#lemtrada

[adoreexyou]

The closer this treatment gets, the more anxious and nervous I become.

Just gotta remember that I’m aiming for hopeful remission for a while, and it will all be worth it.

[mshurricane-blog1]

I'M PREGNANT

So... I was on the list to get Lemtrada and waiting on getting my period so my husband and I could start using birth control before I got the chemo. Then... the period just didn't show up

After 7 years of unexplained infertility we are over the moon. This baby sure has crazy timing haha.

My multiple sclerosis actually seems better and my physio says she loves the baby already because they've calmed me down so much which has made my walking a million times better :-D

I've chatted to my ms nurse a little about it and I'm going to get Lemtrada after I've given birth and breast fed for as long as I want. So the plan is still to get the chemo but just to wait awhile.

I am so glad I don't need to get IVF! I mean, I'd definitely have done it and it would have been sooo worth it but I think we'd all prefer the "natural way" 😂

[lostchipmunk]

I always thought he would be there.

After I started having problems that all pointed to MS he was there for me.

I joined online groups and people would post about their partners leaving because they couldn't handle it and there I was with a boyfriend wanting to be there for my first MRI and getting upset because he couldn't make the second one.

He sat by my side as I met my neurologist to diagnose me and again for the next.

He felt awful for not being able to make my lumbar puncture appointments but called me constantly throughout the spinal headache that I got afterwards.

He was positive and looking towards being there for me throughout my treatment.

My treatment dates are mid - late march.

He dumped me at the start of February, I was just the easiest thing to get rid of in his complicated life.

Now I'm lost because multiple sclerosis has such an uncertain path but I always felt safe and that there was something, someone I could be certain about.

I felt so lucky that my boyfriend was sticking with me, I guess not.

[mshurricane-blog1]

The stress of being told I need Lemtrada (Chemo) to help fight my MS has knocked me for six. I have the worst 'MS hug' (I've never had that before) and my legs are heavier than ever. My hands are really tingly too which has never been an issue before. My legs felt like that and then went basically numb so that's super worrying.

We are all a product of our own experience and if my new experiences in life are of being ill, stressed and stuck in hospitals then I worry who I'll become.

[bethybright]

Scary things that go bump in my brain

Scary things that go bump in my brain

It’s a good night to talk about terrifying things, right?

No. I’m not talking about creepy baby dolls or marionettes or ventriloquist’s dummies or even movies about satanic possession or evil devil children. All of those things are enough to freak me out, no doubt, but I’m talking about a different kind of terror. I’m talking about the kind of terror that hits you in hindsight when you realize…

View On WordPress

[financial-fox]

Lemtrada--Stopping the MS Attack?

Lemtrada–Stopping the MS Attack?

Lemtrada is a once a year infusion that may slow or possibly stop the progression of multiple sclerosis. It is a once a year infusion, but the first year you receive infusions for five days in a row. Subsequent infusions are once a year but occur for three days in a row.

Insurance companies paint it as being for relapsing-remitting multiple sclerosis, MS, after two ms drugs have failed. That…

View On WordPress

[bethybright]

Quick update

The Great Scott himself called me before I could call him this morning. As it turns out, my labs were completely normal. No UTI indicators at all. No indicators of any infection. Nothing.

I’m not sure what to do now. I thought I’d be getting some stronger antibiotics and would subsequently be getting stronger more operational meds that would get me on the road to feeling better but I’m not…

View On WordPress

[bethybright]

It’s been awhile since our last ENC outrage

It’s been awhile since our last ENC outrage

I was probably due.

For those unfamiliar, ENC refers to Evil Nurse Carol, she being the RN who is the right hand woman of my MS specialist we all know and love, The Great Scott. Ok now that we’re on the same page, let me tell you about my latest beef with ENC.

I get labs monthly as part of the Lemtrada One-to-One program. They routinely check for urinary tract infections amongst many other…

View On WordPress