I'm so sorry I have been missing again! I have a lot going on. Between my PXE flaring up, my allergies, and a sudden life change, I have been impossible to get ahold of. I am doing my best to get back with everyone! I'm so sorry! Also, If you know of anyone hiring in the Tahoe area, please let me know. @thano_ellis is looking for a new job. Thanks for understanding! ❤️❤️ For those of you who don't already know, I am a PiXiE. I deal with an invisible chronic illness, most people think that I don't "look sick" but the reality is, I live with a rare genetic mutation called pseudoxanthoma elasticum (www.pxe.org). I deal with a lot of cardiovascular issues, some days I don't have the energy to do much of anything, and simple tasks can exhaust me. This also causes a lot of pain due to the mineralization that is slowly closing my arteries. Here's my story... erindonnellyellis.tumblr.com/post/87414241075/chronic-hope-a-pixie-story 🌱 shredbetties.com/riders/story/erin_donnelly_ellis_jewelry_for_an_active_lifestyle/ 🌱 erindonnellyellis.tumblr.com/post/142874659050/i-am-forever-grateful-that-i-am-finally-healthy #adventurouspixie #pseudoxanthomaelasticum #allodynia #pxe #chroniciolness #spoonie #chronicwarrior










