Doctor: List all your medications and dosages.
Me: *weeps*
*writes “see attached,” proceeds to hand medical professional an additional three pages*
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@chronic-adventures
Doctor: List all your medications and dosages.
Me: *weeps*
*writes “see attached,” proceeds to hand medical professional an additional three pages*
Mood.
herxing got me like
Can we talk about how embarrassing it is when your house is a disaster because you’re in way too much chronic pain to keep up with housework
In my case i am fully busy the entire day and i don’t have time to clean my room xD
That’s definitely not the same and further more proves out how non spoonies don’t get it. Next.
I want to be able to stay busy more than anything
*an individual expresses things that make them upset or embarrassed or just bad in general that is out of their control and very specifically does not relate to the general public and clearly is only asking for people who may relate to them/people they trust interacting with their posts adding on*
someone who has no idea what this person goes through every day: ok but in MY case….
Tattoos That Turned People’s Scars Into Works Of Art.
I’m shooooook. Wow.
I know this is rude but sometimes I wish some Facebook support groups for chronically ill or disabled did not allow parents of sick or disabled kids. I think most groups should allow them and they should have their own support groups too but holy shit sometimes I’m so tired of seeing parents of disabled or chronically ill kids talking about how impossible or miserable or hard their lives are because of their disabled or sick child without actually acknowledging how hard it is for the child. I’m not saying they shouldn’t have their place to vent but they should also think of how that looks to the actually disabled or sick people. It paints us as a burden to our families. Not to mention if their child ever saw those posts. I just think it’s a little hurtful and insensitive to the actually sick or disabled people in the support groups
Speaking of which I just saw a post on an eds group where a mother said eds runs in their family and their young daughter has daily headaches and stomach problems. The mother thinks it’s anxiety and wants to take her to a therapist rather than a doctor. Like are you kidding me. Don’t ignore your kids symptoms that match an illness you are aware is in your family then post a dismissive post on a group that is supposed to be supportive to people with the disease. Like the fuck.
I had health problems for years that were blamed on anxiety and bullying in school. They were really eds and pots. If I had been treated earlier I could have saved a lot of damage to my body and loss of quality of living.
Parents. Do. Not. Dismiss. Your. Kids. Physical. Symptoms.
You know it’s kind of exhausting, continuing with my life and staying upbeat and positive while my body is literally killing itself
Being chronically ill and having to stay at home a lot doesn’t mean I have more free time. The chronic illness occupies that and the rest of my time.
Important.
Always reblog this
me: i don’t want to be mentally ill me, but quieter: but i also don’t want to recover because i don’t know who i’d be without my mental illnesses since they are practically my personality and recovery seems scary and it seems the only point of my life is to hurt because that’s all i’ve ever known. somehow mental illness is a comfort blanket even though it is the reason i need a comfort blanket to begin with and the world beyond this seems oddly confusing and terrifying
i cried in the pharmacy today!
If you didn’t cry at the pharmacy, did you really go to the pharmacy?
Shit. I want to cry every time I’m there. Im like “oh yeah, all 8 medications are mine, please and thank you”.
“yeah i know the rules, see u next month,” then scurrying away while shoving the bags in your purse to hide the sheer number
this is why its depressing to work in a pharmacy.
I was definitely a profit killer when I worked in a pharmacy (which honestly was my favorite job in the entire world, but it was short-lived and nowadays you can’t work at a pharmacy like that, it’s all tied in with corporate retail and no one should ever trust me with a cash register ever). It was not, however, actually a profit killer for the pharmacy, just for the drug companies, so no one cared. These days I do medical billing, which means I actually bill OUT from hospitals so I’m mostly spending my professional time taking money away from insurance companies.
I will now impart all of my profit killing resources onto you, in case you don’t know them. I think most of you know them, now. But just in case you don’t.
THIS IS US-CENTRIC. I’M SORRY.
1. GoodRx - this thing has an app now, so you can look up the best places to get your expensive medicines at the lowest possible prices without insurance on the go, and you no longer have to print coupons because you can just hand over your phone or tablet. Times have changed for the better with GoodRx. Definitely use it before trying to fill your scrip, because it will tell you the best place to go. (You can do that on the website, too.)
2. NeedyMeds - Needymeds is basically the clearinghouse of drug payment assistance. They have their own discount cards, but also connections to many patient assistance programs run by drug companies themselves. They are good assistance programs, too.
3. Ask your county - This is not a link. This is a pro tip. Most county social services will have pharmacy discount programs for people with no and/or shitty pharmaceutical coverage. You can often just find them hanging around at social services offices; you can just pick one up and walk off with it.
4. Ordering online - There are a few safe online pharmacies. I keep a little database in a text file on my computer. Most of them are courtesy of CFS forums, my mother or voidbat, so a lot of that is a hat tip to other people, but if you’re in need of a place to get a drug without a prescription … first I’ll make sure you 100% know what you’re doing for safety reasons and then I’m happy to turn over a link.
5. Healthfinder - A government resource that helps find patient assistance programs in your area. This might also point out the convenient county card thing. RxHope is something a lot of people get pointed to via Healthfinder that’s a good program.
6. Mental Health America - Keeps a list of their best PAPs for psychiatric medications, which can be some of the most expensive and a lot of pharmacy plans don’t cover them at all.
This is so important ppl.
Signal boost the shit out of it!
Booooooooooooooooooost
Good Rx Saved my family a hundred dollars a month while I was getting signed up for CHIP seriously it’s a life savor especially for ridiculously expensive drugs like abilify
Useful info, friends! ;)
Since many of our followers are on medications, I feel like this would be an important resource. -Luna
Also! Some drug companies have patient assistance programs where they send you the drug for FREE if you are uninsured, or if your insurance doesn’t cover that drug.
Do a Google search for “patient assistant programs” + (your med), or search the manufacturers website. Sometimes the info is online; other times you have to call.
Even some of the big name pharma companies have this. It’s certainly not all companies, or all meds, but it is worth a shot.
Before Obamacare, I lost insurance and couldn’t pay for my mood stabilizers (kiiiiinda important to have those when you’re bipolar.) I was on generic Lamictal, but I went to the official Lamictal website, filled out a form with a valid prescription, and they mailed my meds to me every month for free.
If you know anything about bipolar disease, you know that that was a literal life saver. Patient assistance programs ftw!
This is so important given the recent vote to repeal Obamacare. And the cartoon above is so on point They’re literally voting to kill people. Literally.
Some of my meds are no longer going to be partially covered by my ridiculously expensive private insurance. I just used the GoodRX website to look it up, and I can either spend $40 at Target to pay for one of them out of pocket–per month–, or I can get it at Sams Club for $4. No that is not a typo. The drug I need to take every single day to keep my allergies from spiraling out of control (yay auto-immune bullshit) is literally ten times cheaper at Sams Club. Holy shit.
I can get my antidepressants for $4 cash from Walmart through this site this is literally going to save me
There has been a lady inside my brain screaming for the past 10 yrs and u think taking a bath and doing yoga will stop her? U are wrong. She is a very mad lady and she will not be silenced
herxing got me like
I have no more words anymore. One of the worst attacks and mass murders committed in Japan, and it was committed against the disabled.
Everyone just wants us dead. To vanish. Anywhere we are. Even the people who are hired to help take care of us. Even our families. Anywhere in the world it seems.
My heart however goes out to the people in Japan who will be suffering, and living in fear. Disabled people who will be afraid of leaving their houses. Of people who will be grieving so much.
The death toll is up to nineteen, now. I have no words, either.
I just want to highlight that the murderer was someone who worked in the facility, someone who worked with disabled people, who supposedly would take care of them and help them live more comfortably. Emphasis on “supposedly”.
I want every single person who’s tried to silence disabled people by saying that those who work with us have disabled people’s best interest in mind, to read this.
To read that a mass murderer who specifically targeted disabled people, was someone who worked with them, and wants all disabled people to disappear.
Here’s a thing that is helpful and free! It’s a plugin that uses a dyslexic-friendly font and color coding to make reading easier for everyone, but especially for those of us with dyslexia, ADHD, or other learning disabilities.
Above text reads: “Make reading easier and faster with BeeLine Reader! BeeLine uses a color gradient to guide your eyes from the end of one line to the beginning of the next. This seemingly simple tweak makes reading substantially easier and faster because it allows you to transition between lines quickly and effortlessly. Thousands of people have taken our online diagnostic test, and over 90% of them saw a benefit from BeeLine. Many people are able to read 20% or 30% faster with BeeLine, even on their first try.
Our Chrome extension works great on news articles, wikipedia pages, and other text-heavy websites. You can choose between several different color schemes, and more features will be coming soon.”
I read that top part SO quickly and when i got to the caption I gave up after the first sentence
I have really bad eyes and sometimes my dissociation makes it hard to focus so this plugin has helped me tremendously. I use it with Mozilla Firefox.
Mod C
OH DANG THIS IS INCREDIBLE
I just got this and it is indeed fantastic.
Me: I'm in pain could I get some pain medication for when it's really bad?
Doctor: uhhhhhm I don't like giving pain medication cause it just masks the pain
Me: *eye twitches*
Me: tHATS THE POINT?????
Never judge someone with a chronic illness if they...
• choose to eat something that’s bad for them • forget to take their meds • take something for chronic pain • never drink (some people can’t ever drink because they can’t mix their meds with alcohol or because they physically cannot tolerate it) • decide to lay down and rest all day • skip their treatment one day (meds/shots/IV treatments should sometimes be rescheduled of we catch a cold or we feel rly bad that day) • drink • complain a lot about their symptoms/illness • ignore their symptoms
I could go on but you should NEVER judge someone with a chronic illness when they DECIDE to do something. Unless you know what they are dealing with and can offer a better alternative for them then shut up and keep your comments to yourself. It’s our body and we are the only person responsible for the consequences. It doesn’t mean that we should actively make decisions that hurt us, but you’ll never understand the life we lead and all the limitations that come along with it.
Discover Livia, the off switch for menstrual pain. Get more information here
Omg I need this!!!!!
This is just a compact TENS unit. You can get decent, compact, TENS units on Amazon much cheaper than they’re asking here. Sure it might not be cute, but it’s cheap and honestly the cute factor is just an excuse to slap the pink tax on.
It is so important to me that you guys know this is just a TENS unit. Don’t go paying twice or three times the amount just because its little blue and has purple flowers. Like you can slap some flowers on your electrode pads if you need to.
^important
Yeah, this is a TENS unit. Amazon actually sells one for less than $30 USD and it has a lot more functionality than this one does. (and holy fuck is it strong. like, surprisingly so)
But as for the treatment, GO FOR IT. TENS therapy is so strangely unknown for chronic pain. If you can tolerate the weird electric feeling, then it’s really quite amazing.
Reminder to people on high dosage psych meds
especially anti-psychs and SNRIs, these meds increase your body temp and the more you take, the more it does that. You are NOT just “feeling the heat” if you start to feel like you have sunstroke this Summer. You will most likely get it before anyone else so treat yourself as you would treat a small child. Ensure that you stay hydrated and keep an eye on yourself!
I had to remind myself of this because I’ve been feeling the heat a LOT since my dosage was increased and it can actually lead to your meds fucking up/you getting really sick!
Be good to yourself, stay cool!
ETA: People demanding sources.
And be careful because often the full effects of the sun on you don’t show up until later! I once had my body swell up hours after being out and it was horrible. If you’re on antipsychotics especially please stay hydrated, wear sunscreen, and try to stay in the shade!