sick/tired @stillaskrull - Tumblr Blog

still alive, just busy being ill

u don't know pressure sores until u have one in every single quadrant of ur butt

#sitting tolerance #im dying #there is no non-excruciating position #trying 2 explain complex seating needs 2 able bodieds is hilarious #is such a foreign concept to them #unprofessionally sick

my right leg hurts so much it's transcended pain and rocketed to new heights of... something. every time I raise my arms above my head or sit up I get tunnel vision. i want to be crying and screaming but that would hurt too much so I'm just sitting quietly because I don't have any options.

#give me medical weed #I feel like I'm dying #can't go to the hospital for pain #venting

~liberal~ friends on fb are like “nobody is talking about taking away ALL the guns, we just want more reasonable blah blah blah meet in the middle blah” and im like ME!!!! I AM HERE!!!!! TO TAKE AWAY ALLLLLL OF YOUR GUNS! I AM A GUN CONSUMING MONSTER!!!!!! GET!!! RID!!! OF THE GUNS!!!!!!

#political tag #fuck liberals #fuck em forever #i dont want to meet in the middle #nobody needs guns!!!!!

stillaskrull

I finally got my new back brace, after a massive rigamarole and it’s SO UNCOMFORTABLE. It’s like they never even considered that someone wearing this might have a waist, so it’s kind of like a waist cincher in format except it’s PERFECTLY STRAIGHT ON THE SIDES. fucking NOTHING is made for women or chubby ppl or really anyone who isn’t a skinny/medium cis dude and. it’s awful.

stillaskrull

my doctor wanted me to have something flexible, with compression, but the orthotics and prosthetics company were like “oh, well, insurance won’t cover anything with elastic because you can just buy it off the rack” and lllllike... yes.... but like insurance covers a LOT of other things that you can just buy! You can just buy glasses. You can just buy most durable medical equipment. You can just buy otc meds, but if i have a prescription for them my insurance will cover them. It’s completely fucking bonkers logic!

like I know a lot of people don’t have coverage for vision or DME (i certainly have not always) but i have medicaid and it DOES COVER all the things i listed? but not an orthosis with elastic. because reasons.

i broke down and bought one on amazon that wasn’t that expensive, but also, I don’t have a lot of money. i hate insurance! I hate the whole concept! i should have medical care because i am a human being, we all should, we should not have to grovel and scrape to corporations/the government/both. fuck everything

#unprofessionally sick #i hate!!!! america!!!!!!#garbage healthcare system #the government would prefer if i rolled over and died

I finally got my new back brace, after a massive rigamarole and it’s SO UNCOMFORTABLE. It’s like they never even considered that someone wearing this might have a waist, so it’s kind of like a waist cincher in format except it’s PERFECTLY STRAIGHT ON THE SIDES. fucking NOTHING is made for women or chubby ppl or really anyone who isn’t a skinny/medium cis dude and. it’s awful.

#unprofessionally sick

I can tell my mysterious spinal problem is slightly improved rn because I'm in so much pain

cool

#i did not mean to fancyfont but i cbf to fix it #unprofessionally sick

uggghhhh when is my POTS bad enough for me to get a port and infusions???? i cant fucking absorb water properly and im going tachy if i move my legs while sitting but doctors are so like OH!!! NO!!!! if we give u ASSISTIVE TECHNOLOGY then you will RELY on it!!!! AND THEN U WILL LOSE YOUR ABILITY TO FUNCTION NORMALLY!!!

tl;dr fuck all doctors

#unprofessionally sick #the dysautonomia is just fucking kicking my ass and im so. miserable.

okayneat liked your post:i love going out w other disabled friends because...

sorry 4 cheating on you with another B

#okayneat

i love going out w other disabled friends because we can totally use each other as outs??? like. i was with my friend B and someone wouldnt stop asking her questions abt her service dog and i was like HEY B I NEED HELP OVER HERE and the guy was like “oh no she has to help wheelchair girl ok bye puppy”

like people are going to assume we’re all incompetent anyway so i might as well use my powers of appearing totally helpless to get my friend out of a really awkward situation? bc sometimes you don’t have the energy to be like “stop following me thru the craft store asking me about my dog”

#for real though #sometimes you are just fucking tired of educating people #so you put up with some bullshit #and then sometimes you're really tired of bullshit #and thats what made up friend excuses are for