How have you been feeling lately? Did the lyme treatment help out at all? I hope you are feeling better!
Well I’m mixed up. Some days are better than others, but overall it’s a constant joint pain and brain fog I’m struggling with. Doctor was almost happy I felt worse, because he said it meant the treatment was working, and I think I experienced a few Herxheimer reactions (days where I could barely get off bed, extremly sore like with a bad flu), but I’m still wary about calling it Lyme once and for all. First ELISA test came back negative (like they always do, or so I’m told), and Western Blot didn’t show much, so I took a second test in Germany yesterday to really get the last word on this. But because I’ve started treatment 3 weeks ago, either the antibiotics took care of most of the infection and the new blood test will show even less antibodies, or the treatment helped my body explode the bacteria into bits so it recognizes them better and it’ll show better on the test. I’m a bit clueless really.
What I do know for certain is that some symptoms are really not made up by my brain : the joint pain is almost unbearable sometimes, and a blood test I took in early July showed a CRP (protein showing there’s an inflammation somewhere, normal values 0-6µg/L) above 25, meaning my body is indeed inflammed everywhere.I also get freaky heart palpitations because of the treatment, and it’s definatly not something nice.The brain fog is trickier to diagnose, but I know deep inside me how I used to think, how my brain used to work, and it’s definatly not the same. I can barely think or read long phrases, when I used to devour a dozen books a year. I put orange juice in my bowl instead of milk, I pick the flour and walk with it until I realize I wanted to make myself a sandwich, I forget to turn off the fire under the pot when I’m done, I’m stuttering and can’t find my words, I forget to lock the door when I’m usually an obsessive frick with that, I’m asking Tig about the size of the icon I have to do when I’ve already made 15 of those… I know it might sound trivial, but I really feel I’m loosing something here. Like, am I becoming dumb ? Will it come back one day ? Are some neurons destroyed ? My mind used to race so fast all the time !
Ugh, sorry it got this long. I really hope something is gonna show on this german test, otherwise I’m pretty back to square 0 and I have no idea what I could do.
