#aarda

[spooniestrong]

So honored to be part of this! 💙🥄

Stay tuned for more details!

[eloquence-of-felicities]

Hiatus Blues? A session of Bathroom Therapy with Emily Bett is what you need!

[theglutenfreezookeeper]

March is National Autoimmune Awareness Month! "During March, AARDA hopes to educate the public on the top five things everyone should know about autoimmune disease: (1) 50 Million Americans have an autoimmune disease, comprising a major U.S. health crisis. (2) There are 100+ autoimmune diseases including Crohn's disease, celiac disease, rheumatoid arthritis, vasculitis, and Addison's disease. (3) Autoimmune diseases "cluster" in families; for example, if your grandmother had lupus, you could be at greater risk for developing an autoimmune disease. (4) Fewer than 13% of Americans can name an autoimmune disease. (5) Autoimmune diseases target women 75% more often than men; and combined, autoimmune diseases are one of the top ten killers of women under the age of 65." #CeliacDisease and #SjogrensSyndrome are the two main #autoimmunediseases I happen to have acquired over the years. Thank you #AARDA (@autoimmune_diseases) for all the helping to educate the public at large on this subject. #autoimmunewarrior #autoimmuneawareness #autoimmunediseaseawareness #autoimmunediseaseawarenessmonth #autoimmunewellness (at West New York, New Jersey) https://www.instagram.com/p/CpV8BjQvfos/?igshid=NGJjMDIxMWI=

[theglutenfreezookeeper]

March is National Autoimmune Awareness Month! “During March, AARDA hopes to educate the public on the top five things everyone should know about autoimmune disease: (1) 50 Million Americans have an autoimmune disease, comprising a major U.S. health crisis. (2) There are 100+ autoimmune diseases including Crohn’s disease, celiac disease, rheumatoid arthritis, vasculitis, and Addison’s disease. (3) Autoimmune diseases “cluster” in families; for example, if your grandmother had lupus, you could be at greater risk for developing an autoimmune disease. (4) Fewer than 13% of Americans can name an autoimmune disease. (5) Autoimmune diseases target women 75% more often than men; and combined, autoimmune diseases are one of the top ten killers of women under the age of 65.” #CeliacDisease and #SjogrensSyndrome are the two main #autoimmunediseases I happen to have acquired over the years. Thank you #AARDA (@autoimmune_diseases) for all the helping to educate the public at large on this subject. #autoimmunewarrior #autoimmuneawareness #autoimmunediseaseawareness #autoimmunediseaseawarenessmonth #autoimmunewellness https://www.instagram.com/p/CauvrKgru_B/?utm_medium=tumblr

[theglutenfreezookeeper]

March is National Autoimmune Awareness Month! “During March, AARDA hopes to educate the public on the top five things everyone should know about autoimmune disease: (1) 50 Million Americans have an autoimmune disease, comprising a major U.S. health crisis. (2) There are 100+ autoimmune diseases including Crohn’s disease, celiac disease, rheumatoid arthritis, vasculitis, and Addison’s disease. (3) Autoimmune diseases “cluster” in families; for example, if your grandmother had lupus, you could be at greater risk for developing an autoimmune disease. (4) Fewer than 13% of Americans can name an autoimmune disease. (5) Autoimmune diseases target women 75% more often than men; and combined, autoimmune diseases are one of the top ten killers of women under the age of 65.” #CeliacDisease and #SjogrensSyndrome are the two main #autoimmunediseases I happen to have acquired over the years. Thank you #AARDA (@autoimmune_diseases) for all the helping to educate the public at large on this subject. #autoimmunewarrior #autoimmuneawareness #autoimmunediseaseawareness #autoimmunediseaseawarenessmonth #autoimmunewellness (at West New York, New Jersey) https://www.instagram.com/p/CMCzKp1J23l/?igshid=sxmm9k9fjml6

[mcbeamon]

One minute I was talking. The next I was crying; stumbling over my words as my emotions got the better of me. The pure joy and gratitude that filled my heart took over and the prepared speech is partially memorized was gone. But, I didn’t care about that or the tears coating my face in front dozens of friends, family and strangers at Autoimmune Walk NYC yesterday afternoon at the Hudson River Park’s Pier 45. I was saying what I need to say in that moment and I was elated.

What I’ve learned through all of my medical journey can be summed up with the final words I said to my now former co-worker, legendary anchor Diana Williams, “we got this.” Knowledge, sharing, and activism makes me feel like now I’ve a handle on my condition and anything life throws at me.

What I discovered from my coworkers, family and friends is my most cherished life lesson though. It is to let who you are, even your perceived flaws shine… you never know who needs to see them to know they aren’t alone, to know what is possible and to know that nothing can stop them if they refuse to never let their illness or anything else be an excuse to give up on life. Never surrender!

#abc7ny #aarda #autoimmunewalknyc #neversurrender #nevergiveup #noexcuses #nosurrender #friendship #colleagues #tvnews #motivationmonday #journalism #invisibleillness #chronicillness #chronicpain #blogger #writinglife #disability #autoimmunedisease #spoonie #igg4 Be An Agent Of Change One minute I was talking. The next I was crying; stumbling over my words as my emotions got the better of me.

[mcbeamon]

Speak Up! Speak Out

Here’s the truth: I never like how I look on TV and I’m not a fan of the sound of my voice. But I stepped in front of the camera for a good cause: Autoimmune Walk NYC. It was chance to speak up and speak out about diseases that get little attention.

I spoke out about the impact of my decades long fight living with IgG4-RD. While the segment isn’t about me, it is about informing the public about…

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[mcbeamon]

Working While sick

It is extremely rare that I mention where I work when I discuss living with a rare autoimmune disease (IgG4-RD). However, I recently made an exception. The reason I’ve been able to maintain my career so long has a lot to do with my colleagues. They offer their help, support (like taking and participating in the photo for the article) and patience on a daily basis. Their flexibility and words of…

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