#spooniestrong

[spooniestrong]

“Inverse vaccine” shows potential to treat multiple sclerosis and other autoimmune diseases

Pritzker Molecular Engineering researchers led by Prof. Jeffrey Hubbell showed that their compound can eliminate the autoimmune reaction ass

[tumble-tv]

"You're always so chipper and excited even though you're in pain, I could never."

Bethany, if I wasn't chipper and excited about the most mundane things like bees and dice, then I would literally be bedrotting all day every day, sobbing because my entire life is falling apart because I have no answers or relief to pain that doctors think is fake. So I will take joy in my trinkets and rollerskating while my body allows because one day I won't be able to.

[only-knives]

having audhd on top of chronic pain is actually so incapacitating and i wish more people understood this.

when you're already very sensitive to sensory input, things like going outside or playing videogames can trigger sensory overload.

what does this feel like? if you've ever had a panic attack, it's kind of like that. it's a very physical experience that takes a massive psychological toll on us.

now, having unrelenting severe chronic pain is enough to drive anyone insane. it's enough to make someone housebound or bedbound.

mixing those two together? now that's a special kind of hell. the sheer amount of Things The Living Do that is either very difficult or completely impossible for you to do in that state? insane.

you get to go through your personal hell every single day and then instead of being idk, supported, taken care of, and given proper health care... people tell you you're lazy, overdramatic, emotional, just anxious/depressed, or irresponsible.

even the people who do recognize that it's a difficult thing to live with and do their best to be supportive - there's only so much they can do sometimes.

that's why i'm so grateful for the online disability community. in retrospect, my mental health hit an all time high several years ago when i first joined it. i've lost the spark i had but. it's never too late to get it back.

so to anyone somehow reading this who relates, i see you. even if you have a different disability than mine. it's hard living in a world that at times is almost committed to misunderstanding you.

but you're here. we're all here. and we still find it in us to make jokes, share our days, give advice, spread positivity, and make shitposts about our disabilities. good job everyone.

i'm proud of every single one of you.

[softgritspoonie]

[earlgraytay]

One thing that's been really odd for me lately is parsing out the difference between a Productive Day and a Good Day.

It used to be that if I had the spoons to get a little writing done, that was a Good Day, regardless of what else had happened. After all, there had been at least one brief shining moment where I was in a small enough amount of pain that I could get something done.

But now I can get things done while having a profoundly shitty day in every other respect - medical, professional, academic, personal, the works- and I still catch myself thinking, "this is a Good Day, I got [horrible paperwork] done and still have the spoons to write and do my other obligations!"

....It's weird and uncanny, realizing that something that feels like a Good Day for me can still really really suck actually.

[pcos-and-endo-awareness]

[dontletthefibrogetyoudown]

I know better days are ahead, I know that things won’t always feel like this; I just hate high pain days that couple with days where my depression is awful too.

[thespoongarden]