– Marie Howe, “The Promise”
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@inkwell-system
– Marie Howe, “The Promise”
Basic Scientific Literacy for the DID Community
So, I mentioned I was going to do this a couple months ago. Technically this is applicable to everyone, but I will be focusing on research methods relevant to psychology as opposed to all forms of research.
Understand that science never operates in the negative or in absolutes. You are never going to find something that says "x thing doesn't happen" because science cannot prove a negative. Science also doesn't like to deal in absolutes--because it leaves room for error. Even findings about things like gravity will use "likely" or probabilities instead of saying "this is the only thing that will ever happen always." This does not mean that gravity might possibly not exist, or that anything can occur simply because science didn't explicitly say no.
When was it published? Research published 10+ years ago is considered outdated. This doesn't mean it's worthless, but it means it should be compared to current research for discrepancies.
Who is the researcher? What is their focus? Why are they researching this? A neurologist is not going to look for the same things as a counseling psychologist.
Who's funding it? Is there any reason why the funder would cause potential bias in the research?
What kind of study is it? A longitudinal study measures things over time, which is useful for tracking things like recovery. A case study is good for uncommon or extreme presentations, but cannot be said to occur for more than the person(s) involved. Metastudies are great for summarizing information and finding trends among multiple studies. A survey is easy and at times the only way how to do things, but very prone to fault because people lie, exaggerate, etc. A study that makes connections between things (for example, an adult reporting having experienced x thing during childhood) is only is associating certain things together--but does not imply cause/effect. This is a big one for DID research because researchers can't ethically put people through traumatic situations in a lab and see what causes what thing to occur. Meaning a lot of studies are associating things together but don't actually mean there's a causal relationship. There are a lot of other factors that could be influencing things.
Understand the research method. For example, were the researchers aware of which participants were receiving which thing? Were the participants aware? A study where someone is told they are going to hear a loud noise before it happens is going to have different results from one where someone is completely unaware.
How many people are being studied? What are their demographics? A study of 20 people who are all white, upper middle class college students from New York is not going to have findings that accurately represent the world. If that study says "70% of participants reported having gone skiing in the past month" it is not able to be generalized to all college students, much less the entire population. You can't say that 70% of all people have gone skiing recently. A representative sample size is going to be diverse in demographics and ideally have a high number of participants.
Understand participant bias. Who is likely to participate in research? Where did the researchers get the participants from? Were the questions given by the researchers more likely to result in exaggeration/lying (eg, noone likes to feel weird, if a question is framed as if having x experience is abnormal, less people are going to say they have experienced it)? Were the questions misleading or confusing? Example would be if someone was doing research on all immigrants, but only advertised their study at a community center specifically for Asian Americans, they're probably not going to get anyone who ISN'T Asian American and so their results will be skewed. They probably are also disproportionately going to get impoverished/lower class participants as it's a community center.
Has the study been replicated? One study showing that x happens is nice, but until other studies conducted by an entirely different research team get the same/similar result, it is not anything more than a neat paper. A bunch of studies all saying the same thing, done by many different people, is when you start seeing trends.
Understand the data. Does the data skew in a certain direction? Are there one or two really extreme results? For example, the average household income is much higher than the median household income because the average includes millionaires and billionaires. That doesn't mean the average household income is actually COMMON to have.
Understand the conclusion. If a researcher says there may be a connection between two things, they do not mean that the first thing causes the second. Do not draw more from the study than what it actually says in black and white.
I really don't want cults to be the next word that gets misused into oblivion (it kind of already is misused a lot and I don't want that to get worse) so here's a reminder that you can have an adverse experience with religion without it being a cult. you can experience religious abuse or have religious trauma without having been in a cult. the word cult describes one specific type of abuse (that isn't even always religious) it's not a catchall for "bad group of people" or "religious abusers"
all cults are abusive groups, not all abuse groups are cults.
The whole “what you think about is what you attract” is so detrimental to mentally ill people who experience intrusive thoughts, paranoia, psychosis, etc. When someone is struggling to not think about the thing filling them with pain or guilt, the last thing they need to be told is “well, this will make it come for you”. That’s not true. That’s not how manifestation works.
Disabled people will literally display the most concerning symptoms you’ve ever seen and then just be like nah it’s fine I’m good now that happens sometimes. anyways you wanna get tacos?
it’s me I’m disabled people
Friendly reminder that:
Young people can have arthritis too.
There are hundreds of life long conditions and diseases out there that are typically diagnosed between 12 and 30.
There is a vast difference between being tired and having chronic fatigue.
Just because you can’t tell that someone is unwell from looking at them, doesn’t mean that you should assume that they are ok.
Many chronic illnesses are life long, and incurable. Many of them are potentially fatal.
If you have a disease like Lupus, on good days you still feel like you have a bad flu, 24/7.
Many of the medications used to treat chronic conditions have side effects that can really affect someone’s self esteem - like extreme weight gain, skin changes and hair loss.
Most chronic illnesses have very little awareness - its unlikely that you’ve heard of Sjogren’s Syndrome, Scleroderma, Ehlers-Danlos Syndrome or Fibromyalgia.
However these diseases can cause symptoms as varied as joint pain, fatigue, constant nausea, kidney failure, pneumonia, photo sensitivity, full body rashes, paralysis, strokes etc.
So please remember that invisible illnesses exist too :)
José Olivarez, from my therapist says make friends with your monsters
avoiding my problems like
The 20 year old child in me pleads “Protect me, please. Make me feel safe. I just want to be worthy of empathy, kindness and protection.”
The 11 year old adult in me explains “We can only depend on ourselves for protection & safety. Others are not to be trusted. The way to survive in this world is to be self-reliant.”
We have not found a compromise yet.
bitches be like “let me be as self destructive as possible so someone will notice im suffering but as soon as they point it out i insist im fine” im bitches
you ever see a fluffy thing like a blanket or pillow or bed or sofa or carpet or someone’s lawn or a patch of moss and go. i Must burrow into that. its my Home now. i will not Be leaving No solicitors
based
based
WHY DO I KEEP GETTJNG THIS WHAT
sign me tf up
I think it'd be really funny if you could be honest when applying for jobs though. Like hi I'm so fucking autistic. I hate standing up for long periods of time and I don't work well in groups. I resent your establishment and all it stands for but I need money to live. Hire me please god hire me I can't keep living with my parents. Because I'm transgender. Okay fuck you email me back. God bless
Reblog to have something lgbt happen to you this summer