Discover Top Posts Tagged with #leslieseuffert

Leslie Seuffert | On Tumblr [Towson, MD]

(edited by wbsloan)

#leslieseuffert #Black and White #lensblr #artists on tumblr #home

Pink Floyd, Rock and Roll Hall of Fame in Cleveland, Ohio, 2014

#artists on tumblr #typography #leslieseuffert #lensblr #design #pink floyd #the wall

Gem Sculpture in NYC, 2014

#artists on tumblr #lensblr #leslieseuffert #art #sculpture #mine

Leslie with Pseudohypoparathyroidism Type 1B Reaches out Fellow Patients, Researchers - Global Genes ™

My name is Leslie and I am 34-years-old with a rare genetic disorder called Pseudohypoparathyroidism Type 1b. This was proven by genetic testing at the Cleveland Clinic, but completed at a Johns Hopkins lab. I was diagnosed with it at age ten along with hypocalemia, but just recently had genetic testing at age 34 to confirm it because my symptoms have progressed. I don’t have any physical abnormalities visible to the eye. To a stranger I look fine, but I’m anything but.. I was also just diagnosed with Addison’s Disease in May of 2014. I was misdiagnosed with Lyme Disease, underwent heavy duty antibiotic treatment and followed a strict clean diet only to realize I didn’t have it. I have seen almost every kind of doctor you could think of, underwent extensive testing and brain MRI’s, full body scans, etc. I do not know what PHP 1b can do and I cannot find much as far as cases reported similar to mine.

#pseudohypoparathyroidism #genetic disease #me #leslieseuffert #rare

Why is everything wrong?

LS

#writing #quotes #wrong #leslieseuffert