Almost two years ago, my mother walked into my room and delivered to me the news she had just heard through her doctor’s strangled sobs: “I have Alzheimer’s.” Her face was pale; she was expressionless with grief.
Two days ago, my mom turned to me and asked a genuine inquiry: “What do I have?”
I was not surprised by the question, since just hours earlier my dad had said that reminding her of her neurodegenerative diseases was becoming a daily occurrence (she has Alzheimer’s that presents primarily through aphasia, which in its own right is a separate disease. Aphasia only atrophies the parts of the brain that control language, and she has difficulty comprehending both language input and output. My dad has started telling her she simply has aphasia now). This was, however, the first time she asked me that question.
“You have Alzheimer’s,” I said.
“Oh.” She was confused, quiet, contemplative. “Well, everyone’s a little bit that.” She said it to herself, not me, not even aware she had vocalized her thoughts. Then she asked, “How do you know?”
“You told me, Mom.” The words tumbled out of me in shock; panic was rising as every fiber of my being screamed at me to run, to escape. All of a sudden I was launched into flight-or-fight mode: I had to fucking leave or I would scream and cry.
“No! No one told me that.” It didn’t come out like that, although that is what she meant. What she said was more along the lines of “no no tell me that.” It was gibberish what she said. Pure gibberish. She was so genuinely surprised, too. She has no idea she has Alzheimer’s. The disease has already taken that from her.
Imagine having to look your mother - your best friend, the person who gave you life, the person who raised you, the person who gave your life fucking purpose - imagine having to look her in the eyes and remind her of what she had told you just two years ago: You have Alzheimer’s, Mom. You are dying and disappearing before our very eyes. You’ve said it before: “I am not me.” “This is killing me.” It’s because of the Alzheimer’s. It’s taking you away from us, and it’s taking you away from you.
You’re drowning, and no matter how hard you cling on, no matter how tightly we hold you, the current will consume you.