I remember something you said to me forever and a day ago, when I asked how you kept writing being chronically ill and working and you said it was how you coped and I'm starting to understand it. I've been to the ER four times this week, been admitted to the hospital for a total of two days, and I've gotten more writing done this week than I do in most months XD. It's keeping me sane, and grounded.
i hope you don’t mind that i published this - if you do, let me know and i’ll take it down. anyway, i’m so sorry you’ve had to go to the ER so many flipping times. i hope you get to go home soon!
i’m the kind of sick where i still have to, like, have a job and live a normal life. i just have to do that while 100% always feeling like crap. emoji shrug. part of finding the balance for that, i think, is making time for the things you like to do. even if it’s a weird internet hobby. i mean, spoonies talk a lot about self-care and that of course means taking your meds and drinking water and getting enough rest and like, buying expensive bath bombs or whatever, but i also think it means consciously carving out time for the fun stuff in your life. honestly i basically go to work and then rest when i’m not working so that i can have energy to work again. i don’t get to do a lot of really fun stuff like go out all the time or see people or travel a bunch because it takes me so long to recover from that sort of stuff and i can’t work if i’m always recovering and if i can’t work, i can’t buy food or gas or makeup. so to me it’s important to make time for doing what i love and i’m lucky that writing is something that i like and also something that i can do from my bed.
and let’s be real, it kind of an escape, right? it’s a way to live the life that i don’t get to live and sometimes when your life is difficult, escaping becomes an important part of of achieving balance. but i still go through phases. i write a lot, or i feel blocked or, like now, where i’m sort of actively taking a break because i just think i need one. i have 113 works on ao3 and my word count is at 1.7 million and i’m taking a summer vacation or whatever.
i know from experience that sick people don’t get to feel better but i hope you get back to whatever normal is for you soon and i want to read what you wrote when it’s ready!