, today I’d like to show off our information sheet for the study. Kate made it, and it is a work of art in its own right.
 We want to make sure that our information sheet is a real one, and it genuinely gives of all the information it possibly could do for users with cognitive issues.
Of course, aspects like data retention and anonymity are difficult to pull off. Kate and I went back and forth quite a bit on a suitable symbol for ‘anonymity’ (more on that in a future post).
This is the first draft of our information sheet. You can view the full on in Word and Pdf, we’d be interested in any comments people might have.
(Click for the properly attributed hi-res version on Flickr)
Reflecting on my second Mozfest, I was pleased that I managed to shed a little bit of my reserved nature and get properly stuck in towards the end.  I’m also very aware that I barely scratched the surface of all the cool things to see and cool people to meet.
Things I’ve learned:
There were 900 different experiences going on at Mozfest. I know people who sat and worked and occasionally chatted to friends. People who believed in sessions and spaces. People who just hung out in the cafe and chatted to everyone they met – all valid and all wonderful ways of experiencing the atmosphere.
Mozfest isn’t a conference in the sense of making connections that might be useful to you. It’s a conference that it literally about having the conversation, challenging your beliefs and going away with a slightly different thought process than you arrived with.  Some of the most interesting parts for me weren’t technical, or even cultural.
Some things that I was disappointed in:
Like Wikipedia – Mozfest isn’t beginner friendly. ‘Just get involved’ is pretty unhelpful when you haven’t got a context for the type of event it is, the ethos, and the session setup. I’ve now been to two, spent a lot of time at both talking to people, and I’m only just getting a sense of the ‘why’.
Disability. I’m pretty sure there are no wheelchair users in the main group photo.  Right though the event there appeared to be this assumption that disability was folded into diversity (which is fine) – but then diversity sessions focused on gender, race and sexuality.  There’s a space there that is worth exploring and I’d like disability NOT to fall though the cracks. It’s possible that this is a conversation that really needs to be had.
Sunset seen thought the windows at the Mozfest venue.
I’m writing this on the train, and I suspect I’d only get a chance to edit after the whole thing has finished, so apologies for the slightly stream-of-conciousness approach.
I missed about half of the second day arriving just before lunch. Â In the process I managed to miss the opening speeches.
Funnily enough I’m generally in two minds about opening speeches.  At most conference I avoid opening speeches and keynotes like the plague, but mozfest is subtlety different: spending an hour or two listening to words like ‘sharing’, ‘connecting’, and ‘openness’ is like a small massage for the soul even without the informational context.
Today I spent quite a lot of time on the topic of food
Regular readers will remember my rants on the topic of vegan events like ‘vegfest’ – it turns out that Mozfest, the technology conference, does vegan food and debate better than vegfest does.  That’s like finding out that Microsoft makes better cakes than Kipling.  Typically conference food for vegans is nice, but contains about 200 calories, which means that often pop out to a local pub during the session after lunch, but Mozfest provided a stonkingly good spread.
The hyperlocal low-carbon lunch.
After lunch, wandering around without my glasses on (a random, but enjoyable way to explore) I found myself at a table sent for lunch. It turned out to be a separate lunch provided by some mozfest attendees to promote discussion – the food was ‘low-carbon’ sourced from near the conference venue (given we were near the O2 arena, this is nontrivial) and that was the topic of conversation for an hour.  It was a perfect example of the wide range of approaches and topic areas around Mozfest.
Then there was vegan cake from The Depressed Cake Shop, bought for a donation of £1, which will go to MIND.
People
It wasn’t all stomach oriented – I met Metod Beljec who was making a language of emoticons: this isn’t conceptually far away from communiKate and we had a lot to talk about. I met designers from Holland who were running workshops on what the future looked like using newspapers as prompts and chatted to some lovely 3d printing experts who gave me the keywords I need to put into Google to make a disability project happen.  I spend an hour working with a group in the ‘TV hacking’ session and enjoyed getting a wider view than the one I’d built up working on Supertitle.
The Language of Mozfest
One of my favourite things of the event is listening to the way people talk – there’s a real sense in some of these areas that people are developing a distinct set of terms and languages for working in the areas they are. I heard ‘onboarding’ used as a verb yesterday, and it got me thinking about the levels of language – there’s a language used by the programmers and developers (that I like to think I speak) but there is another one used by the designers and facilitators that is newer (and still evolving faster that a language normally does), deals with more social concepts, and is being used to map out an area that I’m slightly unsure of…
Sudden Sadness
One minor thing is, that though I was talking to a wide range of people about technologies would be really distributive in the disability space (Oh, hey, now I’ve started talking like Mozfest) I found I was generally the one bringing forward the disability space as the application.  Once I realised that late on, I started to look around and realise I hadn’t seen any wheelchair users at all at the conference, which for a 900 person technology event in a really accessible bit of London, is a bit odd. I’ll see if I can get some demographic information from the organisers but I worry that disability is a little underrepresented in the festival. (It’s very likely I just wandered past the relevant sessions without paying attention of course…)
I’m at my second Mozfest, and I’m loving every minute of it.
I didn’t blog at all for my first one, because I was basically overwhelmed, and I’m trying to make up for that this time.
Mozfest is all difficult to describe. It takes place over four or five floors of a building near the O2 arena with lots of space for conversation and collaboration. There are about 900 attendees. There are sessions arranged so it’s ‘kind of’ like a conference but it’s really not.
The easiest way of explaining Mozfest is this. There are 900 people there. You can ask any one of them ‘What’s the awesome thing you are doing?’ and they know the answer.
This evening was a display/demo evening – with lots of cool companies showing their wares. We’ll talk about those in a moment. What’s impressive is everybody else.
The first few random people I spoke to this evening where:
Producing language support tools in Tanzania.
Producing open journalism tools to improve reporting in Afghanistan.
A teacher who ran awesomely high level code clubs in Switzerland.
Setting up large-scale backspaces in Ghana
Teaching creative coding though art.
And those were the just the people who where visiting! They are such incredible humans to be around: it’s like giving your brain a hot bath.
So – the demos. I’m going a pick out a few, just because they stick in the mind, but so many were awesome (and I didn’t get near the particularly popular ones because of the crowds).
I was blown away by the work that cartoDB were showing. I have wrestled with visualising data on maps before and they showed off some applications that where just incredibly intuitive and usable. I’ll be playing with their tools.
It was nice to chat to the people from the Knight Foundation. I think their timeline tool is something that we might use in the TooManyCooks process. On that point, every time I see booktype.org I get more and more convinced that they are the front end I should be using for TooManyCooks – certainly it’s already the first place I’m going to next time we work with a school that blocks Google Drive.
I spend an quite a lot of my weekends thoroughly enjoying myself running around after one or more of god-children*Â and handing them back before responsibility sets in. I love them all to bits.
Some years ago I wanted to buy a special present for one of them without defaulting to baby-boy-blue or baby-girl-pink. (I’m broadly against reinforcing gender colours, but I do want them to have a nice blanket.).
After a bit of a wander (and a wonder), I found myself thinking about starlight. The first thought is that starlight is white, but, given that the are Red giants, the colour of starlight should logically come in many different colours.
…That’s when I found this amazing site, in which a guy called Mitchell Charity posted the colour values of a range of stars nearby (insofar as ‘further than any human can hope to travel in our lifetime’ counts as ‘nearby’).
…and that’s when I discovered that the colours of stars are so different. And so that’s why I never buy anyone anything that’s Baby Blue. Instead the little one in question got a blanket the exact colour of starlight from Sirius (‘#b5c7ff’ if you are interested) .
For those that can’t, read hex- this is the colour of Sirius:
*I have a large number of God-children… For two of them I had to swear I was nontheist (which my spell checker insists is wrong, despite accepting monotheist). For another two I was promoted to God-uncle several years after the original roles were given out. For yet another two I originally accepted the role as the male ‘geek-parent’, which seamed like a lot of fun, but I’ve noticed I’m referred to as ‘guideparent’, which feels like I should have more gravitas.
Just some quick site admin. Until this week, people who’d signed up for email updates got an email whenever a new post when online.
This had a few problems:
I was doing it by hand, so sometimes emails were late, and the risk of me accidentally pasting everyone’s addresses into the ‘to:’ field rather than the ‘bcc:’ field was growing…
Occasionally (and quite often recently) there would be a post that was either quite minor or wasn’t disability focused. I often didn’t bother sending an email for those, reasoning that most people subscribed for the disability content rather than anything else. Unfortunately that approach is subjective and scatty and far from ideal.
I think I made it easy for people to unsubscribe (The second line was: ‘If you’d like to stop receiving these emails just let me know by replying to the email so I can take you off the list.’), but that’s still a lot more complex can ‘click this link to unsubscribe’.
This week I set up a MailChimp account. You’ll now get an email once a week, at 11am on Friday, with a summary of that week’s posts.
This gives us a few advantages:
We never miss a post
It’s easier to unsubscribe
It’s actually easier for me to track which articles are being opened, which means I can work out what people want to read.
Finally, at some point in the near future, it’s relatively likely that we’ll develop equalitytime.co.uk into a full site, and move a lot of the (disability focused) content and posts over there. MailChimp will let me move the mailing list at the same time.
So – site admin over. Back to the ‘proper’ posting schedule.
It occurs to me, as I write this, that although this is my personal blog, it’s remarkably unpersonal. For a start, much of the content is written by other people. Even when I write things from my point of view it covers projects, ideas, and rants rather than my character.
As it happens, when driving back from the airport on Saturday night (my girlfriend is flying off an an adventure) I was reminded of an experience that I thought might be interesting to share. Â It centres, as such things do, on the sensible idea that you can tell an awful lot about people by what they fear.*
Some years ago I woke up and knew something was wrong.  The room span.  Span. In the truly befuddled reasoning only available to the ill, I rolled out of my bed onto the floor because it would be more stable. it wasn’t. I hung on for dear life.
An hour or two later, after literally crawled to the bathroom and back, I managed to call someone to come look after me. Â By about noon I was recovered enough to feel almost normal as long as I made absolutely no attempt to lift my head from the floor or, indeed, move it in any way.
I’d like to say, proudly even, that I took this with a fair amount of emotional stoicism. Something was wrong, these things happened, it would probably sort itself out pretty quickly, most things did. Even at the rough age of 23ish I had little experience of being ill, and certainly nothing that had lasted more than a couple of days.
And then I was passed a book. As soon as I settled on a sentence my brain turned itself inside out. The dizziness came back worse than ever – like trying to read a book in a violently swerving car.**
Suddenly I was afraid***. Never mind standing up, getting dressed or any of the 101 other things that go on in a typical human say. I remember clearly the thought: if I can’t read; I’m useless.
In retrospect, it’s an odd thing to pick on. I was physically extremely active: I’d founded and was running the university Judo club (which I’m pleased to note is still running) and was preparing to take my Black Belt exam with the ninjutsu club.  Physicality was an extremely important bit of my life but it didn’t register as something to worry about (indeed, I did lose both of those things due to a back injury a year or so later). But losing reading, losing the ability process information, that was apparently something that panicked me deeply.
As it happens, it did clear up in a few days. It was an inner ear infection. It’s a fairly embarrassing to bring up such relatively minor short-lived illness on a disability-focused blog.
However it is on here, and it’s here because I think it’s important to be transparent with people. If people know what I fear they understand me better. I also think it’s important to be transparent with yourself. Before it happened I wouldn’t have known that about myself, and I haven’t thought about it in years – but it’s still there.
*I also firmly believe that you can tell a lot about someone by the contents of their bookshelf.
**This is even more awful if you are driving.
***afraid enough to overuse italics certainly; I’ll be slipping in a semi-colon if you aren’t careful, and then all hope for the post will be lost…
A little while ago I was searching though my inbox for something and found an email I’d written to a friend who’d asked for feedback on a presentation.  Reading it though I think a lot of it applies more generally.  It’s really my take on both presenting and getting better at presenting.
I’m posting it here almost unaltered, apart from rewriting some identifiable material to protect the privacy of everybody involved (and fixing more typos than I care to admit).  I hope it might be interesting to some of the early-stage researchers I know who keep an eye on the blog.
Feedback?
 First of all it must be said that it is extremely hard to judge your own presentation performance – nobody is a unbiased judge of their own performance. The ways that count are:
 1) Will the people who saw you present this year, come back and see you present next year?
2) There is no 2)
 …and you can’t know that yet.  People talk about the number of emails you get, the number of people who ‘tweeted’ your talk and such, but most of that is about how high you are in the pecking order of the community, not how well you presented.
 To give you an example, I felt that the presentation I did this year was pretty average. The presentation you saw me give last year was good.
 There are a bunch of reasons why I wasn’t as good this year, but the thing that is important is that almost everyone who came to the first presentation this year was in the presentation last year. Given that there is a choice of 8 presentations at any given time (and a lot of people wouldn’t have been back this year) I’m counting that as a win (I certainly don’t expect the same level of retention this year…)
 The next thing to say is that as far as I’m concerned the *only* feedback worth getting is a videotape of yourself giving the presentation (or at least an audio recording). It’s a horrific thing to watch, but it’s also very beneficial. You watch it once though, then once with only the sound, then once without the sound (because you are looking at body language) then you watch it again. And you’ll get more out of that experience than you ever will having people tell you if they liked it or not. (Don’t get me wrong, I love people telling me how awesome I am – the problem is that it’s not scientific, and I don’t think it’s the best way to either sustain or improve the level of awesome)
 Having said all that, we can now do some specifics.Â
 <SNIP>
 On the topic of worrying about audience questions.  One should never feel inferior. Intimidated… possibly. Certainly the audience can always ask questions that are designed to make themselves look good at the expense of the presenter (and it’s generally obvious to the rest of the audience that this is happening).  But you should bear in mind you have friends in the audience too. Part of the responsibility of the chair is to avoid someone getting metaphorically beaten up and they should help in. And you can always call for help if you need it (If I’m in an audience I can (and have) give a spirited defence of just about anything on short notice…).Â
 If you are not willing to rely on yourself you can rely on your friends. You are alone at the front, but you’re not as vulnerable as you think – I’ve had friends in the audience busking for me for 15 minutes while I frantically rebuilt some software we were showing…  So if you are nervous take some people with you. Â
Well, obviously, sometimes there is…
 I’m ill this week (Chest infection in right lung if you are interested and you aren’t) so it’s a very short post to promote a data gathering exercise that AssistiveWare are doing.
The post announcing the survay is here. I had a fairly vigorous conversation with David at AssistiveWare at CM a few weeks ago about the nature of the data that could and couldn’t be collected – but the important thing is that there is effort being made and I think it would be good if more people got involved.
Here are the direct links to the surveys:
AAC user survey: http://ift.tt/HXvSyrr/AACUSER15
Family members of AAC users: http://ift.tt/HXvSyrr/AACFAM15
Professionals:
http://ift.tt/HXvSyrr/AACPRO15
…and you’ve got until 22nd October to fill them out. Have fun!
   This year CM was a relatively new experience for me.
When I was working in academia, my research interests moved around quite a lot over the years I was publishing, which oddly enough meant that I never attended the same conference twice. This meant that most of the time I was at conferences I’m was seeking people out to learn from them, to get questions about their work answered and, occasionally, to try and get a job from them.
However, I’ve been going to Communication Matters National Conference pretty regularly. Communication Matters is a UK organisation that aims to increase understanding, awareness and knowledge of the needs of people with complex communication needs. Their yearly conference is something I’ve blogged about before.
 Because I’ve been going to CM quite regularly, my approach to conferences has had to change. This year I had a long list of people to see, but it was all people to thank – I had to track down suppliers who had lent us equipment, I had to follow up with people who had written feature articles for me, I met up with people who had supported various ideas and projects (both successful ones seen on the blog, and some that never even made it that far). In all honesty I barely got time to visit any presentations at all because I spent all my time thanking people. It was lots of fun.
 In the midst of all of this, Kate and I gave a presentation about Communikate (it was one of about five live presentations that Kate was doing over the weekend). We introduced it formally, – but talk itself felt a little bit like a groom’s wedding speech: we had so many people to thank (Many of whom where present).
A nice touch was that all the manufactures that were present donated a device for us to show CommuniKate on. Â Â
Today’s guest feature is from Tobias Buehrs. Most of my guest features are from people who are re-purposing ‘everyday’ technology into disability technology, so it was particularly nice to find someone who was re-purposing disability technology to attack a very different social issue – Joe
 European news is currently dominated by reports of thousands of refugees arriving in Europe as their last resort.
Although there are many volunteers doing a great job 24 hours a day, seven days a week, the language barrier is often significant.
Inspired by a post in a German communication aid forum from a user trying to use a feature in our product Boardmaker 6. Boardmaker 6 gives the option to create bilingual boards in up to 44 languages. Boardmaker can search in one language and will return a field with two languages (e.g. Arabic and English) and in addition a symbol to support understanding also for pre-literate people.
 And so I discussed with my colleagues the idea of producing a translation board that might make a difference in the refugee crises.
After a quick round of brainstorming what should be on it, the first refugee communication board was born. It contains a rating scale and important questions refugees could have. My colleagues and I can’t, read Arabic, so we took the advantage working in an international company like Tobii Dynavox and found several colleagues who were able to support us in doing a quick review of the boards.
We shared those boards on Facebook and the feedback from several groups supporting refugees the positive feedback was fantastic. This seems to have a great impact on the daily work with refugees.
But this was only the beginning. A few days after the first post we got the request from several institutions like a local Red Cross institution and private person all over Europe if it is possible creating additional communication boards in other languages. And so until now our website lists 13 boards not only translations in Arabic, Farsi and Albania were added as language too. If you are missing a language on that page please feel free to contact us on our website www.tobiidynavox.com