#adrenal suppression

[thechronicpaingame]

I have an endocrine appt next week and feel like that kid at school who's like "my dad is gonna beat your dad" cause when they find out about the FUCKERY of the last 7 months heads are gonna roll. Gastro, urology, GP surgery, I am dobbin you all in. Imagine in these last 7 months, a steroid dependent patient being sick daily for three months and not one person showing concern for the fact that I need this medication to stay alive and cannot be vomiting. That started in march and I still haven't seen a gastro consultant. Imagine the urologist not taking into consideration the effect infections have on adrenal suppressed patients and refusing to refer to the person who gives the medications which treat the infections. Imagine the GP surgery not once mentioning this very important note in your referrals so you wait a year for one to come through all whilst being untreated and in actual danger daily. Imagine the stress of all this on the patient who doesn't make adequate amounts of natural steroids to deal with that stress. Endocrine are my dad and they're about to beat all you other dad's.

I don't think I've ever been so excited for a hospital appointment but endo are the one team who have my back 100%

[thechronicpaingame]

Why did no one warn me that a gastroscope (upper endoscopy) is actually the most awful invasive procedure 😭 I just had the numbing throat spray and my god, it was awful. Won't be doing that again without having sedation / general anaesthetic 😖

They saw inflammation (oesophagitis / gastritis) and I have a hiatus hernia. Taken some biopsies so now I just continue with the omeprazole (even though it hasn't helped) and see what comes back from these results. Feel like I'm not much further but guess I am a little compared to before I had it.

[thechronicpaingame]

What do you do when you can't get the pain to stop or ease? (Genuinely looking for any tips anyone might have). My painkillers aren't touching it, heat doesn't work for me. I just wanna sleep 😴 I'm lucky that it's rarer for me these days to have this kind of pain that will not cease but when it comes it comes hard.

Just to edit this and say it's still not easing and I am paracetamol, ibruprofen, codeine, pregabalin and 2 tramadol down 😖 what do you do when they just don't work. I really don't wanna get into morphine patches because I know what a 10 feels like and I wanna save the morphine adjacent things for that, but this is also too high / too much.

[thechronicpaingame]

Me; may I have a little bit of food?

My body; you can try 😈

Me; ...okay then.

My body; ✨ immediately ejects it ✨

[thechronicpaingame]

In some better news - I got my second covid vaccine yesterday (and side effects have been pretty minimal). Despite everything else going on health wise at the minute it feels good to know in a couple of weeks I'll (🤞🏻) be protected. I can't help but also feel guilty? I know so many people should be having the vaccine and are having so many issues right now and it breaks my heart - and I hope this doesn't come across as bragging in anyway. I'm thinking of each and every one of you ♥️

[thechronicpaingame]

TW; vomiting, eating discussion.

Hi! Still here, still waiting, still the same. Had a few occasions now where it feels like I'm choking on food stuck in my throat as it's coming back up which is really unpleasant. Not to mention my benefits have decided right now is the perfect time to get me reaasesed which is stress I really don't need. Just feel like everything is a lot right now and would like a little break.

Fingers crossed I hear this week as tomorrow is one whole month of daily vomiting.

[thechronicpaingame]

TW; vomiting, eating discussion.

Today's been rough. Just been vomiting constantly alllll day. Haven't managed to keep anything down until about 9pm (and whilst I still feel nauseous I've managed to keep some juice down and my evening meds). This is now 10 days consistently vomiting after eating ANYTHING 🤦🏻‍♀️ Still waiting to hear about my referral, 🤞🏻 soon. The anti-nausea meds I've tried so far haven't done a thing. I'm just so exhausted, so so exhausted. Hopefully it's something that can be sorted, and not something chronic (I don't need any more things added to my lengthy list!).

Usually I hate complaining on here but at this point I'm like, when does the break come? People talk a lot about catching a break - WHERE. WHERE IS IT.

[thechronicpaingame]

TW; vomiting, eating discussion.

Told to go to a&e yesterday as I'm barely keeping any food down (like bringing stuff up again 20 mins after eating anything). A&E said I need an endoscopy but they won't do it via their department and my bloods are normal. At first I wasn't too worried because of the normal (besides a very low vitamin D and B12) bloods, but the INSISTENCE of the A&E doctor also has thrown me off? Like, he could genuinely just be a very good doctor who actually cares about his patients (but how often do we stumble across those? Especially in an emergency medical setting). He even phoned me the day after to find out how I was (which has never happened before). You're telling me he just so happened to think about me, find my details and chase me up? I feel like maybe I'm reading too much into it but he also told me about TEN times during my few hours there that I NEEDED an endoscopy. I don't know, just odd.