I have two disabled characters who are in a relationship. One uses a wheelchair and has double LLA (one above one below knee), whike the other is generally mobile and doesnt use any aids. Theyve been in a relationship for years, but mostly online rather than in person (the story takes place in person). Should I have them have a consent and boundaries (e.g. you can lift me but only if I ask or if i'm already using you to pull myself up, you may offer to help me move over difficult terrain but what path we take is my decision, im okay with you touching my nubs if you tell me youre gonna do it and wait for confirmation beforehand) talk 'on screen' or should it have happened earlier in/at the beginning of the relationship and be referenced to?
Sorry if this is confusing. I am disabled, so I have had to have these talks before, but I dont use a wheelchair and ive never been in a largely online relationship where physical stuff isnt relevant.
Hello!
This is a similar situation/dynamic to my boyfriend and I. Though we're not in an online relationship, we are long distance and most of our day-to-day interactions take place through texting or social media. Both of us are disabled but at different "levels" (So to speak).
While we have several disabilities in common (Autism, Tourette's, ADHD, etc.), the main difference is our levels in physical disability. He is paralyzed and uses a wheelchair full time. I have an undiagnosed disability that causes me chronic pain/limited mobility and use a cane and other mobility aids.
Above all else, though, we're both two separate people. We have different histories, opinions, and experiences. Most of our discussions about boundaries have actually been about language. While I reclaim the term "cripple" for myself to a degree, he doesn't. On the other hand, he prefers to be called "somebody with autism" while I prefer the term "autistic person".
These seem like small things to worry about but they're fairly important, both to our identity and our relationship. We have a sort of compromise in our relationship. I haven't changed my language entirely and neither has he, but we've both adjusted it. He uses the language he's comfortable with for himself, I use the language I'm comfortable with for myself. We generally stick to neutral language when speaking generally.
I mentioned that this is the only real discussion we've had about boundaries. The rest of it has happened more over time, usually in the form of correcting one another or elaborating on our needs and preferences.
Like with consent, it shouldn't just be one conversation. It's constantly evolving.
In your story, it may be best to show that. If you leave it as something that happens offscreen, it may be looked over. If you have a big conversation happen onscreen, it could undercut the seriousness of their relationship or come across as clunky.
Having this discussion be an ever-evolving series of small conversations instead can make it seem more natural and also help show how somebody's needs and preferences can change over time.
If you do want a conversation/discussion to happen that's specifically relevant to their online relationship, it could involve their boundaries and preferences around things such as language (What terms to use, which ones to avoid, etc.), photos/videos (Whether they can be shared, whether they can be requested, what parts of themself will be in them, etc.), talking about them to others (How much information they can give others about their partner's disability, etc.), etc.
The big thing with boundaries is that it's not a "one size fits all" thing. Somebody's boundaries will constantly be changing and shifting depending on the situation, the day, or even just their current mood.
At least for my boyfriend and I, the biggest thing is communication. There will be times where I notice he's struggling and will ask if he wants me to push him for a bit. Sometimes he does, sometimes he doesn't. But even if he's okay being pushed by me, I would never just randomly start pushing him without his consent.
With your characters, this could look something like one character asking the other if they need help doing something (Ex: "Do you want me to grab that for you?"). It could also look like one character correcting the other on language for themself (Ex: One character says, "This is my girlfriend, she's autistic." The other says, "Actually, I prefer being called a person with autism."). The character could explain why that is (Ex: "I was called autistic a lot as an insult and don't want to use that language for myself now.") or they can just leave it as is and let their preference be known.
As with any relationship, navigating consent can be a bit awkward at the beginning -- especially if this is your characters first time meeting in person. It's normal for them to stumble a bit and for there to be misunderstandings. For example, maybe one character accepts the other's offer of help but they have two different definitions of what "help" means in that context.
Of course, the nature of the conversation will differ depending on when they're having it. If it's happening during the online part of their relationship, it likely won't focus as much on physical things (When to help them, for example) and will instead focus on some of the other points such as language and discussing their disability with other people.
The last thing to keep in mind is that the process of discussing consent and boundaries looks different for everyone. The information I'm sharing is just my perspective on the matter. You'll have a different one, as will your disabled readers.
Cheers,
~ Mod Icarus
