PiMZ and who knows what at this point

I'm currently a 20 year old female. I have alpha-1 antitryspin deficiency, chronic migraines and fibromyalgia. This is just a way for me monitor my health.

[vivaciouseats]

My favorite sushi is definitely the traditional veggie & ‘salmon’ combo and I enjoy the simple fresh flavor, but lately I’ve been craving something a little more decadent. 🍣 .. Along with fresh carrot and cucumber, I lightly mashed some chickpeas and mixed with mayo, sweet chili sauce, spicy red chili sauce, red chili flakes, @kikkomanusa soy sauce, and some cayenne pepper to create a “spicy tuna” that was a delicious kick to the mouth! 🔥🌶

[veg-inspo]

SUSHI 

follow veg-inspo

[vivaciouseats]

Sometimes you just need a dinner that feels like you ordered it at a greasy dive bar 🥴 .. These totally vegan chili fries are made with a “cheesy chili” featuring @bobsredmill nutritional yeast and textured vegetable protein along with red beans, tomato sauce, and just the right spices! Spooned on top of oven baked fries and topped with garden lettuce, onions, diced tomato, and a dollop of @kitehillfoods plain almond greek yogurt it hits the PERFECT spot for any meal. 

[thenatsdorf]

Who needs a mouse when you have a desk weasel. [source]

[sneakyfeets]

I love how it looks like it’s just existing at several frames faster than the human hand

[wonszu]

I love that lil face <3

[divintrix]

[sweetleaves-deactivated20180201]

“If you have no other reason to live, live out of spite.”

[dying-inside-first]

So I thought I'd try something new and started a aerial yoga class. It was honestly a lot of fun and didn't hurt to bad afterwards. I've gained a lot of weight since I got worse and I hope this help me control this. The slings were a little low tho haha

Forgive me for being a fat noodle in this haha

[cluelessbutch]

people who don’t experience chronic pain will never understand what it’s like to expect to be in pain for the rest of your life.

you don’t understand what it’s like to have to take your pain and your limitations into account when searching for housing or employment.

you don’t understand what it’s like to quit a job or an activity you love bc it’s exacerbating your pain levels.

you don’t understand what it’s like to send the “sorry, gotta cancel” text to the same friend four days in a row because your pain is just too intolerable.

you don’t understand what it’s like to have to choose between leaving early (again) or suffering through something that will cause you hours or days or weeks of increased pain.

you don’t understand what it’s like to have your accommodations/self-advocacy/self-care viewed as laziness or rudeness or apathy.

i don’t know where i’m going with this exactly but basically living with chronic pain is really hard, shout out to people who deal with chronic pain, and if you don’t then please be understanding toward those of us who do, please assume we are doing our best, because taking care of ourselves often has to come before anything else

[thecraftylittlewitch]

Feels.

[disabled-ratman]

is it like… a universal spoonie experience that sometimes u have one of Those Nights. when ur always the wrong temperature and u feel sick and everything’s painful and uncomfy and ur sweating and shaking and ur heartbeat goes all weird and u end up getting 1 hour of sleep max. do we all get this. it sucks.

[dying-inside-first]

Finally got my hair done and I love it, short hair is so much eaier to deal with and green and purple are my favourite colours.

[sarahbeara113]

I make jokes about my medical issues because it’s easier than facing the fact that I’ll be living in severe pain the rest of my life.

[thefibrodiaries]

The scariest thing about getting worse with a chronic illness is you never know if it’s just a flare that you’ll get over in a few weeks/months or if it’s your new normal.

[apxlllo]

chronically ill person: i need help managing my illness and its symptoms bc im really struggling here

doctor: have you tried exercising, eating fruit and losing weight?

chronically ill person:

[dying-inside-first]

Flashback to my doctor last week telling me I dont even know what pain is so i shouldn't be asking to be sent to the pain clinic

[rosered3-deactivated20240912]

My sister just said “yeah but her ‘fine’ is a normal person’s 'Going to the hospital’”, and I’m fucking done!😂

Granted 'normal’ fucked but still she abled, cut her slack she the fucking best and so supportive it’s ridiculous I love her!

[dying-inside-first]

It's been a while since a used this I keep forgetting, I finally got diagnosed with fibromyalgia x My hair has gotten so much longer again now haha. I have to use a walking stick and the weakness has been getting worse. It's not too bad though at least with it I can do more than before. I have a partner now he's brilliant with helping me out, I feel horrible sometimes for what he goes through. I can tell sometimes when I'm really bad it scares him and he tried not to freak out, to be honest I do too. I hate the fact my illnesses effect him but he says he doesn't care and it's worth it.

I had a really bad flare up/moment 2 days ago. It honestly terrified me, I was so weak and shaky, i got so exhausted all of a sudden but worse than usual. I couldn't move any part of my body, not my arms hands legs etc... then it because difficult to breath I had to focus so hard on just breathing. I was struggling not to pass out and he was there with me and it's the only reason I didn't. I could see how panicked he was and I had to fight against it cause I know he'd freak out more if I passed out fully. When i say freak out i dont mean in a bad way just in a panicking and feeling scared for me way. Stuff like this happens but not normally this bad x

[dying-inside-first]

Guess which bitch got finally fully diagnosed with fibromyalgia

[girlpanties]

where’s that quiz where you choose lke 4 colours u like and 4 u dont and it hands your ass on a plate

[girlpanties]

thank you @cumleaf @@ http://www.astro.com/cgi/atxgen.cgi?btyp=cf

[claycoloredmotherlessness-deact]

This hurt my feelings

[dying-inside-first]

I did not expect to be destroyed like that

[chaotic-starlight-collector]

Finally forcing myself to start exercising again. My health has been a damn mess but if I don’t start I never will, plus I really want to be able to go camping and hiking with my friends this summer and I need to prepare myself