The other day I received an email from a friend of a friend who told me about the story of a courageous young man named John Hudson. John’s condition was described as a, “...terrible genetic disorder called epidermolysis bullosa. EB is a family of rare genetic disorders that affect the body's largest organ: the skin. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and wounds that may never heal.”. They said that John is a big superhero fan and they asked if there was something I could do for this special little boy. - There’s an organization called EB Research Partnership who is dedicated to finding a cure for John’s and others with this condition. From what I understand they are closing in on a cure. If you’re interested in learning more about EB or to make a donation I’ve put a link to the EB Research Fund in my bio ❤️ - - - - - - #epidermolysisbullosa #EB #johnhudson #Wolverine #MarvelComics #EBResearchPartnership https://www.instagram.com/p/CLg2QQYgRCo/?igshid=gm7lbw4jvpig
