Meme me up, Scotty @scoliosismeme - Tumblr Blog

autism "i need my routine and the routine was already ignored yesterday" vs chronic pain/disability "good fucking luck dude. you got no bones today"

prettyboychik

ur allowed to be sad/angry/scared/frustrated/bitter/etc about your physical disability btw. About not being able to do stuff u once could. About pain, fatigue, brain fog, other symptoms getting worse. About the loss.

U dont have to be an inspiration or be Tough about it all the time or even ever. Ur allowed to feel what u feel. Don't have to buy into "blessing in disguise" narrative. Don't have to go "well I'm not me without it" if thats not ur reality/experience. It's allowed to just suck and ur allowed to not want it and wish you didn't have it and wish there was a cure. Ur allowed to hate it and ur allowed to feel trapped in ur body.

You don't have to shut those feelings away and deny they exist just bc it's not how you "should be feeling".

[This is about physical disabilities specifically. If it resonates w/ u about a non physical disability that's great but please don't derail. Thank you 💛]

hihiitscai

Truly insane to me that some people are in absolutely zero pain on a day to day basis. Like?? How does your body do that please give me the secret

wizario11

Just a reminder that disabled people can be just as ableist as non disabled people. So please check yourself on your biases as I will check on mine. Also it's always good to follow people who have different disabilities than you. That way we can educate ourselves on issues within our community.

hiemalice

i think every physically disabled person should get 200 dollar whenever someone suggests exercising more btw

spacelazarwolf

$500 if they’re also fat and ppl think losing weight will make our disability magically disappear.

nebulow

It almost seems like non-disabled people have a harder time accepting when a chronically disabled person will never get better - and maybe even deteriorate over time, than the affected person has.

"Aww don't lose hope"

There is no hope to be had? Stop pushing your toxic positivity down my throat when I have come to terms with my situation and am grieving already.

Losing hope is what has given me an ounce of peace of mind. This is what life is now. It's not your grief, it's mine.

only-knives

it's not a moral failing if you're fat and it harms your health. your fatness doesn't make your disability or illness your fault. the quality of your health does not make you flawed. it doesn't define who you are.

you are a whole person, and your fatness and health concerns are morally neutral. they're natural.

cowboystokes

i really hate when we r like can we please stop the trend of disabled characters magically being Cured as this like amazing plot point or ending n people are like “SO YOU WANT THEM TO STAY SUFFERING?” no i just want some accurate representation without it feeling like my disability is being rubbed in my face because a cure doesn’t fucking exist irl. “it’s fantasy” it’s inspiration porn u fuckin weirdos.

why do u hate disabled people being disabled why do you feel like we all need curing?? you know we can be happy right? we can live full, joyous lives! disabled characters don’t need to me cured to be fulfilled!!!!!

some of u need to just admit that seeing disabled characters Be Disabled scares u. like u need to see us cured and able bodied miraculously because u don’t like the actual truth about being disabled because u know u can become One of Us at any moment.

stop trying to make us palatable for your own comfort u weirdos !!! i fucking hate The Disabled Character is cured and it’s a miracle!!!

it is literally just..inspiration porn idk how people can’t see that. it’s so fucking blatant

ratgirl-mcsqueakers

That chronic pain feeling when you finally lay on your back.

cannibal-dogboy

More disabled people need to be using mobility aids fr. I hear so many ppl talk about chronic knee and back pain who don't use mobility aids because they're worried they aren't in enough pain, don't want to take up too much space, don't want to get looks, etc. Bitch you are worth it. You deserve it. You deserve to feel more comfortable in your day to day life. Besides, mobility aids kick ass and every time I see someone else my age with a cane I feel immeasurable joy.

butchbyte

also tip if you are even considering a mobility device, check out shower chairs. exact same reasoning. changed my life. you do not have to sit all the time either just like mobility devices, you can alternate sitting and standing if u want.

myalgicencephalomyelitiscfstom

PT=Physical Therapy

chronicallytiredofeverything

The problem with being chronically ill is that when you become more sick, with more symptoms, people do not understand why its so upsetting.

"But weren't you in pain before?". Yes but this is a new pain that I haven't dealt with before.

"I thought you already had stomach problems?". Yes but this is a new symptom of it that scares me.

"Arent you used to this by now?". No, and I never will be.

Symptoms that have been had for months or years are hard enough to manage in the first place. Developing a new one is scary, and trying to find ways to cope while still juggling everything else is even more so. We are allowed to be upset at our symptoms progressing. It doesn't mean it wasn't bad before. It just means now its bad in another way we arent familiar with. And that sucks.

talkethtothehandeth-deactivated

Here’s a reminder that you’re allowed to ask for a second, even a third, opinion about your health condition(s).

Another reminder is that you wanting the best for your health care is not the equivalent of “doctor shopping”.

I’m going to ask for one when I see my pcp next. The arthritis doctor — who said he originally wasn’t going to take my case— I went to (Eric Palfreymen) took one blood test and told me there was nothing more he could do because my markers weren’t up to his standards.

It was very difficult to be searching for answers only to be turned away again. You are allowed to advocate for yourself. It does not make you pushy. You are allowed to talk about the symptoms you’ve looked up, it does not mean you’re “playing doctor”.

Don’t let ableds decide when you should or shouldn’t take care of yourself. That’s your choice.

You have "meme me up, Scotty" as your account name so I don't know if you're a fan of Star Trek but have you heard about the theory that Will Riker has scoliosis based off of the actor's back injury? (That theory is something that's given me a lot of encouragement as someone with scoliosis)

I'm not a Star Trek fan, so I haven't heard of it, but that's awesome! I'll have to read into that!