Apr 21, 2025
The stages of bruise healing
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The stages of bruise healing
hi! i’ve been diagnosed with gilbert’s syndrome recently and was wondering if you have any articles / research about it? i’d be happy to read anything on the topic, from what causes it to everything else the community discusses. it makes me really lonely and i hope to find other people who share my struggles, to learn about the experiences of others. thank you for your work! really love your blog!
Hi! Thanks for the ask!
You've left this quite open so I've found a few resources that give a bit of an overview of Gilbert syndrome and then if you have any more pointers or specific questions, send in another ask and I'll do some more searching. I've also added Gilbert syndrome to my list of conditions to keep a watch for.
One thing I did notice is that Gilbert syndrome is called a "harmless" condition by at least one source but I'd like to hear the perspective of people who live with it so if anyone feels comfortable sharing please jump into the comments, reblog, or send an ask (anons are always open).
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What is Gilbert syndrome? The Mayo Clinic says it's "a harmless liver condition in which the liver doesn't properly process bilirubin" in this web article. This source covers symptoms, causes, and how the syndrome may increase the side effects of certain medicines.
The Mayo clinic page and this page both note that you may have a higher chance of developing gallstones.
The most common and noticeable symptom is jaundice (yellowish tinge of the skin and the whites of the eyes).
This Cleveland Clinic page lists other symptoms that some people experience.
Gilbert syndrome is a genetic condition.
Gilbert syndrome is often discovered by accident (e.g. a blood test shows raised bilirubin levels). One third of people with Gilbert's syndrome don’t have symptoms.
Gilbert syndrome itself doesn't need treatment and there are "no specific dietary or lifestyle changes to follow". (although some sources do suggest limiting alcohol)
Many sources note that being ill, menstruating, fasting or skipping meals, or exercising too much can increase your level of bilirubin if you have Gilbert syndrome.
This source points out that "Crigler-Najjar syndrome is a similar but much rarer genetic disorder that also affects the breakdown of bilirubin ... a more severe syndrome that may require a liver transplant before it results in brain damage or death. Genetic testing may be used if your doctors aren't sure if you have Crigler-Najjar syndrome..."
This source (same page as above; different section) also lists some medications that may be affected by Gilbert syndrome.
This source suggests questions to ask your doctor if you have concerns that the doctor has not ruled out other conditions and/or if you don't have the typically mild symptoms.
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I really appreciate asks as they help give me a bit more direction so everybody, please feel free to send me questions or suggest topics ✌️
oh no.. what did i eat this time???
Also, in case someone finds this in the mire: I have been living with cirrhosis for 7 years.
When I was admitted to the hospital 12/26/16, my hepatic vein was bleeding: they stapled it, and I didn’t come out of anestesia for 11 days. My MELD was 37, and I had 80+ lbs of fluid that my liver wouldn’t process. I was intubated; I was on a feeding tube. I developed TRALI, and part of my lung is still collapsed. I had to learn how to walk again, to write, and my neuropathy is still so great I can’t feel my left leg.
Here’s the really important part: I never touched a single drop of alcohol ever again. When I was released, my life expectancy was predicted 3 weeks to 3 months - because people DO keep drinking. I was a high-functioning alcoholic for 10 years, and I attempted home detox three times. I -know- the pull of addiction.
But I also recognize having to FEED an addiction, the point where it stops being enjoyable and starts becoming an necessity. I also DID NOT want to die. Coming out of that hospital without a physical addiction to feed was a gift- an absolute God-given Miracle - and I did not take it for granted.
I was placed on the transplant list, I had to go every five or six days to have the bilirubin (the fluid your liver won’t process) drained via a catheter they punched through my stomach muscles, and again: I have an absolutely non-feeling leg.
…but I didn’t drink, and the need to have fluid drained stopped, because my liver was HEALING. Three years in, they kicked me off if the transplant list because my MELD had gone from 37 to 12. Now, it’s anywhere from a 6 to an 8.
What I am saying to you is this: cirrhosis is not the death sentence it once was, and I’m proof of that. There is hope for you.
Day 386
One of my practicals’ partners had Gilbert Syndrome and it’s just... you obviously forget about it, then, the day before a test you notice that his eyes are yellow...
He nearly gave our (hepatologist) tutor a heart attack that day
Benign joint hypermobility syndrome refers to hypermobile individuals with musculoskeletal symptoms in the absence of any systemic rheumatic
Interesting thing I just ran across through a links post on /r/Hypermobility.
Very possibly another of those coincidences in this case, though, since AFAICT I got the Gilbert's and the Troublesome Bendy from different parents. However, I really didn't realize that most people couldn't reach all over their backs until after I was an adult, barring some very specific ROM limiting injury or whatever. 🤔
