#chronically ill

[panulyx]

Too much movement makes your joints hurt and too little movement also makes your joints hurt. This would imply that there's an optimal amount of movement that allows your joints to not hurt. This is a lie.

[zylahbee]

sexism in medicine kills people. racism in medicine kills people. fatphobia in medicine kills people. queerphobia in medicine kills people. classism in medicine kills people. ableism in medicine kills people.

do not downplay people’s fears about being mistreated because they are a part of a marginalised group. it is a matter of life and death and you should be angry about it.

[insidestory1]

I find it very offensive that the more unwell you are, the more things you have to do to maintain your health. Things like following special diets, going to medical appointments, making big and important decisions about what treatments to use. At the same time, the more unwell you are the less energy you have to do all of these extra things. It seems grossly unfair.

[awfulbastard]

There are so many people that are pro disability rights until they find out disabilities can be gross sometimes. It's so wild seeing the same people advocating for more mental health talk losing their shit over a depressed person not brushing their teeth or cleaning their spaces, or people who totally support physically disabled people until they find out I once pissed in a cup because I was in too much agony to get out of my bed, or that sometimes cups and food sit in my room longer than they should because I physically can't get up to put them away. Disabled people sometimes have incontinence, disabled people sometimes have bad hygiene, and still deserve to be supported. It's so fucking performative and it pisses me off. Even other disabled people act like this. Shaming people for stuff they can't control doesn't help anyone, just makes you an insufferable person.

[null-and-void-and-gone]

me when my disabilities disable me:

[thisaliennerd]

chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier

[miinobobeano]

It bothers me so much that the healthcare system relies so much on the patient's ability to advocate for themselves, organize their history, and be so persistent against every medical “professional” who says there’s nothing wrong/they can do. But so many struggle with fatigue, brain fog, and face such ingrained systemic barriers, that the people who need and deserve help and support can’t access it.

I saw something recently that resonated with me: “Access shouldn't depend on who has the energy to fight for it.” And I’ve never agreed with anything more.