Some good news, my MELD score is down. It's sitting at a 22 which is good. The lower the better. Bad news. My kidneys seem to have worsened. It seems as though its a constant struggle of either saving the liver and destroying the kidneys or destroying the liver to keep what little kidney function I have left. Still would like to go back in time be like, hey, why the heck did you try to find alternatives to the prograh sooner? Apparently they had warned my parents about it possibly taking out kidneys when I was older. And even maybe needing another liver. But 30 years old is pretty damn young to be needing a second liver. Or actually it's not. Seems that prograf has a nasty little habit of taking out the liver in heart transplant patients. Along with kidneys. So a drug they give you to keep your body from attacking the transplanted Organ ends up taking out multiple other organs over years and years of usage. I think what happens is that most people when they have their transplants are maybe 20s or late teens. So by the time the immune suppressant drugs takes out their liver/kidney they can usually just blame it on old age, especially since a huge risk factor for these drugs is Cancer. Cancer is also a thing that mostly in elder people so they just blame old age and not the immune suppressant drugs. I don't know for sure, but it's starting to look like it. I just would like to know why we haven't done more research into this? Especially with more and more infant transplant recipients needing another transplant, in many cases such as myself sometimes dual organs, who hasn't this been looked into further? Just some things to think about.
I don’t know if I’m right, this is just what I’ve seen and reasoned. Please, if anyone sees or reads anything and wants to correct me, go for it!! I’d like to be incorrect on this shit.













