Lili McDaid @lilimcdaid - Tumblr Blog

My post about older people lecturing young disabled people about how they feel with regards to their own pain and their fear for the future has been hijacked by older people, except now they're repeating this patronizing "it gets better" routine and everyone is reblogging with those additions and I feel like punching a window

My point remains the same. We disabled youths, we can't have shit. We're not allowed to feel what we feel, to have others resonate with it without you fucking codgers throwing in your own two cents. Have you considered shutting the fuck up for a minute?

I'm in pain now. I am worried about my future now. And I deserve the space to express my current reality without being contradicted. If you want to help me, either send me money or delete your stupid fucking reblogs

personnotfound

i hope whoever actually shot that CEO is having a good day.

slavlje

identitty-dickruption

choosing to allocate spoons to hanging out and having a good time at the cost of perfectly completing all your work is not a failing it is in fact an act of survival. “too sick to work = too sick to play” is in fact ableist bullshit that you don’t have to buy into. and the fact that leisure time is treated like a privilege is a fucking travesty

fibromyalgicaf

I hate the phrase “I never let my disability stop me” because yeah, I do. I don't push myself to go for a run. I stop myself from committing to a bunch of outings. I let my disability stop me doing things that will cause me pain, endanger me, or worsen my health. I let my disability get in the way of things I am unable to do.

By definition, there are things we can't or shouldn't do. If you think that's not inspiring enough, then fuck you.

bebsi-cola

money is such an underrated accessibility option.

like people want to think any disabled person who is after money is morally suspect some way, because they're not asking for "treatments" or "accommodations" like a lot of our issues can be fixed way more easily with money. can't drive? paying for a taxi is often one of the more accessible alternatives. can't cook? you can pay more to have prepared food delivered to you. food restrictions? that food straight up costs more money. can't clean? you can pay for someone to do that. house inaccessible? having (lots) of money can help with that, you get the gist.

having money won't make us abled. it also won't stop our symptoms from being distressing, painful, or debilitating. but there's a huge gap in experience between the average poor disabled person and someone who's actually wealthy. you can buy your way out of some of the difficult situations most disabled people are left to rot in. wanting money, needing money, asking for money is pretty natural when it's such a useful tool. why get so weird about disabled people wanting money like i'm pretty sure everyone wants money anyway

bebsi-cola

i think the worst thing about abled people is that even if you explain your perspective as a disabled person, dismantle common ableist narratives, correct misinformation and do all that work. they're still liable to backslide at any point. "but it's inevitable that most people are going to think or say [ableist thing]." their constant exposure to ableism isn't mitigated by having a disabled person to give a fuck about because they're ultimately not affected themselves. and it's hard being the only one in the room aware of the constant, relentless barrage of ableism that exists as a backdrop for our society. so they want to justify it to you. "yes i know this hurts you but you have to admit most people aren't going to accommodate this". they want you, the disabled person, to absolve them of whatever common ableist thing they want to do. maybe it's saying the r slur or being dismissive about someone masking when sick. maybe it's about benefits and what they really think about it. whatever it is, they're always so unreliable. all the effort you put in to change their mind can be undone that quickly it's like why did you even bother to pretend to care in the first place

bebsi-cola

you can't be a disabled ally without also supporting homeless people and addicts like it's just not possible

noodle-shenaniganery

I hate how often some (typically abled) people will go “well, if you can’t [get a specific support], then what?” when it comes to disabilities. As if it’s a “gotcha” moment. And then act like you’re exaggerating when you answer that question honestly.

Disabled people often die from a lack of support. A lot of disability aids are not a luxury, but a basic need in order to live.

“Well what happens if—” people die. People hurt themselves. People hurt others. Disabled people don’t magically become abled if our needs aren’t met.

If a bedbound quadriplegic is caught in a housefire, and there’s nobody there to save them, they’ll probably die. They won’t magically become able-bodied out of sheer will.

If a nonspeaking/nonverbal autistic is denied access to alternative methods of communication, they’ll suffer in silence. They won’t spontaneously become capable of speech.

Disabled people are disabled all the time. Our disabilities don’t go away just because they’re inconvenient, or if we’re in danger.

love-me-love-my-weirdness

Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.

Shout out to young disabled people. We exist.

hauntedshrimp

“I stand in a valley watching it / and you are not there at all” (A Burning Hill - Mitski)

Redraw of a piece I posted a year ago! Comparison under the cut

se-qo

alfred gave them the sheets

only-knives

time with complex trauma is like. i need to do everything all at once and if i don't i'm a failure, even if there's nothing to do. three months ago feels like yesterday but i can hardly remember yesterday anyway. i'm running out of time. for what? i don't know. i need everything to slow down but my life is so stagnant. i can't go to sleep because the day can't end, but i need the day to end or i'll go insane. i'm constantly worrying about the future but it feels like i have no future. i'm running out of time. for what? i don't know. time has no meaning but every second is the end of the world.

or is this just me?

crippledpunks

chronic fatigue weaves its way into everything. people love to tell disabled people they'd love to rest as much as we do, but they fail to understand how tired we are while we rest. we are not relaxed, we are generally pretty miserable, either from pain, irritability, or fatigue- which bleeds into every aspect of your life. being too fatigued to get up off of the couch means that you're too fatigued to get to the cupboard to pull out pans to attempt to start cooking.

the steps hidden within steps that are required to do a lot of tasks related to being a "functioning adult" are daunting, there are often way too many steps necessary to make "Simple" foods or do "simple" chores for disabled people to accomplish these tasks. chronic fatigue often means that even waking up from a nap or night's rest requires time to adjust to and power through

waking up is a process for me. im often no more alert and awake hours after i've woken than I am right after doing so. caffeine does not help fatigue- at least not at safe doses, for me, anyways. many days the act of moving from my bedroom to my living room is too much. taking dishes to the sink can be too exhausting. i have began falling asleep in front of the kitchen counter while standing because i realize the amount of steps required to clean the counters, or do the dishes, or prepare a meal that all of my energy instantly bleeds away

it's okay if you feel this way too. i have been dealing with chronic fatigue my entire life and it cost me my best paying job. i lost my ability to work because of it. it's not just you being "sleepy", you are genuinely too exhausted to function. you do NOT have the energy levels other people do, and that's okay. it's okay to let yourself be tired sometimes and address that instead of trying to pretend you're not tired.

i wish you good luck. you are loved

aropride

"nothing is real atoms never touch each other youve never touched anything in your life" ok. well when i pet my dog he is soft and when he licks my hand it is wet and that is far more real to me than whatevers going on at an atomic level

aropride

what my atoms are doing is their fucking business man i'm busy trying to stop my dog from eating tissues directly out of the box

duckbunny

nuclei don't touch, but the nucleus is not the core of reality. reality is made of electrons dancing. reality is made of bonds.

you pet your dog and the atoms that are you brush up against the atoms that are him, and the electrons that are you press into the electrons that are him, and both of them change their movement.

electrons of course are not really particles and do not really move.

you pet your dog and the electron-orbitals of your skin overlap with the electron-orbitals of his fur, and both are changed by the contact. you are not made of little motes floating alone in a void. you are a single unfathomable chord formed of a trillion vibrations, and so is he. and the note you play is changing at every moment by what you touch and how you breathe, and so is his. and atoms do not really have edges, and to touch is to interact, and when you put your hand on your dog the universe does not know that you are separate. the song expands to hold you both.