#nf1 community

[hrtvampire]

NF and Transness! If everyone who sees this could reblog it that would be great.

I want to start a group for people, like myself, who are transgender and have neurofibromatosis. (Type one or two) There's very little research on if hrt and nf cause any complications. NF has complicated my relationship with my body as has transness. I want to get in touch with other people who might relate. So if the internet could help me find some other people like myself, that would be awesome!

[aceoffangirls]

MAY 17th is Neurofibromatosis Awareness Day

May 17th is international awareness day for a condition called Neurofibromatosis or NF. NF is a set of three complex genetic conditions that can cause tumours to grow on the brain, spinal cord, and nerves. Although most tumours are benign some can be cancerous. People with NF can also struggle with learning and attention disabilities, bone deformities, hearing loss (those with NF2 due to tumours), vision loss (NF1 optic nerve tumours) and chronic pain.

I have NF.

NF1 is one of the most common genetic conditions yet it is widely unheard of both within and outside of the medical community.

Buildings across the world will be lighting up blue and green to raise awareness.

[hrtvampire]

I sure wish there was more research on my genetic condition and hrt… love having it be so up in the air about if I get to go on testosterone or if it will cause my tumors to grow.