Hemihypertrophy/Hemihyperplasia flag for a request on pinterest

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Hemihypertrophy/Hemihyperplasia flag for a request on pinterest
Are there any hemihypertrophy flags?
I don't know any.
🌻 !! :3
!! Aajdndb random thing! I have hemihyperplasia, so the entire right side of my body grows significantly faster than the left lol
Honestly I don't know what it feels like. I have been in chronic pain probably since before I can remember, as my disease is congenital and I've been dealing with it my entire life. Most days there is a dull unceasing pain and pressure from my mid-back thru my lower back and harsh dull grating pain in my ankles, knees, & hips. But on the worst days it's sharp and stabbing and I cannot move my body below my shoulders (if I'm lucky) without wanting to cry.
Torey with Hemihypertrophy and Chronic Pain
Please never judge anyone based on what they are going through or the pain they deal with daily. You never know what someone actually feels on a daily basis. Everyone is different and even when it comes to dealing with similar issues, people can be feeling things differently.
All I know is, every single day, I wake up in pain. I almost never complain about it or tell anyone, because I don't want sympathy. I know there are others dealing with depression and anxiety that probably feel worse than me every day, but that shouldn't take away from how I feel.
I literally (and I use that correctly) cant hold my child while standing for more than 10-20 mins. My back hurts every. single. day. Its definitely not easy, I feel like I am elderly. On top of that, I only have one kidney. If something goes wrong for me, I could die, because I have a rare blood type and no one that I am close with can even donate to me.
I am lucky that I cant pass this to my children, because for me, It is not genetic. I still deal with it every day though.
I just wish that people could be nicer to each other. Especially when you don't actually know what that person deals with.
Well, I worked up a lot of courage to post these pictures. I mean, it IS hemihypertrophy awareness month, so i thought, why not? I’m beginning to accept my body for how it is and it’s the best decision I’ve ever made. Not expecting this to get many notes, it was just something I felt would help my boost my confidence :^)
Important!!
heeelllooo you probably didn’t know this, but June happens to be hemihypertrophy awareness month!! Living with hemihypertrophy, I can tell you how unmentionable this condition is. It is a rare congenital disorder that occurs in 1 in 86,000 births. I think it’d be really cool if you could research and learn a little more about this condition. Thank you, and have a beautiful day! :^)
hemihypertrophy- a physical disorder i have
i(rosie)was born with a disorder. Hemihypertrophy is a disorder in which one side of the body or a part of one side is larger than the other. Children or teenagers with hemihypertrophy may also develop scoliosis, a curvature of the spine. i have had this since birth but only recently developed scoliosis, i have to go to the hospital very regularly to have scans of my body, they take XRAY photos of my neck, spine, legs and feet to see if there has been any improvement but so far there has'nt which is disappointing. having this condition makes it hard for me to walk allot as it affects my back and legs even more, also it hurts. i have hemihypertrophy in my legs which mean my legs grow at different speeds, i have been measured and my leg difference is 2 inches apart which to some of you might not be much but to me is has a very large impact on my life. my right leg it growing faster than my left leg which means my legs are very different. i don't like showing my feet because i my feet are different sizes, my right foot is size 8 and my leg is 6 and 1/2.
i usually walk on the front on my foot like tiptoes and no one notices which i like, i hate when people say things like retard because it actually gets to me because of this. if you have a condition like this or any condition at all both me and beth are here if you want to talk about it