hey! so i hope this isn’t too creepy/nosey, but im a medical student and i was reading your possible fibromyalgia post and have a couple ideas lol. full important disclaimer that im only partly into my studies and im currently in the hypochondriac phase and also your summary was amazing but a real doc would ask way more questions, so please consult with an actual doc and take everything i say with a grain of salt! but like your symptoms aren’t nothing so i would def encourage finding a doc that you trust to do a proper exam and run some tests. also im operating under the assumption that you’re under 50 lol, bc if you’re over 50ish that’s a whole diff list of possible diagnoses.
so the thirst thing you’re talking about is often called polydipsia and is commonly associated with diabetes insipidus. that’s not the normal diabetes you think about, but happens when your body can’t regulate fluids in your body properly. id think of this if you’re also peeing a lot lol. your doc would have to do some kidney tests for that, which wouldn’t be part of the blood panel you mentioned. i’m a little skeptical that it’s hypokalemia bc that would’ve showed up on your blood test results. it could be transient electrolyte imbalances when you exercise so have one of those electrolyte packets when you exercise lol, bc it never hurts to try the easy solutions first, but chronic low potassium should’ve shown up? tho eating sweet potatoes has never hurt.
other things it could be is a lower motor neuron problem bc you mentioned twitches and muscle weakness which is typical for those. i def can’t say more without tests, but look into/get your doc to look into myasthenia gravis or LEMS and see if either of those fit. i think it’s possible bc these often also start with face/upper body symptoms, but would need way more questions/tests to know. it’s unlikely but could also be a glycogen storage disease called McArdle disease bc you describe a second wind thing when you exercise along with exercise intolerance. that’s super rare tho so it’s unlikely unless someone in your family has it/has similar symptoms.
also look into autoimmune stuff like rheumatoid arthritis, lupus, and sjögrens disease. i have way less useful info on that bc we haven’t gotten to it in class yet lol, but sjögrens looks promising bc you often get dry mouth with it, and it often goes along with rheumatoid arthritis which could explain the joint stuff possibly.
it’s also totally possible this is fibromyalgia, but i would be cautious diagnosing it bc it often comes with fatigue and cognitive stuff which you didn’t mention. it’s also more of a pain thing, and doesn’t include your twitches/dry mouth. it’s def possible, and it was def something i thought of when i saw your symptoms, but personally i would want to rule out other stuff first bc fibromyalgia is pretty vague and often a diagnosis of exclusion when other things don’t fit.
sorry for overwhelming you!! i just saw your post and was like hmmm those symptoms sound like Something. again take my advice with a big grain of salt, but i do really think it’s worth asking your doc about it and getting tests done, bc even if there aren’t cures there are def treatments to help with a bunch of this stuff. it doesn’t sound urgent, but at least from your post your symptoms don’t sound like run of the mill aches and pains. hope you figure stuff out!!
The problem with 'muscles don't work right ouchy and I am also tired' is that it's a symptom for Absolutely Everything That Can Be Wrong With The Body. Is it cancer? Is it a terrible diet and sleep schedule? Who knows!
The doctor ran a diabetes test with the blood panel and it came up negative, but I don't know if that checks for weird kinds of diabetes. (Diabetes does not run in my family until we get very old.) That test was memorable because I have stupid fragile veins that freak out and collapse at the mere sight of a needle so I had to get stabbed nine times, they didn't manage to get the middle reading at all, and in the end they resorted to just stabbing my thumb with one of those diabetes home blood test thingies and manually squeezing my blood out into a tube drop by drop.
I looked up polydipsia and I don't think I have that. I think I just prefer my mouth to be wetter than my salival glands want it to be. 🤷♀️I think most of my problems are probably not related to any rare chronic disease, but just run-of-the-mill autism making it hard to look after myself or properly notice and process my physical condition and adapt accordingly. I don't eat enough fresh foods because it's hard to plan with the very short timeframe to prepare and eat them in. I'm uncoordinated and damage my body a lot through overwork or using muscles incorrectly because autism makes it hard to keep track of those things. My mouth feels dry and my skin feels itchy and my muscles feel sore because that's what being autistic feels like. My sleep schedule is garbage because my executive function is garbage and even once I do manage to get myself into the bed I can't just "go to sleep", I pass out when I'm ready to pass out.
I'm not saying it's impossible for anything else to be going on, but I think the known factor is the simplest explanation here. It's 2:30pm and I've been putting off breakfast for five hours. Every time I go into the kitchen I get distracted by housework instead. I am very hungry. This is not behaviour that is conducive to a well-functioning body.
