The past 3 plus months they have been trying to figure out what the rash on my body actually might be. Well the rash is lichen planus. It’s a response to your immune system overreacting. When I first had it they thought it wasn’t that big of a deal, then they thought maybe it is shingles, then allergic reaction and finally once it started to go to more parts of the body they got my dermatology appointment moved up from next month to the following day. Biopsy confirmed it’s lichen planus... however the joy of having CVID you want to stimulate the immune system. However when you have MCTD which is now Lupus it’s an over reaction of immune system. My doctors have been battling this since they wanted to start me on medication. They couldn’t start plaquenil with IVIG because I have mast cell activation and then they wouldn’t know which medication would be causing a reaction. They outweighed the two and felt starting IVIG was more important since if I get sick that would make it 10 times worse. Anyway In a nutshell my lichen planus per my dermatologist is a very extensive case. They still aren’t sure why my body decided to flare. I’m supposed to start a low dose of methotrexate but always afraid of side effects. I do have the steroid creams but I’m so allergic to steroids that even the cream is causing me to not sleep at night and agitated. I just wanted to share since I guess lichen planus isn’t too rare and maybe someone else might have some advice #lichenplanus #lichenplanussucks #lichenplanusautoimmune #lichenplanusawareness #cvid #mctd #ehlersdanlossyndrome #mixedconnectivetissuedisease #piawareness #zebrastrong #zebrawarrior #spoonie #funtimes https://www.instagram.com/p/B3yUTKPgDfW/?igshid=ithedu9yp7cq