#lgmd2a

[disability-shout-outs]

Shout out to folks with Limb-Girdle Muscular Dystrophy 2A!

[trishs-journey]

New business So as I stated I started a small business in hopes to raise more awareness for Muscular Dystrophy and Limb-Girdle Muscular Dystrophy.

[trishs-journey]

MDA Muscle Walk 2019

MDA Muscle Walk 2019

Hello, My name is Patricia Hadley and I have Limb-Girdle Muscular Dystrophy 2A. On October 6th is the MDA’s Annual Muscle Walk. This is our first year that we are able to attend the MDA Muscle Walk.

The goal of the Muscle Walk is to raise awareness for this rare life-changing disease and raise money to help fund critical research, send kids to summer camps, and help families find resources for a…

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[trishs-journey]

I get my new power wheelchair today! And some updates!

I am so excited that I get my new power wheelchair today! I have had my current power wheelchair for 5 years now so it’s definitely time for a new chair. The chair that I have now is made by …

[trishs-journey]

New chair update

It’s been a few days since my chair was delivered and I absolutely love it. I never thought in a million years I would love a wheelchair. I’ve been against using a wheelchair ever since…

[trishs-journey]

Trilogy 100 AVAPS Machine

In December 2018 I had my annual MDA Clinic visit. During that visit I was discussing some concerns I was having with shortness of breath during the day and sometimes at night. I previously tried using a Bi-Pap machine but I didn’t like it at all and felt uncomfortable using it so I stopped using it. So the doctor had the respiratory therapist come in and do a couple of breathing tests. They…

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[trishs-journey]

My very first WheelChair.