I talked to my dietitian from home care yesterday, and she’s very concerned about my food and fluid intake, and how they’re both so low due to not being able to get things and keep things down. She wants to open the discussion with my doctor about a possible feeding tube (I think an NJ is what she has in mind) as I wait for my internal medicine appointment.
I don’t have a problem with the feeding tube itself, I think I’d benefit a lot from it. My problem lies in the fact that while parts of my disability are very visible, my illnesses are not, and having it become that visible takes something away from me that I might need. My illnesses are mine, I can keep them hidden, tucked away for only my eyes, least I decide to show someone else, but with this, I lose that.

















