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Kind of an Update

I finally heard back from GI regarding my medication and the fact that I am literally unable to take it due to the large size of the pill and he said what I thought he would. He was explaining that since I am seeing him in a few weeks that we can discuss what other treatment options are still on the table for me. I am still taking my Mercaptopurine as I know that is what helps to keep my disease in check, but I know he wants another medication in conjunction with the 6mp to help keep the inflammation at bay. I hate not knowing what is coming for me and what direction my treatment is going to take, but I know I have to wait patiently so that we can figure out what the next step is together.

I have had quite the relationship with Delzicol whether I go through the times to where my body just is not having it and then the other times where my body doesn’t mind it at all. I have been off of it before a few years ago for about six months, so I know that me being taken off of it for the time being is not completely out of the ordinary for me. The notion I am getting from my gastroenterologist is that the other options for me are a bit stronger and I am getting the feeling they are more involved. I wonder if he thinking of a biologic, but I don’t want to jump to conclusions just yet. He wants to check my levels to see what the inflammatory markers are so that can assess them and then determine where to go from there. I am relieved that I got a correspondence back from him because I was going to shoot him a follow-up e-mail regarding the status of what he wanted me to do next because I was in limbo there for a bit. I know I am kind of still in limbo because I am relying on my 6mp to keep things in check until my next appointment with my GI. I am thankful that my 6mp is not causing me issues and that I have been able to tolerate it all these years. I hope everyone has been feeling okay and I am one message away in case anyone needs to talk whether it be disease related or not.

Love and Hugs,

Wade

#crohn's disease #ulcerative colitis #crohns disease #crohn's #crohns #IBDers #IBD #inflammatory bowel disease #Delzicol #Asacol #Mercaptopurine #6mp

The Plot Thickens

I got an email from my GI and we were corresponding back and forth and now I don’t know where he is going to go from here. He wanted me to contact my local pharmacy regarding if I could break apart Pentasa and I found out through my pharmacist that I cannot, so I am not sure what the next is for me as it relates to my treatment. I figured that it wasn’t going to be so easy and my instincts were right. I hope there is a treatment option for me out there with a pill I can get down okay. I am awaiting his next response on what we are going to do because it looks like Pentasa is not going to be the move for me after all. It is like I can’t take the Delzicol anymore because they cancelled the size pill that I know I can swallow and the Pentasa I cannot break apart. I know I had spoken to my GI a few years ago in regards to Lialda, but I had seen the pill at that time and I remember telling him that just by the sight of it, I knew it was going to be impossible for me to even swallow it. I wish that pharmaceutical companies would keep in mind that not all of us can swallow large pills.

I feel a whole bundle of nerves right now because I just want a proper direction to go to so that I could be put on a treatment that I know will work for me in the sense of the size of the pill. I see my GI in three weeks, so if this isn’t figured out over the next few weeks, at least I know I have a guaranteed appointment then, so I am sure we will discuss it in a lot more details then too. I have to say that I at least like the email system that I am fortunate enough to have that allows me to communicate with my GI directly. It seems that when I have gone through other channels in his office trying to find answers to this current dilemma, I have come up short. I am trying to see the positive and I think that is something that has Crohn’s Disease has taught me over the years. Even when things may not go as planned, find that one thing that is related to the situation that you have felt a sense of satisfaction due to things being properly handled. I know I am just going to be waiting for my answers and I hope I can get them soon. I wish for good days for everyone and that our bad days are spread more apart from one another.

Love and Hugs,

Wade