I’m doing good. I’m working remotely for an amazing company, I have a fantastic doctor that is ordering every test needed to find out what’s wrong with me. My confidence is back.
I was diagnosed with POTS, Mast Cell Activation Syndrome, and Ehlers Danlos Syndrome pending figuring out which subtype it is.
My doctor ordered another ANA panel and my levels have quadrupled, so she’s beginning to think I don’t have POTS and instead have something that has the symptoms of it and mast cell.
So basically my diagnosis is questionable after further testing and we have more tests pending to figure it all out.
Lambert-Eaton syndrome is something she’s exploring because I match all the symptoms and my blood work results are leading her to it. If that’s indeed what I have, then it’s likely I have small cell lung cancer. I’d rather that not be the route my life takes, so I’m choosing to just think of it as a potential situation and not reality.
The 5 year survival rate of SCLC is 8%, which is a weird thought.
I won’t know anything until the test results come back, though, so I’m trying not to fret too much about it. I feel sorta like I’m in an episode of House MD.
I’m severely vitamin d deficient so we’re addressing that now. Iron deficient as well which we’re also treating.
All we can do is work on what we can and hope for the best.
Strangely, I’ve never felt better mentally than I do right now.
Life happens to us all. Nobody is safe from it. But I have a great remote job, two beautiful dogs, a roof over my head, food to eat, and amazing friends + some family.
I’m good for now.