JBB: An Artblog!
Claire Keane
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YOU ARE THE REASON
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@theartofmadeline
Cosmic Funnies
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$LAYYYTER
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@shinyemikyu
actually fucking disgusting that glasses cost any money like if you actually think about it for more than a few seconds it is so unconscionably inhumane. this goes for things like insulin and mobility aids and hearing aids too ofc but fuck man, fucking glasses? the thing you need to fucking see? its genuinely sickening and inhumanly evil that those cost ANYTHING.
sexism in medicine kills people. racism in medicine kills people. fatphobia in medicine kills people. queerphobia in medicine kills people. classism in medicine kills people. ableism in medicine kills people.
do not downplay people’s fears about being mistreated because they are a part of a marginalised group. it is a matter of life and death and you should be angry about it.
Next time you consider telling a disabled person they just need to advocate better for themselves and that will get them better care, please consider the following action instead: blissful silence, perhaps even some type of empathic response acknowledging their medical neglect.
And if you really feel like self advocasy is the solution then please accompany said disabled person to their next apointment to witness how effective self advocating is. (Might give skewed results considering you are not the patient and it is no longer self advocasy by defenition, but might have the possible benefit of getting the disabled person to be taken seriously for once)
This was popular when I shared it initially so thought I would re-share it
"What is ME/CFS?": 4-page factsheet created by members of the Science for ME Forum (February 2025)
Takes a conservative approach e.g. with regard to prevalence.
Anyone else ever get irrationally angry/frustrated by sensations? I don’t mean inherently unpleasant sensations, just the fact that you have a nervous system that works and perceives things. There is always something on my skin - hair, clothes, air, whatever - and some days I just can’t take having a goddamn ENVIRONMENT around me all the time!
Hi! Just a genuine question, I was curious as to why you dislike the Rainbow Fish?
Because Rainbow Fish can be retold like this:
A fish has a part of their body - their physical, incarnate body, what they were born with - that makes them very happy and that they are very proud of. They also have an unfortunate habit of thinking that they are better than other fish. That part isn’t good, and causes the other fish to be unhappy with them and avoid them.
The fish is now very sad. The only person who likes the fish anymore tells him to go to the octopus, the animal framed as the adult in the story.
The octopus tells the rainbow fish that they have been a snotty jerk and that the only way to make people like them again is to take off their scales and give them away. That in order to have any friends and make up for their behaviour, they have to rip off pieces of their own body and self and give them away to other people to make the other people happy and make up for their transgressions.
And the rainbow fish is upset. And then another fish comes and asks them for a scale. And the rainbow fish takes off a piece of themself, their body, the thing they were born into, and gives it away. And now that fish likes him, and is materially benefitted by this piece of another fish’s actual body that has been given to it.
And then the other fish come, and the rainbow fish rips off more parts of its body - all of the parts that used to make it happy and that it was proud of - and gives them to the other fish, because it’s not fair that the rainbow fish’s body was so much nicer. And when the rainbow fish has ripped all but one scale off, tearing out of themself all but one of the things that they possessed in their self that made them happy, then all the fish are friends with them! And everything is great! And everyone has a fair share.
Of the rainbow fish’s, and I do quite mean to keep hammering this point, own body.
What the book says is:
1. if you are born with something nice - like, for instance, an attractive body or a clever mind or a talent or whatever - and it makes you happy and proud, you are a horrible person and deserve to be shunned. Absolutely no line is ever drawn between Rainbow Fish’s self, their actual own body, and their behaviour. In reality, it’s their behaviour that’s the problem: they are mean and aloof to the other fish. This could be the case whether or not their body was all covered with magnificent scales. However, the book absolutely conflates the two: their behaviour is framed as a natural and unavoidable outcome of being happy about and proud of their special, beautiful body. So don’t you dare ever be happy or proud of anything you have or can do that everyone else doesn’t have exactly the same amount as, because if you do, you are horrible and by definition snotty, stuck up and mean.
2. That in order to make up for the transgression of having something about your actual self that makes you happy and proud (which, remember, has automatically made you selfish and snobby, because that’s what happens), you must rip pieces of what makes you happy out of yourself and give them to other people for the asking, and you must never ever EVER have more of that part of - again, I hate to belabour except I don’t - your self than other people have, and that makes you a good person that people like and who deserves friends.
To summarize, then: to be a good person you must never have something about yourself that makes you happy and proud and if you happen to be born with that something you must absolutely find a way to give it away to other people and remove it from yourself, right up to tearing off pieces of your body, in order to be a good person who deserves friends.
This, I am absolutely sure, is not what the author intended: the author definitely meant it to be a story about sharing versus not sharing. But the author then used, as their allegory/metaphor, the fish’s own actual body. Their self. It was not about sharing shiny rocks that the rainbow fish had gathered up for himself. It wasn’t even about the fish teaching other fish how to do something, or where to find something.
The metaphor/allegory used is the fish’s literal. body. And so the message is: other people have rights to you. Other people have the right to demand you, yourself, your body, pieces of you, in a way that makes absolutely sure that you have no more of anything about your body and self that is considered “good” than they do.
And that might just suck a little bit except, hah, so: Gifted adult, here. Identified as a Gifted child.
This is what Gifted children are told, constantly. All the fucking time.
(Okay, I overstate. I am sure - at least I fucking HOPE - that particularly by this time there are Gifted children coming to adulthood who did not run into this pathology over and over and over and over again. I haven’t met any of them, though, and I have met a lot of Gifted adults who were identified as Gifted as children.)
Instead of being told what’s actually a problem with our behaviour (that we’re being mean, or controlling, or putting other people down), or - heavens forfend - the other children being told that us being better at something doesn’t actually mean moral superiority and is totally okay and not something we should be attacked for, we are told: they’re jealous of you. That’s the problem.
Instead of being taught any way to be happy about our accomplishments and talents that does not also stop the talents and accomplishments of other children - whatever those are! - from being celebrated, we are left with two choices: to be pleased with what we can do, or what we are, or to never, ever make anyone feel bad by being able to do things they can’t. And the first option also comes with two options: either you really ARE superior to them because you have skills, abilities and talents they don’t (or are prettier), or you are a HORRIBLE stuck up monster for feeling that way.
(It is not uncommon for Gifted kids to chose either side, which means it’s not uncommon for them to choose “okay fine I really AM better than you”; this can often be summarized as “intent on sticking their noses in the air because everyone else is intent on rubbing them in the dirt”; on the other hand I have met a lot of Gifted women, particularly*, who cannot actually contemplate the idea of being Gifted because to do so is to immediately imply that they are somehow of more moral or human worth than someone else and this means they are HORRIBLE HORRIBLE SELFISH PEOPLE, and so will find literally any reason at all that their accomplishments are not accomplishments or that they don’t deserve anything for them.)
Instead of being given any kind of autonomy or ownership of ourselves, we are loaded down by other people’s expectations: we are told that because we can accomplish more we must, and that daring not to do what other people want to the extent that they want with what we are capable of we are selfish, slackers, lazy, whatever. We are taught that we owe other people - our parents, our friends, even The World - excellence, the very best we can possibly do, and trust me when I say people are ALWAYS insisting We Could Do Better. And we should, or else we will be disappointing them, or letting them down, because (because we are Gifted) the only reason we could possibly be failing is not trying hard enough.
We are, in fact, told over and over and over and over again, to rip off pieces of ourselves to give to other people to make them happy, because those pieces are valuable, but forbidden from enjoying the value of those pieces - pieces of our selves - for our own sake because that would be selfish and arrogant. And we owe this, because we were born a particular way.
Because, metaphorically, we were born with rainbow scales, so now we have to rip off those rainbow scales in the name of Sharing, and otherwise we are selfish and horrible and deserve to be alone.**
That is why I fucking hate The Rainbow Fish.
Because whatever the author INTENDED, the metaphor they chose, the allegory they picked, means that THAT is the story they actually told. (And is the story that child after child after child after child I have encountered actually takes from it.) I don’t hate the author; I’m not even mad at them. But I do hate the book with a fiery passion, and it is among the books I will literally rip apart rather than allow in my house when I have kids, because I’m not going to give it to anyone ELSE’s kid either.
*but, I would like to note, not UNIQUELY: this is something I encounter in Gifted men as well.
**I can’t remember who it was, in relation to this, put forward the thought: if people actually talked about the access and use of children’s bodies the way we talk about access to and use of Gifted children’s minds and talents†, the abusiveness would be absolutely clear? But they’re right.
†because sometimes it is Gifted children’s bodies in an abstract way, in that its their talent for gymnastics or their talent for ballet or sport or whatever, so I mean in a very raw way, the actual physical embodied flesh we are.
Some concrete examples off the top of my head, in case anyone has managed to never see this play out:
Requiring gifted children to assist their peers, at the expense of downtime, working on a passion project, or in some cases even their own regular school work
Pressure to find a way to solve Very Big Problems - it is not uncommon for gifted kids to be told straight out that they are supposed to grow up to cure cancer or save the rainforests
Pressure to go into STEM fields because that’s where the Useful Work That Smart People Do is
Pressure to choose and commit to a career path very early (like third grade), dabbling or shifting interests treated as unethically wasting potential
Denial of acceleration (i.e. a developmentally appropriate education) because it wouldn’t be fair to other students (who are already receiving a developmentally appropriate education)
Denial of accommodation for gifted children with learning disabilities (i.e. a developmentally appropriate education) because LDs are seen as balancing out what would otherwise be an unfair advantage
Expectation of adultlike emotional regulation, expectation to help peers and even adults regulate themselves
Pressure towards single-sport for athletically gifted student athletes, despite increased injury risk and actually being detrimental to performance, on a similar theme to the fourth point
Treatment of gifted education as at odds with other types of special education, proposals for gifted education programs (even full grade acceleration, which costs negative money) shot down on the basis that we should be doing more for DD/ID kids instead of helping kids who are already inclined to excel academically
Presumption that gifted kids are deficient in SEL and moral reasoning, constant scrutiny and tests to verify this presumption
Not telling gifted kids they’re gifted, so that they will not become lazy or stuck up, still doing all the above but never explaining why
Expecting gifted children to provide emotional labor to adults by listening to their objections and soothing their anxieties about giftedness and gifted education (I heard the story about that kid who graduated Harvard at 15 or whatever and then killed himself at least two dozen times as a child, none of them voluntarily)
Treating giftedness as something that, because it cannot directly be given away, requires gifted children to give away more of other things: time, labor, treats, personal belongings
Strict denial of praise or validation - the gifted child already has more than they deserve, they don’t deserve to feel safe, successful, or appreciated on top of it, that would be unfair, and in any case they’re in constant danger of becoming conceited, which must be prevented at all costs
Anyway I’m a writer because my third grade teacher accidentally let slip that my second grade teacher had said I was a good writer and that was the only time an adult told me I was good at anything until I was twelve and got a letter from the Johns Hopkins Center for Talented Youth saying my 6th grade grade level test scores were high enough that they wanted me to take the SAT in 7th grade to see if I qualified for some kind of award.
So it’s been nine years since I made this post (yes violent-darts is my old tumblr), and mostly I have just sort of orphaned it to go where it will, but these examples are so excellent that I needed to reblog here.
I will add: I’ve used “Gifted” here because it is the understood term, still; because I still don’t have another that I wouldn’t have to spend way too much time explaining FIRST before I could talk about anything.
But Giftedness is a “gift” the way Autism or ADHD is a superpower: it isn’t, and there’s so many bad assumptions baked into that frame that is a Problem. “Giftedness” is just another neurotype and another variation on how human brains intake stimulus and information, systematize and ultimately process it. That’s all.
There’s also things like Denial of accommodation due to the belief by parents/teachers that a learning disability or other issue isn’t actually something the child has, because the child is too smart/capable and has not noticeably struggled to a certain point.
Which then leads to things like the child starting to struggle instead of excelling as usual, due to their ignored disability and never having been taught how to handle it or treated in a way that helps support them, and being told over and over that they’re just not trying hard enough and they’re not “living up to their potential”, until they burn out entirely and then hear nothing about how they “wasted their potential” after that.
…not speaking from experience or anything (sarcasm).
YouTube made AI enhancements to videos without telling users or asking permission. As AI quietly mediates our world, what happens to our sha
"It turns out, he wasn't. In recent months, YouTube has secretly used artificial intelligence (AI) to tweak people's videos without letting them know or asking permission. Wrinkles in shirts seem more defined. Skin is sharper in some places and smoother in others. Pay close attention to ears, and you may notice them warp. These changes are small, barely visible without a side-by-side comparison. Yet some disturbed YouTubers say it gives their content a subtle and unwelcome AI-generated feeling.
There's a larger trend at play. A growing share of reality is pre-processed by AI before it reaches us. Eventually, the question won't be whether you can tell the difference, but whether it's eroding our ties to the world around us."
1. What happened YouTube admitted it’s been running AI processing on some Shorts — sharpening, denoising, smoothing — without asking permission. Creators noticed their own faces looked subtly “off,” like they were wearing AI makeup. And the altered version is what the audience sees.
2. Why this crosses a line
Ownership: Your video is your work. Your face is your image. When YouTube silently rewrites it, they are asserting that they—not you—own how you appear on their platform.
Trust: Creators like Rick Beato and Rhett Shull rely on authenticity. If the platform itself tampers with that, it erodes the bond between creator and audience.
Consent: On your phone, you can toggle filters. On YouTube, you aren’t asked. That’s the difference between a tool you control and a platform that controls you.
Reality creep: These changes seem tiny, but they normalize the idea that media is always pre-processed. Once you accept that, the very expectation of “realness” starts to vanish.
3. Why YouTube thinks they can do this
Most people won’t notice.
Those who do notice won’t leave; there’s no real competition at YouTube’s scale.
With bigger global crises, this feels too trivial to fight. They know apathy and exhaustion keep most people quiet.
4. The deeper problem This isn’t about whether a shirt wrinkle looks sharper. It’s about power. YouTube doesn’t see itself as a neutral distributor of your work. It sees itself as the author of the experience, with full rights to “optimize” your content however it likes. Creators are just raw material. That’s why they didn’t ask: asking implies you could say no.
5. What can be done
Raise awareness. The only reason this surfaced was because creators with big audiences noticed. Keep amplifying it.
Demand control. A mandatory opt-out is the minimum. YouTube must not alter identity without consent.
Diversify. Explore Nebula, PeerTube, even Patreon-hosted video. Every bit of independence reduces monopoly leverage.
Frame the stakes. This isn’t “just a filter.” It’s a question of who owns your image, your work, your voice. If we concede that to the platform, we’ll lose the last trace of authenticity online.
6. The bottom line Google once said “Don’t be evil.” Now the motto is closer to “Don’t get caught.” They’re not testing video quality — they’re testing how much tampering people will tolerate before they resist. And if there’s no resistance, the platform’s ownership over your reality becomes the default.
yeah no they're 100% doing this to get people used to how ai looks to make us worse at spotting ai
Emil Bove is a dishonest MAGA operative.
No morals. No ethics. No integrity.
Slava Ukraine
some of yous don't recognise ableism as long as it's veiled in pity
"they believe this group of disabled people". "they would care about someone who's got this disability". "people take this type of disability seriously". no, no they don't. pity isn't caring. a concession granted from up on high isn't respect. seeing someone as poor, pitiful, or in need of help isn't taking them seriously. bro they are not even seeing us as human
Wait what's a buildings fire evacuation plan if you aren't supposed to use the elevator to get down
You go down the stairwell/fire escape. Is that weird?
But what if you have a walker or a wheelchair??
in america at least, in this situation, there isnt one. either your loved ones or the firemen can get you out using the emergency fire escapes or stairs, or you die
That's fucking horrific, thank you
“fun” little story:
last summer my friend who is an amazingly talented artist and i were in this super tall building, and she’s in a wheelchair and i’m pushing her around the room. it’s an art exhibit and some of her art was chosen to be showcased there and so it’s all fine and dandy until suddenly an alarm starts going off
a FIRE ALARM
everyone starts running for the stairs and my friend just looks at me with this forlorn look on her face
“i can’t go down the stairs”
but i’m a stubborn bitch “i’ll carry you”
“what about my chair? it’s too expensive for me to be able to get another one if i can’t get this one back”
“i’ll carry that too”
and i did. we went to the stairs (by then most people from our floor were gone) and i lifted her up in a fireman’s carry over my shoulder and then lifted her chair up and used the ridiculous amount of adrenaline that was coursing through my veins to make it down approximately 20 half-flights of stairs until we met some people exiting lower floors, one of which who kindly took the chair. I changed positions so i was holding my friend bridal-style which was, somehow, easier and the person who took her wheelchair (with her permission to handle it of course) accompanied me to the ground floor and then out the doors
basically there is no real protocol for people who can’t use the stairs in an emergency. it’s up to the people with them, if anyone, to help them or the person to somehow make it down the stairs alone, unassisted
thank fuck that it was just a faulty alarm system, because if i was unable to carry her down those stairs and the building was on fucking fire???? then i don’t know what would have happened to her, but i don’t think it would have been very good.
it’s fucking ridiculous and ableist to the absolute max.
I use a cane. When I did a day-long fire safety training at my northeast American university (UMass Amherst), I asked that exact same question: “what am I supposed to do if the fire alarm goes off and I’m in my lab on the twelfth floor?”
the fire marshal hemmed and hawed for a while and then said to take the elevator- you’re supposed to leave it free for the fire department to use and they want able-bodied people out fast not waiting for elevators. if the fire alarm has just gone off the building probably hasn’t suffered enough structural damage to make using the elevator dangerous, and modern elevator wells are heavily reinforced. many large and high-trafficked buildings on my campus have fire rated elevators that link in with the fire alarm system so they won’t let you off on a floor with a possible fire.
if the elevator isn’t working, wait in the stairwell and call the fire department to let them know where you are. modern stairwells are also heavily reinforced- it might not be pleasant but modern building code usually requires fire-resistant stairwell doors in office and big residential buildings, also to help firefighters get in and out safely. older buildings’ stairwells may or may not be retrofitted with fire-resistant doors but a stairwell is generally the safest place to wait if you can’t get out.
what happened to your friend was horrible, and i’m very glad you were there to help her out, but you can absolutely use the elevator to evacuate if it’s not shut down. those don’t-use-the-elevator rules are for abled people.
This is GOOD TO KNOW. why do they not tell people this??
Okay, firefighter here. If you are not physically able to use the stairs, and the elevator is NOT compromised, use the elevator. But you MUST be ABSOLUTELY CERTAIN that the elevator is NOT compromised before you get into it, because there is always the chance that once you get into it, you may not exit it. Power could go out. The elevator may actually BE compromised and you just couldn’t tell from where you were until you were in there, and it suddenly shuts down on you. Something else could happen.
Understand that once you enter the elevator, you could POTENTIALLY be taking your life into your hands there.
It is NOT LIKELY, to be perfectly honest. It’s only in a pretty catastrophic scenario - think the Twin Towers, USA, on September 11th - that the elevators will be compromised and out of service. But there is a NOT ZERO PERCENT CHANCE and you need to understand that and accept it.
As for leaving the elevators free for the firefighters, okay, here’s the deal. Unless your nearest fire station is literally right next door? Your first on scene fire truck is NOT likely to be there on scene and needing that elevator before you get to the ground. It takes us TIME to find the address, gear up, and drive to the building. Then we need to hoof it into where the elevators even ARE, so YOU HAVE TIME to use the elevator to get down to the ground floor... BUT ONLY IF THERE’S NOT A RUSH ON THE ELEVATOR! And THAT is WHY we don’t tell people this shit. That’s WHY we tell people to NEVER USE THE ELEVATOR... because every self-entitled asshole will use it because they don’t feel like walking, and then put YOU in danger by delaying the elevator’s arrival to you.
IF, however, the elevator IS compromised, or you just can’t get it to come for you, or whatever, and you either don’t have anyone with you who has the adrenaline fueled BALLS to be able to toss you over their shoulder and hoof it down the stairs with you - because, let’s face it, that is RARE AS FUCK, then HERE IS WHAT YOU DO:
You call 911 and tell the call taker that you are in the building that has a fire alarm going off, and you are not able to evacuate because of a physical disability, and you tell them what floor you are on, and EXACTLY what stairwell you are waiting at. And the very FIRST thing that the firefighters are going to do once they arrive, if it is, indeed, a REAL emergency, and not a false alarm, is come get your ass and bring you down. Whether that means carrying you down the stairs, or whether that means locking out the elevators so that no one else can override them and coming to get you themselves, they WILL come get you FIRST THING if it is a real event. And if it is a false alarm? You will probably be the first person who is not involved with the building to know, because the call-taker is going to stay on the line with you until you are under someone’s care and out of danger, or until the scene has been sorted out as real or false, and you are out of danger that way.
These are pretty standard operations in the fire service throughout the United States. There may be some minor variations based on specific municipalities, but, for the most part, this is pretty typical: LIFE BEFORE PROPERTY. So, as long as SOMEONE knows where you are - hence why you call 911 - Firefighters will come get you. You are NOT alone, and you have NOT been abandoned. I PROMISE. It’s like, our whole reason for doing the shit we do: to save lives and to break shit. Sometimes, we get lucky enough to do both at the same time.
High rise fires suck ass, and I always hated them. But the very FIRST thing I asked anytime we got one was if we had “any entrapments” - which is what we call anyone who could not self-evacuate for ANY reason. We ain’t leaving you behind. And yes, your friend who doesn’t have the stamina to carry you down can stay with you, too. Because I would never ask that of someone, honestly.
Also, just a little FYI... MOST fire alarms are false alarms. Not to make anyone complacent or anything, but, yeah. Most of them are either system malfunctions, someone accidentally hit a pull station, or someone burned popcorn in a break room. So don’t let a fire alarm freak you out until you need it to - by smelling or seeing smoke or flames.
i have had multiple nightmares about this very thing because NOBODY BOTHERS TO ACTUALLY TELL WHEELCHAIR USERS THIS STUFF
Tonight House Republicans voted 217 to 215 for a budget that'll take $1 TRILLION dollars from Medicaid, attack food benefits for kids, hurt seniors and vets.
but I don't want to talk about that, I want to talk about these two Democratic members of Congress you've never ever heard of.
Democrats, Congressman Kevin Mullin of California and Congresswoman Brittany Pettersen of Colorado.
Congressman Mullin had knee surgery that didn't go well, two surgeries, a life threatening blood clot and a week long stay in the hospital, and the moment he was discharged from the hospital he got on a five hour flight to DC to vote against the Republicans evil budget, using a walker to get to the floor of the House
Congresswoman Pettersen gave birth to her son Sam, in the picture, exactly one month ago on January 25th. They flew from Colorado to DC after Republicans refused to allow her to vote by proxy after having a baby. Congresswoman Pettersen took Sam onto the floor of the House to vote to protect the Health care of 400,000 Colorado kids.
why talk about this? because so much of the conversion is about telling people there's no one good, no one worthy, no one fighting. I promise you there are people undergoing personal hardship to do the right thing.
Exactly. The cowards are afraid, and we know it.
let me tell you this, person with ME/CFS or long covid:
the day after you really exceeded your energy limits, you are probably gonna feel OK. maybe a little tired, but little enough that you think, maybe you got away with it. But, its a trick. In a few days is when the crash will actually hit, and it will only be worse if you don’t take precaution asap.
It’s super important, since we can’t always avoid exertion, to try your best to 1. incorporate rest into normal activity. take several days to do one chore, its not illegal. and 2. always rest before you feel like you need to, especially if you’ve had particularly active days recently.
The reason behind this is stress hormones. When your adrenaline goes up, you will feel more capable than you actually are. In stressful situations (stress meaning intense, it can be a positive situation like a vacation), you might be able to go for days and feel ok and not have a crash.
This does not mean you are better. Or that you were faking. It does not mean that activity is safe.
Once the hormones are out of your system, then you'll experience the PEM (post exertional malaise). It's generally recognized that PEM kicks in 1-3 days after the stressful activity. If you extend the activity by doing more, the PEM will be worse.
i've referred to this in my own case as the Delayed Drop. Not the day after a thing but the day after THAT is when I may crash and need to go right to "bed rest". (quotes are cuz there is no one going to come make me food and stuff; bed rest just means staying in bed a lot of the day not all of it)
