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Valentine's Day, just another chronically ill day
Oh, dear. Here we go again. Seriously. Valentine’s Day. Before we go on, what is your relationship status? Taken? Too early to tell? Too complicated? If so, how do you handle the overwhelming expectations of flowers, chocolate, itchy lingerie, fancy restaurant bookings, and the possibility of a ring at the bottom of your champagne glass? Continue reading Valentine’s Day, just another chronically…
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My First Month on Tecfidera
After a lot of Googling, I thought I would take this opportunity to share my first month on Tecfidera with you all as everyone who is new to the MS Medication wants to know more about the side effects and what to expect. I've included what I ate with each capsule as they recommend having a full meal that is high in both fat and protein. So here we go...
Day 1 - Half Dose
Capsule 1: 5:30AM Taken with 3 slices of bacon, and 3 slices of bread.
Side Effects: Approx 1 hour of flushing at 8:30AM
Looked like a sunburnt lobster
Capsule 2: 5:30PM
Taken with 3 sausages in a bread bun.
Side Effects: Approx 1 hour of itchy skin & light flushing at 9:30PM
Day 2 -
Capsule 1: 5:30AM Taken with 3 sausages in a bread bun. Followed by half a packet of crisps 1 hour and a half later.
Side Effects: Approx 1 hour of very light flushing (ears/side of face) at 9:45AM No-one Noticed.
Capsule 2: 6PM Taken with McDonald's fries and plain quarter pounder.
Side Effects: None
Day 3 -
Capsule 1: 8:30AM Taken with 3 sausages in a bread bun.
Side Effects: None
Capsule 2: 9PM
Taken with a southern fried chicken in a bun and salt & pepper crinkle chips.
Side Effects: None
Day 4 -
Capsule 1: 9:15AM
Taken with 3 sausages in a bread bun.
Side Effects: General hot & sick feeling
Capsule 2: 9:45PM Taken with a bacon toasty and salt & pepper crinkle chips.
Side Effects: None
Day 5 -
Capsule 1: 6:15AM
Taken with 3 sausages in a bread bun.
Side Effects: None
Capsule 2: 6:45PM Taken with fries and a burger.
Side Effects: None
Day 6 -
Capsule 1: 9:40AM
Taken with 3 slices of bacon in bread.
Side Effects: None
Capsule 2: 8:30PM
Taken with chips.
Side Effects: None
Day 7 -
Capsule 1: 9:30AM Taken with 3 sausages in a bread bun.
Side Effects: None
Capsule 2: 7:15PM Taken with chips.
Side Effects: None
Day 8 - Full Dose
Capsule 1: 5:30AM
Taken with 3 sausages in a bread bun.
Side Effects: None
Capsule 2: 7:15PM
Taken with pie & chips.
Side Effects: None
Day 9 -
Capsule 1: 5:30AM
Taken with 3 sausages in a bread bun.
Side Effects: None
Capsule 2: 6PM
Taken with McDonald's plain quarter pounder and fries.
Side Effects: None
Day 10 -
Capsule 1: 9:30AM
Taken with 3 sausages in a bread bun.
Side Effects: None
Capsule 2: 7:30PM Taken with yorkshire puddings and roast potato
Side Effects: None
Day 11 -
Capsule 1: 9:30AM
Taken with 3 sausages in a bread bun.
Side Effects: None
Capsule 2: 9:45PM Taken with McDonald's plain quarter pounder and fries.
Side Effects: None
Day 12 -
Capsule 1: 9:30AM
Taken with 3 slices of bread and bacon.
Side Effects: None
Capsule 2: 6PM Taken with SmashBurger burger and fries.
Side Effects: None
Day 13 -
Capsule 1: 9:30AM
Taken with 2 slices of bread and bacon.
Side Effects: None
Capsule 2: 7:30PM Taken with potato wedges and a beef burger.
Side Effects: None
Day 14 -
Capsule 1: 9:30AM
Taken with 2 slices of bread and bacon.
Side Effects: None
Capsule 2: 7:30PM
Taken with chips.
Side Effects: Woke up burning with red skin.
Day 15 -
Capsule 1: 5:30AM
Taken with 3 sausages in a bread bun.
Side Effects: None
Capsule 2: 7:30PM
Taken with corned beef pie & chips.
Side Effects:
Day 16 -
Capsule 1: 5:30AM
Taken with 3 sausages in a bread bun.
Side Effects: None
Capsule 2: 4:45PM Taken with McDonald's McNuggets and fries.
Side Effects: Sickness and Diarrhoea
Day 17 -
Capsule 1: 9AM
Taken with 2 slices of bacon and bread.
Side Effects: Sickness and Diarrhoea
Capsule 2: 6PM Taken with 1 slice of bacon in bread.
Side Effects: Sickness and Diarrhoea
Day 18 -
Capsule 1: 9AM
Taken with 2 slices of bacon and bread.
Side Effects: Sickness and Diarrhoea
Capsule 2: 7:30PM Taken with 2 slices of bacon and bread.
Side Effects: Sickness and Diarrhoea
Day 19 -
Capsule 1: 9:30AM
Taken with 2 slices of bread and bacon.
Side Effects: Sickness and Diarrhoea
Capsule 2: 6PM Taken with mashed potato.
Side Effects: Sickness and Diarrhoea Called MS Nurse and was advised to drop down to taking just the evening capsule for a few days.
Day 20 -
Capsule 1: N/A
Side Effects: Sickness and Diarrhoea
Capsule 2: 8PM Taken with Birdseye southern fried chicken & chips
Side Effects: Sickness and Diarrhoea
Day 21 -
Capsule 1: N/A
Side Effects: Sickness and Diarrhoea
Capsule 2: 8PM Taken with beef burger & chips
Side Effects: Upset Stomach/Cramps
Day 22 -
Capsule 1: N/A
Side Effects: Slight Stomach Cramps
Capsule 2: 8PM
Side Effects: None
Day 23 -
Capsule 1: N/A
Side Effects:
Capsule 2: 5PM Taken with McDonald's plain quarter pounder and fries.
Side Effects: None
Day 24 - Full Dose
Capsule 1: 9AM
Taken with 3 sausages in a bread bun.
Side Effects: None
Capsule 2: 7PM
Taken with chicken, potato, yorkshire puddings and gravy.
Side Effects: None
Day 25 -
Capsule 1: 10AM
Taken with 3 sausages in a bread bun.
Side Effects: None
Capsule 2: 10PM Taken with a bacon toasty and Tesco pepper potato crinkles.
Side Effects: None
Day 26 -
Capsule 1: 9:20AM
Taken with a bacon toasty.
Side Effects: None
Capsule 2: 8PM
Taken with chips & a southern fried chicken in a bread bun.
Side Effects: None
Day 27 -
Capsule 1: 7AM
Taken with a bacon toasty.
Side Effects: None
Capsule 2: 8PM
Taken with chips & a chicken chargrill.
Side Effects: None
Day 28 -
Capsule 1: 9:45AM Taken with 2 slices of bread and bacon.
Side Effects: None
Capsule 2: 7:30PM Taken with chips & a southern fried chicken.
Side Effects: None
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The Rollercoaster of Trying New Meds for MS
I’m going through the same thing at the moment. As I write this my cheeks are burning and my chest has turned an interesting shade of pink. It looks like I’ve been sat in the sun for hours with no protection and can come on at any time!
I’ve been on Tecfidera for nearly a year and am told the severe flushing should have died down by now but I get this nasty reaction every, single day. It’s worse when it comes on at work as I feel I have to explain it all the time. I hid in the toilets one day but can’t do that often as it can take an hour to fade.
I tell myself it’s better than having to inject Avonex into my thigh ever week but I’m growing tired of it all the same.
The trouble with these MS meds is that they prevent relapses so it’s impossible to know how well they’re working. How can I tell if my lack of relapses and progression is to do with the drug or just luck?
I’m considering coming off Tecfidera if the flushes don’t go away soon but don’t know what side effects I’m likely to get on something else. Is it better to stay with what you know or start again with another drug? Avonex used to make me feel rubbish for 5 days out of 7 so couldn’t justify carrying on. Time to talk to my health care team I guess.
- Abi
Do you have any experience with Lemtrada that you could share?
Biotin treatment for MS
Biotin treatment for MS
Biotin treatment for MS.
I have read a great deal about “Biotin treatment for MS” therefore decided to look into this in more detail before I make any decisions as to whether it would be something I would take…
The first web site I found was : www.sciencedirect.com/science/article/pii/S2211034815000061 They are doing a pilot study on“High doses of biotin in chronic progressive multiple…
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