Welcome

I am a 23 year old

[quackwoof]

☻intro☻

hi. i am 23 years old. i am a girl. i live in the usa. i have a puppy. i like the color green, purple, yellow and blue. my biggest interests are kids shows and kids toys, Star Trek and animals

[quackwoof]

Hi Tumblr!

I’ve been away for a while :) I wanted to update!

I’m still going to my disability program and I love it so much. I’m also in the process of getting DDA funding (Developmental Disabilities Administration) and SSDI. that way I can have more hours with my support person and more time at the program:) I’m also going to a disability pride event with my program and I’m so excited!

My epilepsy seems to be pretty controlled right now which is amazing! My neurologist gave me rescue medication in case of cluster seizures. It’s a nasal spray called Nayzilam that’s midazolam.

My communication has gotten a lot better. I’m really working on asking for what I need/want and expressing my feelings before things are out of control on my iPad

In general I’m really loving my life :)

I recently got violently ill but I’m recovering. I have Covid now too. Which is so dumb. I’ve avoided it for 4 years.

But I’m still happy and excited for so many things!

Loving life ❤️

[quackwoof]

Would you feel comfortable talking about your living situation and the kind of support provided? I'm currently looking into assisted living but don't have many resources to look at so I don't know how helpful it'd be. /nf

I’m back home now because I am getting in-home support, but while I was there I got help with many different things. Daily tasks, planning, cooking, cleaning, hygiene, regulating myself, communication, community access and even medical help for when I needed it.

Finding proper help is hard. But it’s worth continuing to fight for.

[quackwoof]

Hello 👋

Since July 1st I’ve been living in a supported living home for autistic adults

It has helped me so much

Now we are arranging for more support at home so I can go home at some point and have more support there

Just an update 🤷🏼‍♀️

[quackwoof]

It's my 1 year anniversary on Tumblr 🥳

[quackwoof]

Hello. I’d like to make a distinction/PSA. I see a lot of people talk about how “lucky” level 2-3 autistics are to “not have to mask”. This is so far from the truth. Not only is this not true, it is not some luxury or anything lucky. I feel like people forget that while masking is damaging, it can also be extremely important safety wise. People who are unable to mask are at risk for a lot of danger. I personally have been in situations where not being able to mask, put me in danger. I understand that masking is draining and really harmful overtime, but also...check your privilege.

[cassadyflies]

My brother is a level 2 and I am a level 1. And this is so so so true. Really, the main difference between me and my brother is my ability to mask. Because of this ability, I am able to be more independent, manage basic daily interactions like grocery shopping, and handling my own medical needs. Does it take a toll? Yes. Of course. But here’s the thing, my non-masking brother is BRILLIANTLY SMART. I cannot emphasize that enough, the guy is too smart for his own good. But nobody recognizes this in him, because all they see are his autistic traits. They don’t appreciate him for the smart, kind, empathetic, interesting, amazing human he is. (And he is also often an ASS don’t get me wrong he’s still my annoying lil brother haha) This can make his life actually dangerous. I have had to protect him from police harassment. From bullying and abuse from all kinds of authority. My fellow level ones: we need to learn to unmask when it’s damaging. But we also need to understand that it is a valuable skill and a tool of self-preservation. Masking doesn’t make us less valid as autistic people or disabled people, but it does mean we have a responsibility to our low/non masking siblings to make this world more accessible for all of us, and stand alongside them as we all fight for our right to be ourselves.

[quackwoof]

This is a beautiful response and very accurate

[quackwoof]

Hello. I’d like to make a distinction/PSA. I see a lot of people talk about how “lucky” level 2-3 autistics are to “not have to mask”. This is so far from the truth. Not only is this not true, it is not some luxury or anything lucky. I feel like people forget that while masking is damaging, it can also be extremely important safety wise. People who are unable to mask are at risk for a lot of danger. I personally have been in situations where not being able to mask, put me in danger. I understand that masking is draining and really harmful overtime, but also...check your privilege.

[quackwoof]

I see people say that they are proud of their autism a lot. Which is great. I would wish that everyone is at peace with who they are.

But it’s something I can’t relate to at all. And it’s not because I am ashamed of my autism, because I’m definitely not. It’s just a fact in my life, not proud of it and not ashamed. I just am autistic.

Autism is my disability, nothing more and nothing less. I actually tend to hate my autism more than anything because of the challenges it brings. But overall my take on it is just neutral

[quackwoof]

Update: i was hospitalized for 13 days

I got home from the hospital today and I’m looking through my discharge notes.

The doctors describe my autism as “severe and progressing”.

And I got put on new meds, so now I take lots of meds again

I am hopeful

[quackwoof]

It’s Ehlers Danlos Syndrome awareness month.

Oh, how I’d love to be unaware.

[quackwoof]

are able post close picture of mood, basic communication, and/or activity option boards? wanting do similar but have trouble since most options aim at toddler age

Here are some of the visuals and strategies I use

[quackwoof]

hiii i saw a post you made last month that featured a photo of a wiggle seat. how do you use it and what does it help with? i'm thinking of getting one.

Hello!

I use my wiggle seat as a way to regulate and sometimes ground myself. I often use it on my feet and when I am sitting and need to stay seated. I am a sensory seeker and I crave certain sensory input, the wiggle seat gives me that input so I can stay focused for longer instead of being distracted by my sensory needs. I also find kick bands/chair bands to be helpful!

[quackwoof]

Facial blindness is wild.

I just walked Into a mirror and startled myself because I thought it was someone else walking into me.

[quackwoof]

Things my physical therapist has said to me that I find funny:

- “oh my god. I had to run across the clinic because I saw you falling in slow motion”

- “I’m going to shut my mouth because every time I’m about to say you’re doing good, you fall”

- *discharging another patient* “well, at least we know *my name* will be stuck with us for a while”

- *me giving him the “I don’t want to do this” face* him: “hey, it’s my degree, professional torturer” (PT=professional torture lol)

[quackwoof]

Recently, I have been on a mission to dress more my age and I noticed that people are (even more) confused at my existence in public? I usually dress in sensory safe clothing that happens to be childish. but when I wear “adult clothes” I get more stares than usual. I think if I “pass” as a kid/teen, people expect my behavior but when I look like an adult, people don’t expect it. So, if you see a woman (or an adult in general) throwing herself around, flapping, jumping,yelling, etc., be reminded that autism does not go away after age 18 👍 visibly autistic adults exist 🤯

[quackwoof]

Hello tumblr, I’m back

I see you have changed the layout…

🙃

[quackwoof]

Christmas trees makes me happy 🎄