#lindseyelarson

[winglssdemon]

lindseyelarson said: How do you do that shit cause I’m still trying to wash dishes I dirtied forever ago cause I don’t have the spoons (literal or figurative)

today was my first day of trying it. basically what i did was every time i finished my food, when i next had to get up to go to the bathroom, that was when i washed the dishes. One plate and one cup and no silverware since i’m still using plasticware. There was still plenty of rest inbetween. But I’ve also been feeling a bit better since I started vaping. So that’s helping a ton. 

[winglssdemon]

lindseyelarson said: I’m glad you got medicaid medicaid is the best thing a spoonie could ask for

It's friggin amazing. My last insurances I would have to pay anywhere from a $20 to a $50 copay just for the inhaler alone. The nebulizer meds were like a $100 copay last I needed them. This time, I went to urgent care, got a new neb machine, neb meds, and an inhaler for $2 total. I'm super duper relieved. And when I get a new script for my fluxotenine that should be super cheap as well. And I'm not receiving $400 medical bills for simple office visits anymore. I've never been more relieved to not be on my father's insurance. 

[winglssdemon]

lindseyelarson said: I’d give you mine but theres no guarantee I wont need my chair and it again

Yeah I wouldn't want to take yours on the chance that you would need it again too. <3 

[winglssdemon]

I'm also trying to remember to properly transfer how Lindsey showed me so I save spoons for rough days. :) 

[winglssdemon]

lindseyelarson said: Yeah, but the people around me understand my lack of energy, and high pain level, and have learned how to tell when it’s a bad day and I need to be left alone. It does the “both” thing so rarely I forget too. But it does, RSD/CRPS does weird shit!!

I'm so glad you got awesome people around you! They really make all the difference don't they? And I'm not gonna lie, I go check out the symptoms page on RSD sites to reassure myself that all the weird things that happen are perfectly normal with RSD...

[winglssdemon]

lindseyelarson said: OMG ITS THE WORST WHEN IT’S BOTH!!!!!!!**HUGS**

Thanks doll. <3 <3 <3 *hugs back* I know you've been spoonless lately as well. I always forget that it can do both. I think I block it in my head.

[winglssdemon]

lindseyelarson said: Yes very much so! I don’t know which is worse the cold that feels sharp and burny and makes my legs extra spastic or the hot that makes me sweat and want to scream. Given a choice…I want none of this shit!!

Argh it's so annoying! RSD has the weirdest symptoms ever. I hate the flaming burning pain the most, but I think my legs heard me and decided to up the icy flame pain, so now my legs are like hot flames on the inside and freezer burned on the outside. 

[prettysickart]

Pretty Sick Art #39: Lindsey

Name: Lindsey Age: 20 Site: Tumblr Has: Complex Regional Pain Syndrome (both legs and parts of lower back), Ehlers Danlos Syndrome Mobility Aid: Wheelchair