Mended Little Hearts of Charlottesville, VA @mlhcville - Tumblr Blog

February 2019 Update

It's February which means it's HEART MONTH! We're kicking off the festivities tonight at Tavola Restaurant with the Eat Well Do Good fundraiser! Join us in the cicchetti bar for spaghetti and meatballs to support Mended Little Hearts of Charlottesville! More info here. On Friday, February 8, we will host our annual CHD Awareness Bake Sale in front of the Claude Moore Health Sciences Library. More info can be found here. If you are available to staff an hour or so at the table, please email [email protected] If you are the parent of a heart angel, please email [email protected] for more information on the Remember Our Hearts Remembrance Event that will be held on Sunday, February 10 from 2-4 PM. Our annual heart party is on Monday, February 11 from 4-5:30 PM. We will make valentines for our favorite cardiologists and nurses, enjoy some yummy heart treats and get pictures taken by the talented Brittany Carpenter Photography! Please RSVP to the FB event so we know to expect you! For those of you that may be interested, there are two upcoming events in the DC area that are CHD related. The first is the Hope For Hearts Casino Night held on Saturday, Feb. 16. More info can be found here. The second is the annual CHD Legislative Conference on Mar. 4 and 5. Registration can be done here. Do you travel to UVA for your heart warrior's care and sometimes have trouble getting placed at the Ronald McDonald house? Lily Pads Housing is looking to help solve this problem! Started by a fellow heart mom, Jen Koym, it is a non-profit looking to provide housing for CHD families by matching them with "host homes". You can learn more here. We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information: -child's name -child's date of birth -diagnosis -number of surgeries -hospitals where child has received their care -cardiologist at UVA -for angels, date of death -recent picture -little tidbit about something they enjoy doing Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more! Heart Hugs, Lauri T.

January 2019 Update

Wishing a happy and healthy new year to all of our heart friends! I hope that you all had a wonderful holiday season. We are just around the corner from one of our busiest times of the year, Congenital Heart Defects Awareness Week! It is Feb. 7-14 and as usual, we have several different events planned. Please keep an eye on our public FB page for scheduled events. For those of you that may be interested, there are two upcoming events in the DC area that are CHD related. The first is the Hope For Hearts Casino Night held on Saturday, Feb. 16. More info can be found here. The second is the annual CHD Legislative Conference on Mar. 4 and 5. Registration can be done here. Do you travel to UVA for your heart warrior's care and sometimes have trouble getting placed at the Ronald McDonald house? Lily Pads Housing is looking to help solve this problem! Started by a fellow heart mom, Jen Koym, it is a non-profit looking to provide housing for CHD families by matching them with "host homes". You can learn more here. We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information: -child's name -child's date of birth -diagnosis -number of surgeries -hospitals where child has received their care -cardiologist at UVA -for angels, date of death -recent picture -little tidbit about something they enjoy doing Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more! Heart Hugs, Lauri T.

November 2018 Update

The fall weather has finally arrived and it's also brought in the season of germs! Make sure you protect your heart warrior by scheduling their flu shot, if you haven't already. We have a great meeting planned for November. An adult CHD survivor, Kate, will tell us about her journey with Tetralogy of Fallot including her most recent valve replacement surgery in 2016. For those that are not able to attend the meeting in person, we will livestream it in the closed UVA Heart Families FB group so make sure to find us there! Our annual holiday cookie decorating party has been scheduled for Sat. Dec. 1 from 2-4 PM. We will meet in the First Floor Dining Conference Rooms. Please email [email protected] with the age and gender of each heart warrior and their siblings that will be attending by Nov. 26 so we can make sure there is a small gift for each child. If you are interested in bringing a dozen holiday shaped sugar cookies, please let us know! Do you travel to UVA for your heart warrior's care and sometimes have trouble getting placed at the Ronald McDonald house? Lily Pads Housing is looking to help solve this problem! Started by a fellow heart mom, Jen Koym, it is a non-profit looking to provide housing for CHD families by matching them with "host homes". You can learn more here. We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information: -child's name -child's date of birth -diagnosis -number of surgeries -hospitals where child has received their care -cardiologist at UVA -for angels, date of death -recent picture -little tidbit about something they enjoy doing Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more! Heart Hugs, Lauri T.

September 2018 Newsletter

Thank you so much to everyone that came out to support our local heart community at Josephine's Village 5k! It was a fabulous morning and the response was amazing! Proceeds from the race will be split between our group and the UVA Heart Fund which also supports heart families. We are so blessed! Interested in participating in a free cardiac heart camp? Head over to the Camp Holiday Trails website and register for Camp True Heart! Space is limited to 15 families so register quickly! Save the date! Our annual holiday cookie decorating party has been scheduled for Sat. Dec. 1 from 2-4 PM. More details to follow! Do you travel to UVA for your heart warrior's care and sometimes have trouble getting placed at the Ronald McDonald house? Lily Pads Housing is looking to help solve this problem! Started by a fellow heart mom, Jen Koym, it is a non-profit looking to provide housing for CHD families by matching them with "host homes". You can learn more here. We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information: -child's name -child's date of birth -diagnosis -number of surgeries -hospitals where child has received their care -cardiologist at UVA -for angels, date of death -recent picture -little tidbit about something they enjoy doing Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more! Heart Hugs, Lauri T.

June 2018 Newsletter

Are you headed to UVA for a clinic visit this summer? If so, try to build in time for some summer fun at one of the spray parks located near the Battle Building! Forest Hills Park is less than a mile away from the Battle Building and provides lots of fun that our heart warriors can enjoy and keep cool at the same time. Another spray park will open this summer at Tonsler Park which is also less than a mile away from the Battle Building. Stay tuned for more details on that! Are you looking for a fun way to celebrate heart warriors and angels while raising money for MLH of Charlottesville and the UVA Heart Fund? Come join us at the first annual Josephine's Village 5k! Sign-up here. Do you travel to UVA for your heart warrior's care and sometimes have trouble getting placed at the Ronald McDonald house? Lily Pads Housing is looking to help solve this problem! Started by a fellow heart mom, Jen Koym, it is a non-profit looking to provide housing for CHD families by matching them with "host homes". You can learn more here. We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information: -child's name -child's date of birth -diagnosis -number of surgeries -hospitals where child has received their care -cardiologist at UVA -for angels, date of death -recent picture -little tidbit about something they enjoy doing Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more! Heart Hugs, Lauri T.

May 2018 Newsletter

Who is ready to be a superhero for our heart heroes? Registration is now open for the Super Hero Heart Run in Richmond! Join us and other heart families from across Virginia on May 20th as we celebrate our super heart heroes. Funds raised from this run go to the Bravery Bag program that benefits families that receive care at UVA. And BIG NEWS! UVA Children's Hospital has generously offered to cover the registration fee for a limited number of registrations! All they ask is that in lieu of your registration, you join the UVA Hearts Team and give a donation! Use code "UVA-HEARTS" when registering!

Do you travel to UVA for your heart warrior's care and sometimes have trouble getting placed at the Ronald McDonald house? Lily Pads Housing is looking to help solve this problem! Started by a fellow heart mom, Jen Koym, it is a non-profit looking to provide housing for CHD families by matching them with "host homes". You can learn more here.

We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information:

child's name

child's date of birth

diagnosis

number of surgeries

hospitals where child has received their care

cardiologist at UVA

for angels, date of death

recent picture

little tidbit about something they enjoy doing

Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more!

Heart Hugs, Lauri T.

APRIL 2O18 MONTHLY NEWSLETTER

It's Spring but the snow keeps coming here in Charlottesville! The good news is that the CDC flu map looks a lot better for Virginia. Thank goodness!

Registration is now open for the Super Hero Heart Run in Richmond! Join us and other heart families from across Virginia on May 20th as we celebrate our super heroes. Funds raised from this run go to the Bravery Bag program that benefits families that receive care at UVA.

Have you ever stayed at the Ronald McDonald House and would like to help give back to them? Join heart family and friends at Kendra Scott here in Charlottesville on Wednesday, April 18 from 5-8 PM for Summer Launch Party and to help raise awareness about organ donation! More details here.

Do you travel to UVA for your heart warrior's care and sometimes have trouble getting placed at the Ronald McDonald house? Lily Pads Housing is looking to help solve this problem! Started by a fellow heart mom, Jen Koym, it is a non-profit looking to provide housing for CHD families by matching them with "host homes". You can learn more here.

We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information:

-child's name -child's date of birth -diagnosis -number of surgeries -hospitals where child has received their care -cardiologist at UVA -for angels, date of death -recent picture -little tidbit about something they enjoy doing Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more!

Heart Hugs, Lauri T.

MARCH 2018 MONTHLY NEWSLETTER

February was a VERY busy month for us spreading lots of CHD Awareness! We held five fundraisers, donated over $600 to the UVA Heart Fund, held a remembrance event for angel families and lobbied Congress for CHD research funding! We also had a very fun Heart Party to celebrate our heart warriors, made valentines for our cardiology team and got some really cute pictures taken by Brittany Carpenter Photography! The March monthly meeting will be held on Monday, March 9th, from 4-5:30 PM in the NICU Conference room. An adult CHD survivor, Dominique, will join us to share her story about growing up with a CHD. If you are not able to attend, keep an eye out for a FB live video in the closed FB group, UVA Heart Families. We are proud to announce that the Mended Little Hearts Virginia groups are the 2018 Q1 non-profit for Starr Hill's Beers With Benefits program! Please see this link for more info. The Booster t-shirt program that Custom Ink designed for us is still running through the end of this month! Here's the link to get your own Beers With Benefits t-shirt! Registration is now open for the Super Hero Heart Run in Richmond! Join us and other heart families from across Virginia on May 20th as we celebrate our super heroes. Funds raised from this run go to the Bravery Bag program that benefits families that receive care at UVA. Do you travel to UVA for your heart warrior's care and sometimes have trouble getting placed at the Ronald McDonald house? Lily Pads Housing is looking to help solve this problem! Started by a fellow heart mom, Jen Koym, it is a non-profit looking to provide housing for CHD families by matching them with "host homes". You can learn more here. We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information: -child's name -child's date of birth -diagnosis -number of surgeries -hospitals where child has received their care -cardiologist at UVA -for angels, date of death -recent picture -little tidbit about something they enjoy doing Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more! Heart Hugs, Lauri T.

FEBRUARY 2018 MONTHLY NEWSLETTER

February is here and you know what that means! Heart Month! This is our time to raise awareness about congenital heart defects and help support other families that may just be starting on this journey. We have so many great upcoming events to spread CHD Awareness and also fund-raise for Mended Little Hearts! Make sure you follow our Facebook page so you will catch all the upcoming events!

We are proud to announce that the Mended Little Hearts Virginia groups are the 2018 Q1 non-profit for Starr Hill's Beers With Benefits program! Please see this link for more info. The Charlottesville group was also chosen to be the non-profit recipient of their Cheers For Charity program for the month of February! Join us tonight, Feb. 1, from 6-8 PM at the Starr Hill Brewery in Crozet for the kick-off party! $1 from every pint sold at the Brewery in the month of February will be donated to Mended Little Hearts of Charlottesville. Come Share The Love with us!

Congenital Heart Defects Awareness Week is Feb. 7-14. To kick it off, we will be hosting a bake sale in front of the Claude Moore Health Sciences Library on Feb. 7 from 10 AM-2 PM. Half of the proceeds will go to the UVA Heart Fund, a program set up by Dr. Matherne and his wife several years ago that is now managed by Morgan Taylor, the pediatric cardiac social worker. Stop by and say hi if you are in the area!

We have partnered with Kendra Scott this year to host a Kendra Gives Back event. This will be held at their store in the Shops at Stonefield on Friday, Feb. 9 from 5-8 PM. Sips and treats will be provided so come out and shop for your Valentine! Some of the proceeds will be donated to our group.

Do you love to paint? Join us on Saturday, Feb. 10 from Noon-2 PM at Paint For A Cause at Muse Paintbar at the Shops in Stonefield! We will have snacks provided and drinks will be available for purchase. Tickets must be purchased in advance here and a minimum of 15 tickets have to be sold in order for the event to take place.

Are you the parent of an angel warrior? We will be having a special remembrance event on Sunday, Feb. 11 from 2-3:30 PM. Please email [email protected] for more information and to RSVP.

Who's ready to party and celebrate our special hearts? Come to our monthly meeting on Monday, Feb. 12 from 4-5:30 PM in the NICU Conference Room on the 7th floor! We will make valentines for our favorite cardiologists, enjoy some heart treats, and get our picture taken by Brittany Carpenter Photography.

Do you travel to UVA for your heart warrior's care and sometimes have trouble getting placed at the Ronald McDonald house? Lily Pads Housing is looking to help solve this problem! Started by a fellow heart mom, Jen Koym, it is a non-profit looking to provide housing for CHD families by matching them with "host homes". You can learn more here.

We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information:

-child's name

-child's date of birth

-diagnosis

-number of surgeries

-hospitals where child has received their care

-cardiologist at UVA

-for angels, date of death

-recent picture

-little tidbit about something they enjoy doing

Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more!

Heart Hugs,

Lauri T.

JANUARY 2018 MONTHLY NEWSLETTER

Happy New Year! 2018 is off to an exciting start! We have so many great upcoming events to spread CHD Awareness and also fund-raise for Mended Little Hearts! Make sure you follow our Facebook page so you will catch all the upcoming events!

We are proud to announce that the Mended Little Hearts Virginia groups are the 2018 Q1 non-profit for Starr Hill's Beers With Benefits program! Please see this link for more info. And stay tuned for some fun events with Starr Hill that will be posted on our Facebook page.

The Mended Little Hearts Roar 'N Run 2018 virtual race is now going! Sign up here to join our team or create your own! This is a virtual event but feel free to sign up, grab some of your favorite heart warrior friends and get moving! Spread some CHD Awareness!

Looking for some more ways to spread CHD Awareness? Then go Rock Your Scar! Mended Little Hearts annual Rock Your Scar contest is now up and running!

Finally, don't miss out on an update from the UVA Adult CHD program at our next monthly meeting, Monday, January 8 from 4-5:30 PM in the NICU Conference Room on the 7th Floor. We are excited to have Dr. Battle, Adrienne and Matt Thomas with us to talk about what's going on in the ACHD world these days.

Do you travel to UVA for your heart warrior's care and sometimes have trouble getting placed at the Ronald McDonald house? Lily Pads Housing is looking to help solve this problem! Started by a fellow heart mom, Jen Koym, it is a non-profit looking to provide housing for CHD families by matching them with "host homes". You can learn more here.

Planning for CHD Awareness Week 2018 is in full swing! Keep an eye out on FB for more info and events!

We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information:

-child's name

-child's date of birth

-diagnosis

-number of surgeries

-hospitals where child has received their care

-cardiologist at UVA

-for angels, date of death

-recent picture

-little tidbit about something they enjoy doing

Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more!

Heart Hugs, Lauri T.

DECEMBER 2017 MONTHLY NEWSLETTER

Happy Holidays! Did you enjoy the snow that we had in Central VA over the weekend? It was a welcome distraction in my house as my heart warrior recovered from some viral junk going around school. 'Tis the season!

The annual holiday cookie party is right around the corner! Join us on Sunday, December 17 from 2-4 PM in the 1st floor dining conference rooms to decorate cookies, eat cookies and enjoy a small surprise for each child in attendance! If you and your family will be joining us and you haven't already RSVP'ed, please email the ages and genders of each child (CHD child and any siblings) that will be attending so our holiday elves can finish their work! RSVP by December 13 to [email protected]

Do you travel to UVA for your heart warrior's care and sometimes have trouble getting placed at the Ronald McDonald house? Lily Pads Housing is looking to help solve this problem! Started by a fellow heart mom, Jen Koym, it is a non-profit looking to provide housing for CHD families by matching them with "host homes". You can learn more here.

Planning for CHD Awareness Week 2018 is in full swing! Keep an eye out on FB for more info and events!

We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information:

-child's name

-child's date of birth

-diagnosis

-number of surgeries

-hospitals where child has received their care

-cardiologist at UVA

-for angels, date of death

-recent picture

-little tidbit about something they enjoy doing

Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more!

Heart Hugs, Lauri T.

November 2017 Newsletter

November is here and we want to give thanks for the whole care team at UVA! Join us at our next monthly meeting, Monday, November 11 from 4-5:30 PM to help make notes of thanksgiving that will be displayed on 7th floor so the care team can see how much we appreciate their hard work!

The annual holiday cookie party has been scheduled! Join us on Sunday, December 17 from 2-4 PM in the 1st floor dining conference rooms to decorate cookies, eat cookies and enjoy a small surprise for each child in attendance! If you and your family will be joining us, please email the ages and genders of each child (CHD child and any siblings) that will be attending so our holiday elves can get to work! RSVP by December 4 to [email protected].

We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information:

-child's name

-child's date of birth

-diagnosis

-number of surgeries

-hospitals where child has received their care

-cardiologist at UVA

-for angels, date of death

-recent picture

-little tidbit about something they enjoy doing

Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more!

Heart Hugs,

Lauri T.

September 2017 Newsletter

Hope everyone in school is off to a great start! Sending our heart warriors off can always be a bit nerve-wracking so if you are looking for tips on staying in communication with your child's teachers, post in the closed UVA Heart Families groups on Facebook to get some ideas! We really enjoyed our August meeting. Dr. Gangemi, the pediatric CT surgeon at UVA, gave us an update on the Heart Program at UVA as well as what's on the roadmap for the coming year. We also had a special guest, Congressman Tom Garrett (VA-5), join us to learn more about the excellent program at UVA and what CHDs are all about. We appreciate the time he took to spend with us! Our September meeting is also on track to be great! We will have some of the pediatric cardiac fellows join us to introduce themselves as well as talk us through what happens when parents call in and speak with one of them. I'm looking forward to learning more about the people I wake up in the middle of the night! We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] with the following information: -child's name -child's date of birth -diagnosis -number of surgeries -hospitals where child has received their care -cardiologist at UVA -for angels, date of death -recent picture -little tidbit about something they enjoy doing The CHD Symposium hosted by Mended Little Hearts will be held in Houston, TX, Sept. 22-23, 2017. The agenda is shaping up to be a very informative two days! If you are not able to make it in person, they will be doing FB Live for the speakers. If you are able to attend, click here for the link to sign-up. Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more! Heart Hugs, Lauri T.

August 2017 Newsletter

What a busy summer! If your family is anything like mine, there has been lots of swimming, splash parks and indoor play to avoid this heat! The Superhero Heart Run in June was amazing! Over 400 participants as well as lots of the care teams from both UVA and VCU there to support our heart heroes. Everyone had a blast! And lots of money raised for the Bravery Bag program supported by Mended Little Hearts of Central VA! Thanks to everyone that attended! We are looking forward to our August meeting. Dr. Gangemi, the pediatric CT surgeon at UVA, will be there to give us an update on the Heart Program at UVA as well as what's on the roadmap for the coming year. This meeting will be held on a different day and in a different location than our normal meetings. It will be on Monday, Aug. 21 from 4-5:30 PM in Room 7164. The volunteers to hang out with the kids will be a few doors down in Room 7603. Please RSVP to the event on the Facebook page so we have an accurate head count. We want to celebrate our heart warriors on their birthday by announcing it on our public Facebook page! If you would like to participate, please email [email protected] <mailto:[email protected]> with the following information: -child's name -child's date of birth -diagnosis -number of surgeries -hospitals where child has received their care -cardiologist at UVA -for angels, date of death -recent picture -little tidbit about something they enjoy doing The CHD Symposium hosted by Mended Little Hearts will be held in Houston, TX, Sept. 22-23, 2017. The agenda is shaping up to be a very informative two days! If you are not able to make it in person, they will be doing FB Live for the speakers. If you are able to attend, click here <http://mlhcharlottesville.us3.list-manage.com/track/click?u=a80e83c470aba636ee614975c&id=1546af0660&e=ceda06e3ff> for the link to sign-up. Interested in a leadership role in MLH of C'ville? Email me at [email protected] <mailto:[email protected]> and I can tell you more! Heart Hugs, Lauri T.

June 2017 Newsletter

It's summer! Who is ready for pool days and vacations?!?

Superhero Heart Run is THIS SUNDAY! Have you signed up? We are very thankful for Mended Little Hearts of Central VA for hosting the Superhero Heart Run again this year. Please visit this link to sign up for the race that will be held on June 4, 2017 at Bryan Park in Richmond. Proceeds go towards providing Bravery Bags to UVA Medical Center. We look forward to seeing you all there!

Will you be traveling this summer? We will discuss things to consider along with having a general support meeting at our June monthly meeting. Hope you can make it!

I will be starting a new initiative in July to celebrate our heart warriors on their birthday by announcing it on our public Facebook page. If you would like to participate, please email [email protected] with the following information: -child's name -child's date of birth -diagnosis -number of surgeries -hospitals where child has received their care -cardiologist at UVA -for angels, date of death -recent picture -little tidbit about something they enjoy doing

Save the date! The CHD Symposium hosted by Mended Little Hearts will be held in Houston, TX on Sept. 23, 2017. If you are not able to make it in person, they will be doing FB Live for the speakers. More details to follow.

Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more!

Heart Hugs, Lauri T.

May 2017 Newsletter

Lots of exciting things happening in the near future! First, we are very thankful for Mended Little Hearts of Central VA for hosting the Super Hero Heart Run again this year. Please visit this link to sign up for the race that will be held on June 4, 2017 at Bryan Park in Richmond. Proceeds go towards providing Bravery Bags to UVA Medical Center. We look forward to seeing you all there! Second, we have a great program this month for our May monthly support meeting. Morgan Taylor, the pediatric cardiac social worker that supports children and families while they are inpatient at UVA will be presenting on parenting a child with a chronic illness. She will have some great information to share along with some tips to help you work through and process that stress. Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more! Heart Hugs, Lauri T.

March 2017 Newsletter

Wow! What a month for Congenital Heart Defects Awareness! Thank you so much to everyone that participated in our various activities as well as sharing the activities and events on your own social media feeds. Sharing from our public Facebook page is an excellent way to spread awareness and help more people learn about CHDs. We had a wonderful turn-out for the kickoff party at Starr Hill Brewery for their Cheers For Charity program. And our Heart Warriors party was fabulous! We made valentines for our cardiologists, ate lots of yummy heart-shaped treats and had pictures taken by the wonderful Brittany Carpenter. We really appreciate that she donated her time to take so many great pictures of our heart warriors. To wrap up Congenital Heart Defects Awareness Month, I traveled to Washington, D.C. for the Congenital Heart Legislative Conference. Along with other Virginia families, I met with aides from Senators Warner and Kaine's office as well as meeting briefly with Rep. Garrett. We were asking them to support the Congenital Heart Futures Reauthorization Act that was introduced last week. If you would like to help, you can call your Representative and ask them to cosponsor H.R. 1222 or call your Senators and ask them to cosponsor S. 477. For March, we have some of the Pharmacy team coming to speak with us regarding meds and our heart kids. In April, we will get an update on the Adult CHD program from Dr. Battle and his team. And in May, we will have a presentation from Morgan on parenting a child with a chronic illness. We are very thankful for Mended Little Hearts of Central VA for hosting the Super Hero Heart Run again this year. Please visit this link to sign up for the race that will be held on June 4, 2017 at Bryant Park in Richmond. Proceeds go towards providing Bravery Bags to UVA Medical Center. Interested in a leadership role in MLH of C'ville? Email me at [email protected] and I can tell you more! Heart Hugs, Lauri T.

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