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Highs & Lows. No Need To Hide 🤫
“Highs and lows
In the rhythms of Your grace I know
Should I rise or should I fall
You are faithful through it all
And You're too good to let me go”
Only vacuum cleaners suck
This sucks. Going crazy. I can handle the bad days but we’re on week two of consistent bad days. I’m frustrated. I’m tired. She’s frustrated. She’s tired. She’s extra irritable and has all the symptoms that come with the highs. She’s missing more school and just can’t work on any assignments because she is so high. We’ve changed to extremely aggressive dosages and corrections and see no relief. Even the dr’s office agrees it has to be a bad box of humalog because we went through the whole box already (its been just over two weeks) thinking the pens are going bad and we have tried everything to bring the numbers down. And we can’t refill until Friday so we are trying to manage the highs until Friday at 11 when we hope things can go back to normal. Monday we start the saline for the pump and that can’t come soon enough. Fingers crossed ketones don’t come back tonight or tomorrow and we can hold out to Fri. If I see HIGH one more time on the meter, I will scream.
Take a listen... Swear on everything.. It's worth it..
"We used to have so many lows... Now we got this shit on High!"
Calls from the nurse...
It may be summer, but today I remembered what it was like to look at my phone ringing and see the nurse’s number. Only today it was the camp nurse in a different area code.
It happens so often that I don’t panic. If something were bad than I would have to take it all in stride anyway so why waste the energy on hysteria. She really just called because there was a mix up with paperwork and she never received the doctors orders for dosages. Easy email. I did, however, get insider knowledge on the happenings of camp that other parents are not privy to. I got to hear about her activities for the day, the nurse was enjoying her job being close at hand holding her meter on the beach. But I also got the other medical related info...
The high just under 300 that even with trying to bring down went up 1. Yet, in managing that, the nurse took her to see a baby octopus (perk of t1 now). The nurse’s concern about the low that follows the high was legit as her blood sugar dropped to 67 in the middle of the night.
Now, luckily she has great friends bunking with her. However, if this becomes a common occurrence we’ll see how good those friends are at the end of 3 weeks.
You see, it was her dexcom CGM that alerted the low. Everyone in the cabin except for her woke up to the alarm...Then after the second alarm went off, her friends became concerned that she wasn’t waking up. They even checked her pulse.
Her friends got her back! Maybe a little more education on t1 would help but I’m just glad they were able to react to help her get help. All was well and a new camp story conceived.
T1 doesn’t stop her.